Ostomy-related Complications

Hi guys,

So bit of a head scratcher but I am on my 3rd stoma and they all have retracted.. anyone else have had this issue? And if so what caused it 

  I think this is the question I have   After changing my pouch and several days later   my skin next to my stoma and around and under  the barrier starts to itch and becomes irritated,  some one mentioned   that they used calamine lotion and then stoma powder  Has anyone else used this and would it cause the pouch to not stick, "

I have been seeing a lot of comments these days about living in the moment and I think that I finally get it!

There have been times when I am in pain. But, OH how great I feel when the pain is gone and I realize that I am not in pain anymore.

It's easy to know when I am in pain or discomfort from my ostomy. But when the pain and discomfort is gone, I don't always notice that. So, I have s...

I am 72 yrs, have my ostomy since aug. 2012, things had been fine uptil now.  I am having issue with some blockage,need some advice or pointers.  thank you joe

I am a neebie and was wondering if anyone has a colostomy due to a rectovaginal fistula. I have had the colostomy since June 2007 and have tried on 4 different attempts to have the fistula corrected. In January I am due to have another repair attempt using the gracilas muscle from my leg, then after recovery and if it holds, have the colostomy reversal along with a hernia repair. I am very appr...

New member/colostomy recipient (5/25/21) here. Hi!
My doc said that my remaining 4" of rectum would collect mucus. Shortly after I got home from the hospital, a blob of mucus landed in the toilet, but only that once.
Frequently, I have a powerful urge to eliminate normally from the rectum, but no means to do so. It feels like I'm going to soil my drawers, but nothing ever happens. Is this normal...

Hi all,  Well, I thought I was done reporting about my hospital experiences, but I was wrong!  I had only been out of hospital for one month since getting my old colostomy stoma and large bowel removed and everything with my ileo (which I've had for just over a year) was working just fine, until Sunday night.  I started having severe pain just after going to bed.  I tried all the recommende...

Hi everyone

I have this weird itching around my stoma on the inside from time to time... has anyone encountered this before? ‍️ It's not on the outside because I have checked by taking my appliance off, skin is great, no itching on outside.

Having lots of rectal mucus  discharge 4 months after ileostomy. Just started! 

I woke up with excruciating gas pains.  I'm assuming a blockage.  Anything I can do to easy the pain and get things moving besides lots of water and gas-x?  Thanks in advance.

The area around my stoma is one huge mess and has been for months. I am now living with pee pads (dog training pads), baby diapers, and paper towels to hold in the poop because my stoma area will not hold a bag for any longer than an hour.

This situation has been going on since late June 2019, and I am at my wit's end.

I had an ileostomy last October 2018 due to rectal cancer (stage 1) surger...

Hi, this is my first time here, thank you all for sharing, this forum has been a partner since i got my surgery. This is my story: 

10 weeks ago I had a hemicolectomy after an intestinal invagination and a tumor removed, in total they removed about 20 cm, the surgery went well but after a few days the suture failed and they had to operate again, putting me an ileostomy to take care of the hea...

I've had my stoma for about 10 months now. Over the months I have had some issues with skin irritation right at the edge of the stoma, but for the last month or so the skin at the bottom of the stoma has been extremely irritated and painful. Every time I change my pouch I put Neosporin on the area. When I empty my bag I clean it with soap and I add foaming Neosporin and rub it around the affect...

Hi everybody, I hope you are keeping warm, safe and well. We have a situation here, and I may need some help in a hurry, please. Let me give you some background.

Last week my brother's partner was taken into hospital for urgent surgery. She was weak already: the operation took six hours and she needed 16 units of blood after a near-fatal hemorrhage. She had a hysterectomy as expected: they fou...

My rectum scar tissue has started to itch and feel strange recently, though there are no outward signs of any infection, it all looks as usual.

It first started about 4 weeks ago, justy before I had a groin hernia op, and I was wearing a support belt. My GP put it down to the belt pushing the hernia back in, and a piece of gut pushing down onto the scar tissue.

So I had thehernia op, all went...

I have had my ileostomy for 4 months. I have always been a big salad lover, but keep being told lettuce,tomatoes& cucumber can cause blockages. Is this true? If not what's the best form of lettuce?

hi guys,
excuse the small letters in this post but i am dealing with a blockage and have my left hand applying even pressure on my wafer so it doesnt pop off.
i cannot for the life of me know what i did wong tonight at dinner to cause this episode?
i had some italian bread, cheese, pasta, and apple juice.
could the apple juice do this? i prbably havent drank apple juice in years.
thoughts?

Has anyone out there who has a permanent ileostomy and you get so much pressure and a pain shooting up your rectum while just standing there where it literally makes you drop and brings tears to your eyes??

I have been getting these shooting pains one once a week  or once every two weeks     It puts me in a sweat and it only lasts from a moment to maybe three, but there is such pressure...

I don't have a clue because I've really had no one tell me how a stoma is supposed to feel. Mine has always been painful. I've told my dr for a year now when I visit. Is it almost always painful with an ileostomy?  I had my husband take a photo today of it clean after bag change. Is mine supposed to look like this? I don't know if I'm supposed to add a photo of it here directly  or not? For s...

Hello everyone...  I'm a newbie ostomate with some awkward questions about food and the aftermath.  I'm a Crohn's patient of 20+ years who finally had my first surgery the end of September leaving me with a "temporary ileostomy."  I've appreciated reading the forums as it let  me know I'm not alone... and you've given me some great lines for when people ask where I've been!

Anyway, th...

Hi everyone!

So I've been going along since my ileo in Dec 09. Not feeling the best (as good as I was hoping for) but doing ok.

I didn't have a Barbie Butt done ... so I have about 6" of rectal stump left. Has been a problem to some degree ever since the op. Still getting minor UC flares there and using Cortifoam and Salofalk enemas.

Usually, pressure, mucus, some blood -- enough discharg...

Hi everyone, not a very pleasant subject I'm afraid, but I have just come back out of hospital with no answers.  I have a colostomy and while I am used to having a small rectal discharge which is just mucus, I suddenly had a very bad one (equivalent to passing a large stool) which was bright green.  I told you it wasn't pleasant !!!  This then coincided with me getting a very bad back ach...

Hi all,

About 8 months ago, I (ilostomy '09, proctectomy '11) started hgaving some intermittent, occasional pain to the right of my ostomy (about 1 to 1.5 inches from the stoma).

