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Barbie Butt not healing! Getting worried

Sat Jun 11, 2022 10:39 am
"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

Hi there, has anyone had long term issues with their surgery not healing?? I had mine 14 months ago! It was healed up to one very tiny spot. Dr. applying that silver sulfadiazine in the office once a month. It almost healed. Then that spot opens. Then two. He prescribed a compounded antibiotic ointment about a month ago that apparently has helped many of his patients heal fast. 

Been on that a month. Now all the sudden it's really draining worse. I will call Mon am (it's Sat now.) Btw I have a lot of confidence in my surgeon. He's awesome. I absolutely do not believe this is on him. Likely more about how my body heals. (Breast cancer survivor, autoimmune, etc. etc.) 

I was just wondering--has anyone here had it just completely keep reopening? I wonder if there's a chance I'd have to go in for another surgery. 🤦‍♀️ Oh man I'm the surgery queen in the past 4 years. Of all the surgeries I don't want again it's THAT one! 

Thanks y'all in advance.      --K

Sat Jun 11, 2022 11:09 am

Did you do radiation? I just got thru everything you described.

MeetAnOstoMate - 26,891 members
Sat Jun 11, 2022 11:52 am

Sorry, going to grandkids games today so my first response was kinda short. Anyway, what got mine to heal was Hyperbaric Oxygen Treatments and then a thing called GraphX( I think is how it’s spelled. My wound was about the size of a quarter and about 2 inches deep. The Hyperbaric treatments got it almost completely healed. I had 1 tiny spot left and they applied the GraphX 3 times and I’ve been leak free for about 3 months now. The GraphX is a tiny piece of placenta that they place on your wound and it acts like scaffolding that your skin cells grab onto and build on. It was very simple, they put a piece on and taped over it to hold in place for as long as possible, mine would last about 4 days before the tape would come off. They did that 3 times and no more leaks. If you have any more questions, just ask. Good luck. 

Sat Jun 11, 2022 4:12 pm


AlexT wrote:

Sorry, going to grandkids games today so my first response was kinda short. Anyway, what got mine to heal was Hyperbaric Oxygen Treatments and then a thing called GraphX( I think is how it’s spel...

Hi Alex , never heard of the Placents use before , makes perfect sense !!!  Happy to hear it worked for you Alex . 

Magoo ☘👍

Sat Jun 11, 2022 4:56 pm

Hi,  I have a friend, a former member of this site, who had what sounds like the same situation as you.  It took her something like two years to heal, and finally, she too tried the hyperbaric Oxygen Therapy, which was what worked for her.  Good Luck,

Terry

Sun Jun 12, 2022 7:07 am

I had my emergency colonostomy surgery after a failed laproscopic resection. 

The wound took three months to close but near the end of it, it kept reopening near my belly button then it got infected with impetigo. My primary care doc prescribed topical muricin and I used ( my own idea) kinesiology sports tape to hold my belly together while it closed up for good.

It was not easy to place the tape because of fresh healing but I found a way to make two small bridges pulled tight enough to give it a chance to not allow my wound split apart. 

For it to pull apart previously all I had to do was get up. The tape gave me some stability. 

May we all get well!

Sun Jun 19, 2022 9:53 pm

I have a split open scar now since last August from my years ago ileostomy and complete removal of all structures below it.  Seeing the Wound Clinic since with biweekly treatment.  Various medications including some with silver compounds.  Close to healing closed but very slow.

Sun Jun 19, 2022 10:21 pm


zackpatjunior wrote:

I have a split open scar now since last August from my years ago ileostomy and complete removal of all structures below it.  Seeing the Wound Clinic since with biweekly treatment.  Various medica...

I had the silver compounds too, didn’t do much for me. 

Sun Jun 19, 2022 11:31 pm


AlexT wrote:

I had the silver compounds too, didn’t do much for me. 

My Wound Clinic Doctor quit silver nitrate content dressing.

Will post new dressing soon as I can get its name.  

Sun Jun 19, 2022 11:35 pm


zackpatjunior wrote:

My Wound Clinic Doctor quit silver nitrate content dressing.

Will post new dressing soon as I can get its name.  

Remembered it, Colingen or whatever the name is.  Healing of split in old scar tissue is progressing, if slowly, since last August 2021.

Mon Jun 20, 2022 10:52 am

I have a split open old scar, since last August, from my ileostomy some 40 years ago.

Wound Clinic at local hospital is using Coligen dressing.  Making progress.

Did use silver sulfate but it didnt do much.

Wed Jun 22, 2022 12:49 pm

Yes, I too have problems with the Barbie butt. My surgery was 2008 and I have periodically reopening in areas that never really closed. Hyperbaric oxygen has been suggested but I can’t commit to the time or cost of that. I’ve used silver dressings and various creams and antibiotics 

Wed Jun 22, 2022 2:46 pm

That is really scary that it would reopen after so long.

Sat Jun 25, 2022 3:09 pm

Hi   Ileosto Kate....and " all  osto friends..."    I'm Marsha, and I had my ileostomy done more than 55  years ago....and then a few years later had t he r ectal stump removed....    It was back in the  dark ages,  and it seems that t here are many more options, and procedures a vailablle t o heal  the rectal / wound..    I r emember  mine  taking more t han a year to heal completely,   and the base of t he incision, where a drain had been   took even longer..   After t he first s ugery,    I had a  hernia there,    and then  that didn't heal well after the second....   By t he third  surgery,   the skin had to  be pulled so tight/ and wide.....that my lower ab/ below t he stoma ,  looks like a " smile"...   So much for  wearing a bikini....   But t hen,   I didn't have the shape for  it anyway...  No big loss..   I  will share  with y ou, t hat about 20  years ago,   I  had a " blister" under my stoma, but it didn't bother me, so I thought nothing of it...   An d  then one day, when changing, it " broke" and spread red blood all over the bathroom...    I wa s rushed t o the hospital, and after seeing a surgeon, was told t he " lesion" had been/ was   Pyoderma, gangarosum......actually ulcerative colitis on the skin..   In t he years sinnce.....I've had about 3 more bouts.   one was  an irritation  on the old belly scar...   ( it we nt very deep)   and another was from an irritation on my waiste..   U C     is a auto immune disease,   so   " inflamation" is still in the  body, and  can inhibit healing..   I know t hat radiation can also  inhibit healing.  Stick with the doctor, an d  be  patient...    It will heal eventually.....     Best  of luck,   Marsha.

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