Popular Forum Topics

I had a funny thing happen the other day. I was just sitting on the couch and my  stoma let out a fart that would have scared any teenager! My spouse turned around as if in shock.... I thought it was hilarious!  I can't be offended from much anymore, but it is amazing to see others reactions!  

I am integrating myself back into society after a very long pause. I dont want to go back to the bank where I worked in a call center in a high stress dept. I'm curious what everyone does for work? I'm hoping for ideas :) Also any woman my age need a friend to chat with. I could use a chat buddy these days. It would be nice to chat with someone who understands the assignment. 

I was just wondering if anyone has ever had a recto vaginal fistula. I had a EXTREME one back in the summer if 2018 which basically was a driving force on me having my permanent stoma. I had had numerous rectal fistulas and fissures before. Had the Setons put in. My Surgeon said that when he went to put in the Setons..I had so many fistulas he lost count. He said it looked like a watering can w...

Ok..I just remembered what someone told.me two days ago and I just had to ask. Someone told me that there is a fetish for people with stomas. Like a Pornographic sub genre out there.  I told them that while I know that there is some crazy 💩 out there ..that that couldnt possibly be true. There is no way in God's green earth that I am even going to think of looking that up. But has anyone eve...

Hey-I had my Ostomy surgery on 7/28/21. My colostomy is permanent due to cancer. My stoma is an innie and flush to my skin, this has made things difficult for me (leaking, blow outs, consistently stool on skin, burning/painful skin). Has anyone had a Ostomy revision surgery and can share their experience? Time in the hospital? Recovery time? And just generally what to expect. Thank you 

I used to think I was in the minority but...looking online I see I am not. So..has anyone named their stoma? If so..what did you name it and the reason why. Mine is Stella ☺

I know this topic has been posted many times...but does anybody have any terrible dating stories about trying to date with a ostomy? I have read about the ones where people don't mind etc..but I feel like those are few any far between. I just wanna know that I am not alone in feeling like I will never meet anyone.  I had numerous hospitalizations over the years and have not dated due to my illn...

Hi Guys,   Looking to hear from my high output buddies who are using the Colo Sensura Mio Convex Flip 2-piece..........or 1 piece, as the bag is the same size.  I just started using the samples they sent me the other day in a quest to try something other than the Hollister stuff I've been using since getting my front-butt 7 years ago.  As I've posted I've been dealing with skin irritation unde...

Hi there, looking for information about flying with a colostomy bag as I'm worried about it ballooning whilst up in the air, this will be the first time of flying since having the bag on my side. Thanks in advance 

MOST MORNINGS, AFTER MY EARLY WALK AND AFTER BREAKFAST, I walk the neighborhood with my friend Vince, who lives around the corner at the farthest end of our dead end. His house, you might say, is deader than mine. He has an unusual speech mannerism that I am slowly getting used to; in a thirty-minute walk, he will use the term “in any event” at least eight times. I take this to be the outward s...

I have had my colostomy for a little over a month and what foods are safe to eat and what ones can cause problems?

Hi friends, I'm going into Boston tomorrow for a right lower lobectomy on my lung in hopes of removing cancer that has metastasized in hopes of getting off the chemo I have been on for so long. If any of you pray, I will hope you say one for me! Although I am terrified ( as I've been through the trauma of several surgeries), I am positive and hopeful for success and a quick recovery. It is a...

Today my surgeon called and I am on a list to get pre opt but not as soon as I hoped.  Maybe this is a good thing because now I heard what he said freaked me out.  He would reconnect me and give me a temporary illiostomy.  Yikes why?  I blanked at that point so here is the question for you wonderful people.  I am actually getting used to having a colostomy.  If they can fix the shrinking stoma ...

My weekend was incredible. Never felt more "normal!" (Had a seven year hiatus) The Massage: I chose 50 min Aromatherapy. I lay on my stomach and back, did nothing different w/ my bag. For the comfort of the very accepting young masseuse (I offered, she didn't care), I put a small towel under and over my bag, on my stomach, then on my back. I have a bad back, curvy spine, but she was light on i...

4 weeks after surgery and I now seem to be getting nappy rash from the pads, that I'm having to wear nothing seems infected anyone else get nappy rash or any complications after having a barbie bum installed. I feel like all im doing is worrying about it. Also yellow seepage coming from the wound still but been told its normal.  Just can't seem to put my mind at ease, the stoma itself has hit m...