Saw GP who seemed to ask the right questions and said it was probably muscle related (ostomy working fine). I had had a particularly active few months ... so with my poor abdominal strength/muscles, his diagnosis s...

Had my fistula surgery today. I didn’t get to talk to my doc, but my mom did. Apparently all went well. My surgeon found a staple from my original ileostomy surgery and suspects it was the cause of my fistula. He also sent off a specimen to pathology. As a stage iv cancer survivor, that makes me nervous. However, I don’t know if that’s SOP. I’m settled in a room now and will only be her...

I received an ileostomy a year ago due to near fatal relapse from ulcerative colitis. I am currently changing hospitals as for a year the surgery team kept dismissing my concerns of bulge under my stoma, continuing nausea, loss of appetite and almost constant infections. After several hospitalizations after the surgery the hospital finally sent me home with antibiotics 8 months after the surger...

I was just wondering if anyone has ever had a recto vaginal fistula. I had a EXTREME one back in the summer if 2018 which basically was a driving force on me having my permanent stoma. I had had numerous rectal fistulas and fissures before. Had the Setons put in. My Surgeon said that when he went to put in the Setons..I had so many fistulas he lost count. He said it looked like a watering can w...

Hey everyone.

I had my ileostomy surgery 3 weeks ago and things have been great so far in comparison to what I was dealing with before the surgery. I seem to be doing alright with food, water absorption, energy levels are good, etc. 

There is one thing though. since the surgery, I've had 3 moments where I suffered from pretty severe pain inside my lower abdomen? It feels like someone is sque...

Hi All
Some of you might be knowing that I am a colorectal cancer survivor and I am almost 7 years past my treatment. For the last 4 weeks, I have been having this pain in my butt. I consulted my doctors and they gave me antibiotics and penicillin shots. However, there is no discharge, swelling or foul smell from the back. The pain is mostly felt when I sit and my job is such that I have to sit ...

  Hi everyone, 

How many of us have or still have pain and or cramps after surgery?

It's been over a year since my colorectal surgery. The lower portion across my lower stomach and on the outer side around my stoma (not next to it) I have intermittent pains or cramps. I was wondering is this normal? Do any of you experience anything like that, and does it go away? Usually it happens when li...

About to get ileostomy due to large polyps blocking colostomy! Rectal cancer history! Reconnection failed 8 years ago! Hope I can last until surgery in 3 weeks! Been off this site for a while! 

Hi Everyone, 

I am having a terrible time with itching under the wafer.  

I wear a convex barrier ring,  and gave been able to go 6-7   days. Now, the same day I change, it starts to itch. I have talked to an ostomy nurse, and she gave me a few options. First one was to try a glat ring snug up to my stoma with the convex on top that.  Today when I  took it off it was worse underneath....

As most know I had my colon and rectm removed and an Ileostomy formed. Well totally seperate from that I had a myocardial profusion scan that showed I had 3 blocked arteries in my heart. Bummer yeh I know. Anyway Yesterday I had pain in my right leg like varicous vein pain,, and my right nut was killin me. Then a huge sinus erupted under my bag on my belly and is still oozing puss and blood. Ri...

I have redness and im sore around my stoma what can i do to heal it or make it feel better. I feel a little pain when the bag rubs against it. Is there some kind of oinment that i can use to make it feel better.

Hey everyone I was just wondering if anyone else out there ended up with fistula's post op. I ended up with one almost right after surgery in hospital... and now I have 3.. it will be 2 years in april since what i call a botched surgery... i have spent weeks and weeks in the hospital I'm in canada and trying to find a second opinion is next to imposible... I do have an apt. on Thurs with the su...

Last weekend I was in bed on the Friday night and started to get the worst abdominal pains I have ever had. Never having a blockage before I wasn't shore what was coursing it but after a few hours I realized it must be a blockage. After some time I raised myself of the bed and felt a pop and my bag filled in 2 seconds flat, i rushed to the toilet and after emptying it it filled again in rapid t...

My skin is raw around stoma due to many breakages. I got new wafers which work great but can't clear up my skin. Any suggestions?

 I woke up this morning with Pain on the right side of my ostomy  ( left sided Ostomy ) with some swelling, low output , very little and in a streem looking stool  could I be constipated or  maybe something else going on  I have never had this problem before.  I did have quit a bit of Pasta salad yesterday  could this cause the problem.  .

 

I want to move to irrigation. My question is what if you have diarrhea? The other day i had 4 outputs into my colostomy bag over 2 hours. I noticed what i ate for dinner was in the last output, well i noticed the fruit. All 4 outputs were runny not like my normal output that is more solid. 

what do you do if this happens and all you have is a stoma cap? 

I suffer from frequent bouts of diarrhoea. Does anyone know of some special diet that can help? Thanks

Ok guys I literally have no idea what is going on and it doesn't make sense.. help.

I have having intestinal pain and have for 2 days now but I drink water all day and have a drip drop. I have having output that is normal .

Any ideas ? 

I have had my ileostomy since the end of last year and started back to work in february on modified duties. My employer is going against what the doctor has recommended and is trying to get me to lift 25kg, I tried some stuff thursday and friday of last week and this whole weekend I have been having pain around the stoma as well as some throbbing pain on the stoma (feels like it anyway). Could ...

Glad to find this sight and share information.  < >  < > I had a loop ileostomy performed 3 yrs ago.  Consequently throughout my illness from a perforated colon, (from being over radiated for prostate cancer) I developed fistulas and had a drain tube for a year or more.  Drs. said they would not keep replacing it, so they decided to not replace it when it came out.  Supposed to develop sepsis...

So I am 2.5 weeks out from my last surgery to fix partial blockage due to adhesions at the resection site. I had major diarrhea for 4 days and am now constipated for 2 days. Doc said I would be all over the place and this is normal. I am still scared, though. I dont want to go back to hospital. I haven't had at fevers or vomiting or nausea.  My pain is minimal and mostly at the incision. I am...

So, my colostomy hasn't had any output since Saturday early AM....48 hours ago... this hasn't happened before. Ate and drank normally the last 2 days and felt ok. Passing gas and no pain. But this morning I feel backed up. No actual pain or nausea,  but I feel constipated. First time ( in 9 months with a stoma) that I've gone more than 8 hours without output,  so I'm worried. The only thing I...

I am still suffering with terrible stoma issues, and the ET nurses kept changing products but that doesn't seem to be the problem  I need something that will heal and protect me.  I use no paste just the stomahesive powder but nothing clears it  My stoma is way to low so as I walk it rubs and none of my doctors want to look at this mess.  I will be seeing a new gastroenterologist week a...

