Reply to Dwild-WA
Past Member
Jan 15, 2025 3:41 am
Axl
Jan 15, 2025 10:48 am
Eight years now, and I do everything I used to do beforehand with some slight adjustments. I forget it's even there most of the time. I don't have time to waste thinking about my stoma; I've got things to do and places to go. 😀
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Kas
Jan 15, 2025 10:52 am
Reply to Dwild-WA
That’s what happened to me too. The radiation “melted” the intestines so that lots of spots closed up causing obstructions. Unfortunately 1.5 years later, I am still having it happen and get to be scoped every 3 months to deal with these areas by dilating them open & draining the blood.
But, I’m still here so I guess that’s still a good trade.
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warrior
Jan 16, 2025 1:08 am
Reply to TerryLT
How about Pirate Lady? 😲
(You know I'm busting you, kiddo)
Stories of Living Life to the Fullest from Ostomy Advocates I Hollister
IGGIE
Jan 20, 2025 11:54 am
Reply to pamela.hill
G-Day Pamela,
I had ulcerated colitis for many years, so in 2004, I got my colon removed and got a J-pouch. Then in 2021, I went back to an ileostomy, and I have gotten so used to it I often forget it's there. I have even made a label that says CHANGE and I put it where I can't miss it because I do forget to change it sometimes. So yes, you will get used to it.
Regards, IGGIE