G'morning Ostomates, hoping everyone is safe and well. It's fair to partly cloudy here ! I just wanted to say top of the day to you all.  Take Care,  Angelicamarie

I have looked at a lot of new members profiles. A lot of them have said things about wanting to talk to people who have had problems like theirs. Most of them I have not seen post in notifications. I remember when I first joined they wanted you to do a profile telling a little about  youself. I don't remember if it tells anything about posting in notifications. I just looked at one profile that...

This weekend I will be at spa w/ girlfriend. I have my first massage scheduled in 7 years w/ colostomy. Was too shy before (at ripe old age of 64!) to go. No longer!Also I have access to anything in spa: sauna, steam, etc. (COVID safe).  I am looking for any advice etc. re these things. I seem to recall that sauna (old favorite of mine) isn't good for adherence of barrier. But I never have adh...

Hi ... my mom is having repeated issue with raw bleeding skin around her stoma ... I don't know what to do, any suggestions ? Thank you, Carol 

I am almost out of supplies and my distributor is telling me I get 5 barriers a month.  I told her I have issues with them staying on and I could get by with at least 20 but not 5.  Then my Medicare plan Humana said I will be paying 20% and they pay 80.  Yikes,  Do you have to pay part?  I do have extra care, Medicare so maybe they pick up the 20%.  I don't know, haven't got my entire first ord...

If we vaccinated are all wrong, there will not be enough people left to run all the services we need to live. No power, no water, no hospitals, no police and more. Give your brain a shake. I am here for the the long run not the short run.

Hi all,  Well, I thought I was done reporting about my hospital experiences, but I was wrong!  I had only been out of hospital for one month since getting my old colostomy stoma and large bowel removed and everything with my ileo (which I've had for just over a year) was working just fine, until Sunday night.  I started having severe pain just after going to bed.  I tried all the recommended st...

Several people have asked about my son. He had what they call the long haul covid.He was so very sick and weak for about four or five weeks. He is doing pretty good now just still has a little weakness. He went and got the vaccination on Monday. On tuesday he had to come home from work with a terribe headache and feeling kinda sick. He was fine today. A friend of his has it and had to be put in...

WE ALL HAVE OCCASIONAL CRAVINGS. I had two yesterday, glutton that I am. We headed for a local seafood restaurant, hungry for shrimp. Being Sunday and not long after local churches disgorged their worshippers, the place was packed. Even though we’re both vaccinated, eating in a crowded restaurant with a bunch of unknown, unmasked & jabbering strangers was too much for me, so me ordered take-out...

Hello everyone. Im from sweden, any other from here? I got my ostomy almost exactly a year ago. I havent had any bigger problems physical yet, but mentally was hard this first summer when i went to the beach with my girlfriend and kids. Im not yet comfortable with showing "the bag" in public. How long did it take for you guys to accept it? Sorry of my english isnt top notch 🤓

So Henry had the Diva list for great singers of years gone by. So who would you have for your top five male solo singer's? Mine would go something like this. 1 George Michael, 2 Bob Marley, 3 Elvis,4 Ed Sheeran,5 Tom Jones. XX

Hello All I hope to talk more social later. , I just joined and have a problem just maybe another osoie has too. I am Carol my side kick or tummy kick is A.K.A Stella and at times A.K.A Stella Fire Queen from hell . She has 🔥 me raw . My question and also some venting too...I have a primary care Dr. For past 21/2 years I am now in palliative care they offered it to me explaining it is extra ...

Hi I have had an ilieostomy for almost 50 years. Since the beginning, I have used a pouching system produced by Marlen Products (MDW-10-201) that has worked very well for me. I prefer this pouch because it is made of a vinyl/plastic material and is extremely durable especially showering or swimming. You can't see anything through the pouch at all.  I have tried the newer pouches but the materi...

Hey Friends ...I am still alive after living thru 6 roller coaster rides and 7 haunted houses at Haunt Kings Dominion in Virginia with my family ! No teasing on my frightful photo ... 5 loops and 3 corkscrews at 65 mph and 135 ft within this 2 minute ride picture ! Omg ...11 days left . I've been wizzing around on an electric bike and motorized scooters and hiking looking for bears and deer alo...

I've recently had a successful reversal ....yay me ..... and have an unopened box of Hollister supplies for anyone that can use them. The Ostomy support group in Las Vegas is no longer in operation so thought I'd throw it out here. thank you in advance for any suggestions,  Darla