I am 1 year post-op after my ileostomy surgery I had performed at the Mayo Clinic. I still have daily pain from the hernia involved - most days are manageable but some days are very painful. After my surgery, the Mayo Clinic told me I cannot take Vicodin for pain management because it will cause a blockage. I had a particularly painful weekend so I saw my local GP doctor this week and brought u...

Hi All,

i have an ileostomy and for a week now I’ve been having pain in my abdomen mostly on the right side. The pain is now travelling about and the area around and behind my stoma is swollen.  I’m very aware after I’ve eaten of the food moving through my intestines which I’ve never felt before and I’m feeling a lot of pressure as if my insides are about to burst!  I’ve had two ...

Hello everyone,  I know this question has been asked a lot, but I need some help to heal a small open sore under my stoma. I have tried the stoma powder crusting technique for a couple months with no luck. Please let me know what has worked for you?  Thanks for your help.  Penguins7

Help
I eat a good diet well balanced diet fruit and vegetables, chicken ,fish. All foods which are healthy. I also drink lots of water and decaffinated Tea. But still I suffer from constipation. I have been taking 2 MOVICOL a day for about year. It does not work. Can people tell me what works for them ?? Preferably a food suppliment or herbal. Someone mentioned unprocessed wheat bran but I cann...

Hi, I don't think I have been so active on the Forum scene, but do read a lot of your posts, many of which by the way have me in stitches!

I have had an ileostomy since 2004, and only have one in order in theory to enable the repair of a recto-vaginal fistula.

Does anyone else out there have the same condition - would love to know, as I am feeling a bit of a rarity!

Had my colostomy done 3 weeks ago and still recovering.  Been having very bad, acute pain episodes, generally after eating something but not always.  Pain can go on for 4 to 8 hours and sleep, if I can manage it, is the best cure.  I've been attributing these to gas which gets trapped.  Is this what you call blockage?  I've tried all sorts of precautions and remedies. Tried Gas-Ex, he...

So, I posted once before about the constant back pain I now have since surgery. Well, at my second follow-up I brought it up to my doctor who "assured" me that he's never heard of such a thing.  Am I just crazy or aren't there plenty of you out there who now suffer with back pain.  I should mention I have an ileostomy.  Needless to say, Christmas shopping has been just about impossible be...

I would like to hear from anyone that has a retracted stoma (an innie). Actually mine is below the skin level, my surgery was 4 weeks ago, & I have leaked everyday. I Need advice, anyone have or had this issue?

hi ya all well ive had my (eric) stoma had a full one with a stump left if you get what i mean since feb last year its been a real tough year and this year ive had 2 blockages in less then 2 months
i mean i eat all the right stuff and drink plenty i had real bad pain the othe day for 24 hours i was sick and the pain got real great i went to the hospital to be told by the xray dept dcs that no ...

HI ThERE I JUST HAD AN END ILEOSTOMY DONE ON 7TH SEPT 2010 HAD EVERYTHING TAKEN AWAY PLEASE CAN SOMEONE HELP ME MY BAG KEEPS LEAKING AND WHEN STOMA MOVES I GET PAIN BEHIND IT THAMKS ANY HELP WOULD BE APPRECIATED

I find that when I have a glass of wine, or too much vinegar (e.g. in salad dressing) or sauerkraut - anything acidic, really, that the skin around my stoma gets really, really itchy!
So, I scratch and rub, but of course, can't get at the itchy bit because it's under the face plate, but often scratch & rub enough to tear the paper of the face plate, and have marks on my left front pocket area f...

I had my operation just before Xmas 2011, and I will be talking to my surgeon in a few days about the possibility of a reversal. Are there any complications getting things to work again. What about leaks?
I have heard that reversal surgery is quite common.....That makes me wonder why they don't do it that way to start with?

It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS  (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency and urgency issues - all of which go away. I've learned differently. E...

Hey gang,

  Maybe it's me, but I notice an uptick in the number of blockage related posts............which got me thinking.  Why would an ostomate be MORE subject to a blockage, rather than less?  I mean, they basically cut our intestines and stick the open end out our belly.  I would think that would make it EASIER for something not fully digested to exit.............way before it would i...

I have had mine for 7 years now & have been told that maybe it can be by past & close the fistula on the vaginal side. They would cut the fistula section out in front & in back of the fistula on my colon then reconnect the healthy parts if the fistula isn't too low in the rectum. If it is then they will remove the colon from my colostomy to right above my rectum & make my loop colostomy an end ...

Hello,

 

im very new on here.  I am hoping someone can help me.  I'm feeling rather desperate.

 

I have a permanent ileostomy.  I had the surgery in 2018.  This was due to a 7 year battle with ulcerative colitis.

 

Anyway, I started working out (aerobic exercise) twice a day for 45 min.  This has started me getting diarrhea which leads me to dehydration.  It also leads to leaking...

Hi does anyone of you guys get cramps in the back of legs any suggestion greatly helped as keeping me up at night

Hello all. I am just under three years past surgery where I went from a j-pouch to ileostomy and Barbie butt. Just two days ago woke up having major pain. Probably could be phantom rectum but also get pain in the lower back and some lower abdomen burning. I have had no issues here since 3 months after surgery where I became septic due to a hair in the closure causing a tiny hole.  It hurts to ...

I posted before about an ulcer on the skin/stoma scar but that ulcer is now a fistula.  I saw my surgeon today about it and he was focused on a small red dot about 1 1/2 inches from the fistula toward my belly button.  He used a very thin instrument with rounded ends to poke at it and popped it open and found it tracked back to the first fistula.  I now have 2 fistulas.  And the 2nd one...

It has been 2 1/2 years since my first surgery and 1 1/2 years since my permanent ileoscomy. The problem I'm having is the constant feeling that I have to crap.. I had this feeling initially but it passed in about 6 months. Now it's back and I get no relief no matter what I do. I've tried ice, heat, and (a little kinky) used a massager.
  Don't get me wrong the massager has four little feet ...

I have never suffered from back pain until now.  I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the pain and discomfort. I'm wondering if anyone else had this problem post-op.  I'm hoping this is maybe because I had a large incision cut down my belly.  Any...

Hi there, 

the last few days I have had this horrible feeling the way that I felt pre surgery when I had constipation. I have been taking tramadol due to abdominal pain and Im wondering if this could have caused constipation. Is it possible to have constipation with an ileostomy?

