I've been told I am having a feeding tube. Any advice, please? I am very used to having to get used to different things, so I can tolerate quite a bit, and our pain threshold gets stronger the more you have done, I think. So, not a mardy, but I am a bit nervous. Comments, please.
kerrycookie95
Jun 21, 2025 10:02 am
IGGIE
Jun 21, 2025 10:37 am
G-Day kerrycookie95,
Will your J-tube be through your nose or your tummy? You have already said you can handle most things, so let's hope this is not for too long. Have they said how long you will have the J-tube?
Regards, IGGIE
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
warrior
Jun 22, 2025 2:18 am
Mine was called a g-tube. It was put straight into the stomach many years ago.
Make sure the doctors surgically attach it to your skin. "Rope it around and stitch."
Otherwise, it will pop out.
Ask how I know that? 😆..
If you're not faint of heart, you can reinsert it yourself.... (gulp) otherwise, off you go to the nearest E.R. to have it done.
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kerrycookie95
Jun 22, 2025 9:29 am
No, not yet. They haven't said how long it will be for, but I am wasting away. They said it would be like I was before, so I'm going to be a good girl and do what I need to. xxx
IGGIE
Jun 22, 2025 11:53 am
Sending you good vibes your way for it all to work out for you.
Regards, IGGIE
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