Meet & talk to fellow OstoMates 20,329 members

MRSA

Posted by CharK63, on Wed Feb 22, 2017 6:35 pm

Hi this is Charlotte. 

I tell my story all the time so don't want to bore you except to say that I had a reversal almost a year ago last May and my stoma closure scar has never healed properly. In fact, the whole 2 inch scar opened up so much I had to start packing it again. 

I went yesterday to my surgeon to get results of culture. 

I have MRSA in my incision site! I'm thinking of all the horrible things I have heard and when preparing for hospital all the dire warnings in paperwork and posted on the walls. 

They prescribed bactrim and this is 2nd antibiotic in the last month

Here's the thing. They say catching it early is your best chance to beat it but I don't know how to make Drs. stop and listen to me. 

I was released when it was still leaking. I reported it to surgeon by phone after awhile but I was seeing my md regularly tg. He ordered a catscan and hernias showed up. So it took a month to get approved for that surgery and 6 weeks recovery. 

A week after that release I started getting pains with a fever and a week after that is when it split all the way with horrid amount of discharge so I went to ER. 

Needless to say it's been another 6 weeks getting catscan and getting tested. The lies they tell you! When I first saw on my medical record I am now a carrier I got all manner of explanations that didn't jive. The most popular is anybody who's been in hospital is a carrier so don't worry about it. When I thought I had another hernia because I feel a new lump she said that's normal especially with the mesh. Doesn't she realize even that was alarming!

But no, it's another MRSA coming out. It's on old scar nd already feels crusty but has not opened. It is causing the most pain as it's in the middle of my stomac. 

Finally I looked closer at my records and determined I got it when I went to hospital for a colonoscopy prior to my reversal surgery. It seems to me if I'm a carrier and having surgery the infection should be addressed. 

My question is does anyone know about surgical MRSA. I looked it up and can only see blisters on people that explode and that returns often.  Isn't mine inside of me?i also need to know what else I should be doing besides taking bactrim. I did read some of the homeopathic remedys. 

I've  been taking it easy for 6 weeks now I guess because I'm not up  to par but have not felt really ill. I have the pains, no temp, eating way too much for not moving around but that's all except moody. Now that has elevated to the nth degree!

Consider this a warning guys. I hope from my story you will be able to do a better job with your docs. 

Charlotte

Reply by CharK63, on Wed Feb 22, 2017 6:38 pm

P.S. I think it should've been caught at first catscan before the hernia operation. That cost me another 3 months. 

Reply by Bill, on Thu Feb 23, 2017 3:00 am

Hello Charlotte.

Thank  you so much for sharing your story as it is a useful warning to anyone who has invasive surgery. I am so sorry to hear of the problems you are having but do not quite know what to say that might be helpful. So I thought I would just say that you are in my thoughts.

Best wishes

Bill

Reply by CharK63, on Thu Feb 23, 2017 2:09 pm

Thanks Bill, I'm actually trying not to think of the worst that could happen.

Reply by CharK63, on Wed Mar 01, 2017 9:51 am

Hello all,

I'm here to help you from my mistakes. Is it true mrsa is a national epidemic and the most likely place to catch is in the hospital! That's entirely insane! They also give it a 20% mortality rate if you've been in ICU or have been taking antibiotics

That would be 90% of the members here! This is scary shit!

My first mistake was not learning what mrsa is the minute I got a flyer on it telling ME to insist my nurses wear new gloves when they came to my room. 

But wait a minute! I was in septic shock! I was comatose the first 5 days in the hospital and that was in ICU!

My second mistake was not researching when I saw test results that I was a mrsa "carrier. Instead I asked the various docs who told me a load of crap above t how anyone who's in the hospital has it and don't worry about it. 

My worst mistake was not finding out precautions for it before surgery. 

i have a "soft tissue" infection which means it's in my surgical site, not a skin infection that you mostly hear about, but not an organ infection which is serious.

My takedown surgery was voluntary in that I set the date. That means I could have treated the mrsa I was "carrying" prior to surgery. Hello? Does that not make sense?

i read that with topical antibiotic soaps, shampoo, and nasal treatments for 5 days may clear it up. 

Im now trying some topical home remedies. I want to be proactive. I'm using raw honey from Australia with a compress of eucalyptus oil and tea tree oil on my sites. What I thought was a hernia is now draining like the first site. I'll keep you posted. 

Charlotte

Reply by panther, on Thu Mar 02, 2017 4:10 pm

I had MRSA over 20 years ago yes your right it's caused by the hospital enviroment, I was told I caught mine while having surgery, took about 6 months to heal completely, I was very lucky the wound healed that quickly I've heard of case taking much longer.  Luckly in the UK everyone going in for planned surgery is screened in advance now to see if they have it so you can be treated by nasal cream and antibioctics if needed. Good luck & hope your wound clears up soon

Reply by CharK63, on Sun Mar 12, 2017 3:33 am

Dear Panther,

Thank you. Have you had recurrent breakouts?

It is my understanding it's impossible to clear your body of the bacteria especially in lungs, nasal and bronchial areas. 

I don't know if I will be retested or if she's just watching for symptoms to clear. 

It appears that hospitals are keeping this as much of a secret as possible or at least denying the severity of the infection numbers.  While posting signs everywhere to watch out for our caretakers to change gloves. 

They must be counting on ignorant people like me to not question very much and accep lame statements for excuses. 

That is so crazy because the infection rate will grow and grow! I've learned first hand now how hard it is to keep my hands sterile. Once you wash your hands you can't touch the spigot cuz you turned it on with bacteria on your hands!

Since I live with my 90 year old mom I'm trying to keep the place sterile for her sake. I've read I can't even handle my dirty clothes without decontaminating afterward. I feel like I'm a pariah and it doesn't matter who's at fault for it. Just saying...

Thanks again

 Charlotte

Reply by panther, on Sun Mar 12, 2017 3:55 pm

Hi CharK63,

I'm pleased to say I've never had MRSA again. You have a lot to worry about and with looking after your mom on top of everything, as long as your mom hasn't got any open wounds MRSA wont be a problem for her

Reply by CharK63, on Sun Mar 12, 2017 7:47 pm

Thanks for that. 

Could it be that I'm obsessing some?!

Naa, not me! Lol!!

Not the first time....

Take care, Charlotte

* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 11    
3 members & 8 visitors
dls (f)
spyder (m)