 

Thanks, Hannah

 Hi there ....I haven't been in touch for quite a while but unfortunately I have an issue .I'm going to have surgery next week February 11 Complication due to radiation. My vaginal wall has closed together from scar tissue growing together, and all but one tiny hole where urine can still flow through . I have not been able to have intercourse obviously..... But I also continuously get UTI infe...

I have had  a ostomy for 25 years and I know the stoma can bleed when wiping or cleaning.  I noticed in the past month that I have a small spot on my stoma that bleeds a little more when changing the appliance and sometimes when I rub the area over my stoma to move contents down away from top of bag beofre I remove the appicance there is blood on edge of wafer from doing this.  It does stop ...

Hello,

I'm new to this site and I'm a new ostomate. I have a loop ileostomy and I'm one day away from being nine weeks post surgery. I had to have this surgery because I have a neuromuscular autoimmune disorder. I was no longer able to have a bowel movement naturally even with the use of daily laxatives and enemas. After four years of going through that daily regimen I my neurologist told me t...

Hi, just a quickie, I have a small prolapse caused by a coughing fit.. I heard that putting sugar, caster sugar on ostomy whilst lying down shrinks it enough to gently push it back ?

Has anyone heard of this or tried it ?

Thanks

Hi Osto-friends..I have had permanent Ileostomy for 20 years with a couple of trips to the hospital since then....this past mid December I had a partial blockage which sent me to hospital by ambulance ...they were able to get things moving after about 6 hours on IV drip plus meds..I was able to go home and of course told to drink lots of fluid.. it was a horrible week after with emptying bag af...

I had my Colostomy in 2007 and it herniated so I had to have a repair done for a Paristoma Hernia along with a Ventral Hernia, Is it normal for my stoma to still hurt? and have a rash around it all the time?

last few days ive had to change the dressing on fistula, driving me nutS!  have ileostomy on right side this on left...   usually have no problems w fistula..the odd shower/changing and little to worry about, but came across daily oozing..didnt change diet!  it just stinks!  thank god no one is around and not able to work...home fr hosp last aug. no real problems eat as usual chew thoro...

Has anyone developed pain in their joints since having their ostomy,s.I have very bad shoulder pain,as has a friend of mine.But only since our sergery.

just back out from hospital I was rushed in after the swelling i had noticed in my tummy burst and 2 pints of infected fluid poured out. the doctor had said he was not keen on using the mesh for the hernia repair and said it would be a high possibility of infection, well he was right.
I was 2 days on the ward having IV antibiotics and having it drained. i now need to wait to see if the antibio...

Here's my question does any one have the first two condition's and do they use Metamucil?  I was just wondering if I should start using the Metamucil again, would it help with the diarrhea and or what other benefits that I might get from using it.


Thanks a bunch
Terr

I don't exactly know how to approach this problem so I'm asking for advice. Just had a rectal removal and suffering pain whether I sit or lay down. My surgeon gave me vicodin which really doesn't help that much. This is a weird drug cause if I take it I cant sleep and to be honest just doesn't help at all. Is there anything I can do to get a different type of med and what did you do to control ...

I'm a new ostomate and have been struggling in keeping my skin irritation and blisters at bay. I've had some luck streaks before where skin irritation was controlled but as my stoma grows smaller (doc says it's normal as inflammation goes away), I had to make the hole in the flange smaller too (used to be 40mm now it's 35mm). But my problem now is that the skin around the stoma is irritated and...

Me again!

 

i was just wondering what kind of pain is normal after 7 weeks from surgery?

 

My scar is still very itchy to start with. I get sharp pains at times in my sides, abdomen and chest, especially when I am trying to get to sleep. I get pain in my back too. Nothing unbearable, just uncomfortable most of the time. I also get burning pains in my abdomen too. I only take paracetamol, ...

Hello 

I have incredible pain around stomacon skin. They determined it’s nerve pain. The skin is hard and raised and inflamed. Nothing works for any relief. I’ve tried every bag, cream etc even had two nerve blocks. I’m doing scar massage as they did say it’s dermal scaring . Last resort is a steroid shot next week. Has anyone had anything like this?

I have a question concerning phantom pains/sensations. I am about to undergo the 2nd part of my surgery where they'll be removing my rectum, anal canal & basically sowing my butthole anyway, has anyone on here experienced this kind of surgery? Any phantom pains/sensation? If so how is it? Is it enough to mess with you psychologically? I'm the kind of person that has a hard time dealing with th...

have any of you had bleeding from the stoma?  

 

Been lurking for a month and want to give Kudos to all for sharing their knowledge and experience.

Back in the first week of May I had bleeding diverticulosis and after the first surgery there was a leak that caused (for the life of me I can't think of the word) an infection which required a second operation to drain the area that resulted in the Ileostomy.

So last week I met with the surgeon...

I was wondering if anyone has a lot of mucus discharged by their rectal stump that causes a lot of pain and tenesmus. How do you deal with it?  I cannot expel the mucus by sitting on the toilet and bearing down which apparently works for many. I use small tap water enemas which gets the mucus out, but, then I have severe rectal pain because my rectum and anus gets irritated and starts to spasm...

For the last couple of days I have had a brown discharge from my rectum. It feels like I need to have a normal bowel movement and it hurts a little. Is this normal has anyone else had this problem?

When they removed my colon and created the ileostomy, they also created a small hole on the opposite side of my abdomen. This hole has some discharge each day and one physician told me it was a mucus fistula made to release gas buildup in the tiny portion of colon left behind. Another one told me she had no clue what it was, the next one said mucus fistula also but it would eventually heal clos...

Greetings,

I'm a bit over 8 weeks post-op. All has been OK, just learning about different appliances, etc. However, last week I had spent 4 days in the hospital for a UTI. They say my ureters were inflammed and my WBC was 25 (should be less than 10). So I am wondering how I got this infection. Seems long enough post-op that it was not due to the surgery.

On a pain scale of 1-10, it was a 12. ...

hi everone can anyone give some real advise about scar tissue pain??? I have had 8 abdominal surgery's the last being 2008 i have got unbearable abdominal pain i have been on high pain reief but have had enough i am going to pain management they are going to try muscle stimulation with electrodes i have no feeling on my scars the first few layers skin .I have been told i have refered pain as i...

Hello everyone!!

Even though my pain I am about to speak of doesn't stem from my ostomy or Crohn's I feel I must share with you how I have finally found relief.

