Past Member
Jan 15, 2025 3:41 am
Axl
Jan 15, 2025 10:48 am
Eight years now, and I do everything I used to do beforehand with some slight adjustments. I forget it's even there most of the time. I don't have time to waste thinking about my stoma; I've got things to do and places to go. 😀
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Hugo
This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.
Kas
Jan 15, 2025 10:52 am
That’s what happened to me too. The radiation “melted” the intestines so that lots of spots closed up causing obstructions. Unfortunately 1.5 years later, I am still having it happen and get to be scoped every 3 months to deal with these areas by dilating them open & draining the blood.
But, I’m still here so I guess that’s still a good trade.
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IGGIE
Jan 20, 2025 11:54 am
G-Day Pamela,
I had ulcerated colitis for many years, so in 2004, I got my colon removed and got a J-pouch. Then in 2021, I went back to an ileostomy, and I have gotten so used to it I often forget it's there. I have even made a label that says CHANGE and I put it where I can't miss it because I do forget to change it sometimes. So yes, you will get used to it.
Regards, IGGIE