I have suffered from lower back and neck pain from a car accident in 2003  since it happened. Living with the pain from Crohn's and this pain has not been fun at all. There are days I really wish someone would just kill me. I have ...

ive had an ileostomy for 18 years. ive had some discharge from the rectal stump but now its red blood.     i have crohns. does anyone have experience with this? i hate going to the dr.  ugh.

can anyone tell me the symptoms of a blockage i have been taking imodium 2 a day and was up all nite high temperature my body jerking teeth chattering and vomiting and still nausius thank you

So for the past 5 days now I've had really really watery output and seem to be emptying a lot.
Everything I eat just runs straight out the other end, can't seen to get anything to stay for longer than a few hours.

As you can imagine I'm now getting really tired and a bit dehydrated despite keeping up fluids.
I've tried all the tricks in the food book to get things slowed down, from applesau...

Hi! 
I made my first post a few days ago with my story and some questions but it was very long but I have one question I wondered if anyone knew what this pain could be. 



I’ve had my ileostomy since December 6th 2021. I had 11 surgeries in 11 weeks. 
A few months ago I started getting this stabbing pain to the right of my stoma about an inch away. 
It was a very minor pain before so I didn�...

I noticed today that the stoma surface was weeping blood. Not on the peristomal skin but the stoma itself, quite bloody really. I did not think that I touched it or anything. I have read that bleeding is normal but I figured that was regarding the skin around the stoma and not the stoma itself... any thoughts?

Hi, 

I've had a colostomy since three weeks, and yesterday passed rectal discharge for the first time. 

I had been reading up on it and so was expecting the discharge to be clear or white, and was surprised when it looked just like poop. 

Is this normal? 

 

Clair

I just swallowed a while small olive and I'm afraid that I'm going to get a blockage. I'm looking for any advice. 

I have had my colostomy for about 3 months now.  I have reoccurring pain and pressure behind and around my stoma.  My stomach under and around my stoma seems to protrude more than the other side of my abdomen since surgery.  Is this normal and will my stomach become flatter like the other side of my abdomen.  Is this pain common?  I don't have a hernia, at least not diagnosed with one.  

i am waiting for a date to have my rectum removed after lots of surgery that started with the old piles that didnt go to plan.had to have a colostomy now having chronic peri-rectal pain so no other answer for it.not looking forward to it as this will be my ninth visit to theater in 18months.any one else had this problem

Hi everyone. I am having temporary ostomy surgery on 6/6 and am very nervous about a lot of things. The two things I worry about the most are what will the pain level be when I wake up from surgery and for the first couple weeks. Also I am very nervous about just getting used to the visuals of the stoma. I have a very weak stomach and usually get very nauseous and have passed out many times in ...

Does anyone have suggestions I could request from my doctor to control intestinal pain? seems everything that passes my lips causes pain, even water. I have taken my percocets but even they are not working, they seem to be more of a muscle, joint pain reliever.

hey you guys i have hd the right hand side of ileostomy 8 weeks things seem to be going alright but i am waking 4 times a night to empty bag anyone have this trouble

Hi all, as you can see from my profile im new to all of this, since my surgery 8 weeks ago everything has just got better ever day up until two days ago, ive started to get a pain around my stoma, it feels like its coming from inside it,maybe a patch of around 2 inchs, (like something is twisted) . Its not blocked and the stoma itself seems fine, really hurts when i stand up

Anybody have any ...

I'm scared to really ask this question, but do most of you ileostomies get blockage on a regular basis.  After I had my colon, rectum and anus removed I thought i would not have these severe blockages.  My diet is very strict and can't any fruit, vegetables, or any high fiber.  When I do have blockage, I'm in bed for days and use all the usual tips, bath, heating pad, hot tea and still su...

I’m going on day 4 of mostly NPO besides liquids to stay hydrated. Finally sent my GI DR a message. I don’t know why it’s their go to but they always assume virus still, until another symptom pops up to warrant more testing or the ER. He also said more testing right now likely wouldn’t render anything helpful. If it is a virus is there anything I can do to get it out of my system faster...

Has anyone suffered with this.I have been working on the garden for the last few day,s.I have been doing a bit of heavy lifting.For the last three evening,s,i have had quite a bit of blood in my pouch.Three evening,s ago there was quite a lot of blood.It seems to be coming not from the bowel,but from the area around the Stoma.

Hey Ostomates,

How do I stop bleeding from the sides of my stoma? My stoma has been getting bloody a few times. I cut-to-fit my appliance if I gain weight or if it gets swollen. I know it bleeds sometimes when cleaning, but recently, it has been doing it a lot. It bleeds like a cut hand, but does stop. I took a CT scan and the Drs say everything is fine on the inside, except for the cancer. I ...

Hi, posting again. 
Having a few issues with Stanley the stoma tonight. 
Changed my bag this evening and had runny dark brown shiny output literally pour out for about 10 minutes before I managed to get a bag on. 
Got a bag on 4 hours ago and since then I’ve had a very small amount of runny dark brown output which came out straight away and nothing since. 
Had a wave of nausea and thought I w...

Ahoy Ostomates! I really need your help! My 35 year old, non-verbal, autistic son has had his ielostomy for 8 months ago.  For the past several weeks he has experienced low to no output, intermittent abdominal pain, followed by gushing of watery output sometimes 400 - 800 ml. We are currently in the hospital and CT scans and an ileoscopy shows he does not have a blockage. His doctors seems baf...

My colostomy is 8days old! 
i Keep getting a lot of pressure in my stomach & Mona (stoma name) is very very windy! I am taking 3 laxido drinks a day as I suffer from slow transit?? Just wondering if anyone else has had this?

The only thing mona has produced is yellow liquid even though I have started adding some carbs back into my diet!

after having my iliostomy since 2006 I am experiencing my first blockage.   Any suggestions on how to stop hurting and help it pass? 

Joanna

It's been five weeks since my UC got the better of me and I had to have a permanent ileostomy. Really been doing well but three days ago I started having stabbing, burning pain at the stoma site. Doctor today tells me it could (probably is) nerve related. Means it too is likely PERMANENT? OMG. What now? This pain is significant and comes with no warning. I'm not sure I can handle it. Does...

So as most of you have sensitive stomachs too, I do like to travel and travel a lot but always end up having a day into my vacation where I get travellers diarrhea -want to know what you guys pack in this instance? Do you take anything prior to trip during etc ?

 

Thanks 

Looking to find a  great surgeon to fix a prolapse. Very, very uncomfortable. Had surgery in August and already re-prolapsed. Ostomy site is weak- large opening, herniated. Reversal is not an otion. Hoping to get a new site. suggestions appreciated. 

I've had my ileostomy since late October and have done well with it until a few days ago. I am noticing pressure, bloating and mild pain off and on to the left of my belly button. When I feel around, I can detect a lump of what feels like solid stool. My first output this morning was odd, lots of foam. The next time it was the thickest I've ever had. I'm just drinking lots of liquids, massaging...

I recently began having severe itching and rash underneath my Ostomy bag. It occurs only at the outer edges where the bag adheres to the skin - not the center portion where I use the paste. I thought I had developed an allergy to the glue used in the adhesive. When I would remove the bag it would have a very red circular rash at the border of the bag.

I showed my doctor a photo and he immediat...

It has been almost a year after my second surgery and I have started to pass odd mucas material through my anus.  This is like thick putty, slightly pinkish.  It makes me feel like I need to move my bowels but my large intestine was removed because it died in less than 24 hours.  I have never had this before.  It has a very bad odor but it is not hard material, rather more soft. Since this ...

My work week started out with a random stomach area discomfort that started like a hunger pain x10 and moved to inflamming my sore back and gave me sore joints and my water  intake went from 1-2 water bottles  a night to 5 a  night. It took 3 days because I got use to working with pain as a normal part of my job but on the 3rd day I know something was wrong, went to the hospital and after a ...

I am just wondering what people do now a days for pain management??? I was on pain management for many years.....weaned myself off because felt I didn't need it every day. Now I have a partial bowel obstruction and am told to go home and take Tylenol????? Really??? If Tylenol was working for me I wouldn't come to the ER!!!!!! I am a 16 year survivor of stage 3 colon cancer and have been on and ...

 

As you can see i was very sore there but i dont get that anymore.  Now its just around my stoma cause one side is retracted right back level to the stomach.  Wafers dont seem to help anymore.  Anyideas

TIA

Hello All,  Up until now I have been an observer on this site, not feeling quite ready to contribute, but grateful for the enlightenment, education and entertainment it has provided me.  I had a colostomy about eight months ago due to a ruptured bowel.  Things have not gone well and I have been hospitalized twice for large bowel obstructions and once for further surgery to remove more of my ...

Hi Everyone/Anyone,

I had my End Ileostomy Surgery 6/16/20 and I had the scare of my life about 2 weeks ago. My stoma prolapsed (at the time I had no idea what the correct name of this was) and it was very frightening because I truly thought a snake had crawled up in my pouch and was moving around

my husband rushed me to the ER because we had no idea what was going on and believe it or not t...

Hello I'm a new member and hope to get some help. In my 5th year after bowel cancer and all my mri and ct Scans and blood test are good. 
Since 3 years a have sometimes from my rectum bleeding and my doctor advised to irrigate water (special) daily with a plastic injection. Sometimes it's ok after one day sometimes after 2 days. But it was never a lot. Since 4 days I a have daily blood coming o...

I have Crohn's for 43 years (Oh boy I am getting old!!) Bowel resection in my late teens, illeostomy for last 23 years. About 2 years ago I blew a pupil and had left sided weakness. At the time was diagnosed with myasthenia. Since this fall (maybe even earlier) I have been experiencing extreme fatigue and increasing left sided weakness, double vision, difficulty swallowing , choking on fluids w...

Help! I've had an loop ileostomy for 4 months (colostomy for 10 months prior to this).
I still have a small amount of faecal matter passing through my large bowel and due to the Imodium to slow my bowels done, I am now really constipated.
I've tried Fleet Enemas, Microlax, Fleet Mineral Oil, Cooking Oil and water but nothing is shifting it and I'm in a lot of pain.
Does anyone have any suggesti...

(Ileo Dec 09 with no hernia to this point)

Was out in the garden today doing some stuff ... this evening I have a pain very close to my stoma. It's not constant, but when it comes it's a fairly sharp pain -- is this a hernia pain

Sigh - You want to the know what makes me want to put my head through a wall ... I just got a hernia support belt. While I was in the yard, it was in it's box on t...

can anyone help with clearing blockages i have been awake most of the night trying to clear mine with so much pain  

I had posted earlier about muscus coming from the rectum. I was reading some older post about it and saw some people use Suppositories and Enemas. If you do that and and you insert the suppositories to far in and use to much of the enemas wouldn't that cause problems? Since the end of the stump is open wouldn't that push stuff further in instead of out?

I woke this morning to find my bag had burst and quite a bit of blood was on me and the bed.All blood,nothing else.I have had my bag for two years and this is the second time its happened.The last time.the doctor said it was like a nose bleed,and would happen now and then.I had the camera in there  at Christmas and all was clear.Anyone else had this problem.

I believe I had a blockage in my intestines; every bone/muscles in my stomach and back hurt!   I threw up. Thinking maybe it was a flu.  This has been two days ago, but my stomach still aches.   What do you think?  Thanks

Just wondering if anyone has problems with itching?  I use the coloplast two piece system, It seems to itch mostly under the mesh adhesive part.

I've presented this subject before and I'm currently doing a bit better with blockage, but I still find myself in bed for days with blockage; at least 2x a month.  I have a permanent ileostomy and had complete removal of large intestine, rectum and anus.  My low residue diet is limited because I can't have any fruit, veggies, or anything with skin because of the constant blockage issue.  P...

I had a temp ileo in 2011 for 11mons due to a Carcinoid tumor in my rectum. I had a Lower Anterior Resection with Meso Excision (lymph nodes removed). I have been reconnected for 5 mons and overall things are doing well.
I would like to hear from others who have had this type of surgery and still have your rectum and colon. I have pain sometimes and pressure like the feeling of something down ...

Hi Folks

I have had an ilieostomy for almost 50 years as a result of Chrohns. My large intestine and rectum were removed. Everything has been going pretty well but... I have been having lower pelvic pain on the side of my stoma that also transfers into my lower back. I have had the pain for almost 3 years. It is not constant. Several days ago, the pain was more concentrated closer around the s...

Hiya I had a emergancy colectomy last year due to UC, I decided to go for a jpouch and had my rectum removed & jpouch formed 3 weeks ago (ill have take down surgery in afew months) I'm recovering very well no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on anti biotics incase I had a water infection from the catheter but still no better! Did anyo...

So, I foolishly wrote that once I started taking stool softeners the rectal pain and pressure had subsided.  Well the honeymoon is over.  I had relief for a total of 2 days and WHAM it has hit me again with a vengeance.  I'm miserable.  I literally had to spend the entire afternoon in bed the other day so I could lie on the heating pad against my rear.  Does anyone have a recommendati...

I am trying to gather as much information as possible in regard to my pain in my Anus. Its very specific and on the right side. My surgeon felt it was nerve damage. I begin to read about the pneudual (sp?) nerve that goes to the rectum and during pelvic surgery it can be damaged. After 8 months of excruciating pain, not wanting to take pain medications, he sent me to a anestisiologist (sp?) to ...

I received such great responses to my pancaking problem I thought I'd delve alittle deeper. Does anyone besides me have a stoma that bleeds? I have a 2 piece system and occasionally if I just nick the stoma in taking off my bag it will bleed. However, I have recently had a stoma that has little dots of areas that bleed when I'm just sitting back with everything off while changing my system. Som...

So here's what happened...

 

I had my rectum removed two weeks ago (my fourth surgery). They warned me about complications and sexual dysfunction just like all the other surgeries, but I think this time something actually happened.

 

I masturbated today for the first time since surgery. I did not get a full (or even partial) erection, but I was using a special lubricant which helped me ev...

When did you start to feel better? I’m almost 3 weeks out of surgery and they placed an ileostomy. Diverticulitis with major complications. Ended up being 8 hour surgery to remove all infection and abscesses. And had to take ovary and Fallopian tube. I also 4 months ago had double knee replacements not knowing I’d be dealing with recent surgery. I’m struggling with mild abdominal pain and...

Hi There! First of all, thank you for taking your time out and reading my post. I had an emergency operation of tuberculer intestinal obstruction and 3 feet of my small intestine was resected and ileostomy was created. One night I felt something weird (like a shock) near my stoma something like my intestine is pulling inside and whenever this happens gas came out, discussed with many doctors al...

I have a serious pressure sore right next to my stoma. I have been trying for the past few weeks to get it to clear up, but it has gotten worse. Usually I put stoma powder and cake it over the wound area, and if it is bad like this one I also put a bandage on top of that and put my wafer over it. This one has gone beyond that and I have had to cut the wafer away from the area and leave it open ...

Hello everyone past couple of days 3-4 days to be exact started having bad itching and soreness around my stomach. Found out I have a fungal infection . They said by me being so anemic this can happen . They have me doing a crusted technique. But the itching omg is horrible . Any added suggestions would be GREATLY APPRECIATED . 

 

Denise

Hello all,

I am happy to say I am one week post-op from a successful colostomy reversal. I spent five nights in the hospital. My surgeon uses an epidural for pain control. 



Surgery was a Friday afternoon. I was on ice chips only until Sunday morning when I was put on clear liquids. My gut constantly felt like there was a party going on in there! Painful, but I was also glad it woke up so qui...

I have a loop ileostomy and had the surgery due to dymotility of the gut and pseudo obstruction( no longer had any peristaltic wave to move things along ) this happened after two lots of major surgery on my spine done through my abdomen. I had the surgery done one year ago this month. The problem I now have is that I have a buildup of mucus in my back passage fairly high up and can't get it out...

Hi,  I wondered if anyone has experienced mucus from the back passage after a colostomy?  This is happening every two weeks and as I have no control over my bowel muscles I am not able to hold it in till I get to the loo.  It is making me miserable and not wanting to go out unless I can be sure to be near a loo.  I have to carry a change of clothing as well as my stoma bags.  I have been a...

I had a total proctolectomy less than a month ago so my body is indeed still healing.

 

However, every night when I lay down, I get stabbing pains in my gut. The pains move and hours later I wake with either a bag full of gas or liquid output. The pains are no fun. If I massage my belly, gas is let out into my bag. Therefore I am quite sure they're gas pains...But why? And why did I never ha...

Photo attached. Since last night I've had liquid output. I can hear gurgling. No pain, no fever. I changed my bag because it leaked from the diarrhea and my stoma has a little purple around the middle of the column part. Is that normal? It also seems that the skin on my belly around it is a little raised, but in not sure if it has always been slightly raised and I never noticed. As my stoma is ...

Hi you all,  I 'am having a problem with itching under my pouch.  I use a one piece Hollister,  I like the way it fits, and haven't had any leaks for over 2 months,  But sometimes after I change  it   within a day or  two  I am itching.  I tried using a smaller  pouch  and I itch  around the barrier. I have also some little  blister like irritations  I have used  several things ...

Hello everyone, first post here...I've had a permanent ileostomy for 6 years as a result of beating colon cancer..Now I know that mucous and discharge are common from my rectum but the the last few weeks I've been noticing a significant amount of blood, I am extremely active and feel good but this blood issue has me worried, any thoughts on this?

 

Thank you everyone for being here and as so...

Hey all, I had my Barbie butt months ago but I still notice that I have bladder pain/discomfort. Has anyone else experienced this, especially other men? What should I do?

hi has anyone got crohns disease i suffer painful joints in my feet and lower back 18 years living with crohn's but i have had different x-rays and nothing shows up    can whoa give me any clues or is it i'm getting older 41years old anyone info would be appreciative thanx mooza         

Hi there,

I have had an ileostomy for almost a year now and this website is soo helpful!!
I always had discharge from my rectum, at least once a day, but lately its been very painful and bloody. I have tried using some supositories from the past but I haven't seen much of a result. Any suggestions??

Thanks!

Crohn's Disease w/ ileostomy, 48 yo woman. Having constant upper back/abdominal pain, which used to happen only with a blockage, but now occurs every time I eat. Have had small gut dilated twice in last three months, but no relief. Doctors want to do surgery and cut out 10 cm below my 'willy' (stoma), then start remicade or humira. Don't want to do either. Anybody out there with similar experie...

Question

Okay, so I am a newbie who is still trying to figure out what is normal.  I figure my stoma is on the larger end of things anyway as it loks longer than any pictures I have seen anywhere... after surgery it was 1-1.5 inches long at rest, and when it decided to work, would stretch to nearly 3 inches in length.  Kinda cute since it has a nice hook to it... like I'm trying to poop around corne...

has anyone had an blockage which cripples them i have and wander what there remedies are

Hi everyone, I am looking to see if anyone out there has had numerous surgeries due to continuous infections. I have been off work now for 3 years battling this issue. I have had surgeries after surgery and always  told this will be the last. I now have 2 pockets of infection; 1 in my rectum and 1 tucked up behind my uterus that is the size of a soft ball.

Does anyone else get these issues ...

Just wondering if anyone suffers with excessive mucus from rectum, I've had my colostomy for 3 years and just yesterday I had really bad pain in rectum, I passed loads of mucus but still had pain like a hot poker up my bottom, I then passed a really hard solid lump of grey mucus, is this normal , what do I do , uncomforatable when standing, can't see stoma nurse til Monday, any tips?

At age 37, Linda Brashier battled Stage 4 cervical cancer, undergoing grueling rounds of chemo and radiation. Slowly, she beat back the cancer and recovered, but realized she would probably never have sexual intercourse again. The scar tissue inside her vagina (caused by radiation), made intercourse too painful and made it impossible for her to have intercourse without pain. Doctors prescribed ...

Hi,

It's been a long while since I have posted. I have an ileostomy and may possibly have a blockage going on. Please remind me of what to do at home to try get beyond it. Thanks

Hi
I have two post illeostomy op fistula
I am very interested in contacting anyone else with the same problem
I am struggling to cope with and would love some advice and perhaps to swap some tips in how to manage them
Thanks

I had my second ileostomy put in July 1, 2013. I no have my large intestines but still have my rectum. Four months after my surgery I am having discharges from rectum. Some of the discharges are clear while others are
own or red. Also, the skin around my rectum starts bleeding . I am putting Critic Aid Barrier paste on the skin. I was wondering if anyone has dealt with this problem.

I saw my surgeon on Tuesday of this week.  He stated that my CAT scan showed some inflammation around the stoma area and there is no stones in my Gaul bladder.  He stated that what I may be feeling is the inflammation or trapped gas.  He said there is not much he can do for the pain.  He doesn't want to go back in as it is too soon. He said that there is a possibility that later on I can be...

I have been an ostomate since 1971-age 21 with Crohns being the cause. As with many ostomate said, I have had several resections, 2 hernia repairs, revisions...you name it, I've been thru a lot! I am presently experiencing sharp pains right above my ileostomy stoma...in the area that would be 1:00 if you were looking at a clock. I had surgery in July 2014 for hernia repair and a revision of ost...

Have ileostomy. Still have colon. Sometimes still have small rectal discharge (poop), usually very liquid type. Surgeon said its normal due to colon still producing mucus and poop. You would think the medical field would make you aware of things like this. But they don't. Just about all ileostomy people have a discharge if they still have colon. Hope this helps someone.

I had a TIPS procedure to correct bleeding from my stoma. It was terrible. I got 26 units of blood last June and was in the hospital for the whole month while they tried to stop the bleeding. Then At the end of February I got another 11 units, and they performed a TIPS procedure which involved going in my jugular vein through a portal to my liver and a bypass was put in to relieve the pressure ...

What does an Ileostomy blockage feel like?  I am experiencing really painful cramping on my upper right side of my stomach, across from my stoma.  The area around the stoma is very tender and sore but not like a skin rash sore. It is more deep inside.  Thinking it was a blockage,  I switched to liquids for a day but the stoma is putting out material into the bag.  When it empties, it is re...

I think i have a blockage because my stomach hurts around my stoma inside,My stoma is swelled up like i have never seen it before!!! I only pass black water and not thick bowel..How do i get rid of the blockage?? Buy a rubber baster and do an enema on my stoma?? what do i use??Soapy water or what?? Please help!!

hi, I’m a colostomy newbie had the loop operation at the end of September due to a tumour in my rectum. I’m getting stressed an upset with the pressure and urgency to go that’s I Still feel in my bowels. It’s constant and seems worse when my stoma is active? I’m terrified to let go incase of any damage inside it may cause me so I’m trying to hold it in. Can anyone else relate to thi...

hello, I was wondering if anyone else has experienced the discomfort I have had ever since my colostomy following the discovery of rectum cancer 12 weeks ago,  

I am unable to get comfortable sat upright as it feels everything is all being squashed inside. I sometimes also get a tugging feeling at the bottom of my stoma,  

Above my stoma is swollen and it feels like I have to hold myself as...

hi. Does anyone in here have any issues re blockages caused by eating cornflakes with milk or am i just being paranoid. ?

cheers

vb

Hi everyone!   I'd appreciate feedback from others with an ileostomy who have had to deal with "stones" that we can get from time to time... kidney stones primarily.   I've had my ileostomy for over 30 years now, and seem to get a kidney stone like every 5 years.  Doctors tell me most likely they're caused by general dehydration from having an ileostomy (despite drinking what seems like pl...

I have had an ostomy for almost two years now.  For about the last three months I am having more than usuall mucus dischage does anyone else have this problem.  Thanks so much Cindy

Hi all,

I am hoping someone has experienced what I am going through and can give me some advice.

I have had my colostomy since 2009, I had an awful lot of problems with infections and hernias. After 11 operations in 5 years I was beginning to get used to everything.

About 2 years ago I started to get an awful lot of mucus build up in my rectum that solidifies and feels like I am sitting on a...

So it's been a tough couple of wks. I have a wound infection(ppg) Arrrgh the pain was unbelievable!! Had to see ostomy nurse.dermatoligis and my go Dr in last few weeks. On flagyl. Large amt of pentasa and wound ointment. Dr mentioned remicade which I was on yrs ago but little sacred with this covid virus.  Any opinions appreciated.  Thanks!!

Does anybody have severe pain and blood/plasma leaking from their stoma? 

What can I do? I don't wanna go to the doctor

hello im not new with this ive had mine for 20 years my problems is blockage ive been trying to lose weight ever since i had to take prednison i need to lose a lot of weight it seems all the good healthy foods block me . i cant eat a lot of veggies which i like even fruits bother me a handful of peanuts will send me to a hospital .and by the way ive never met a stoma nurse let alone get any kin...

I'm newbie ilio 7 weeks ago rectum removed sutures were removed  no drainage but still experiencing sharp pain having problem sitting or lying down.  Is this normal and will go away or will I have to sleep in recliner the rest of my life.  Also stoma which I lovingly refer as Ripley[Alien] has developed an additional discharge opening at skin level. stoma is no longer nice oval but oval w...

Since my surgery for an ileo in mid march I have had 2 blockages..The first on was 2wks after the surgery but it was only partial..cleared itself out after I drank the ct scan prep..I was sent home..May 20th was the killer..Full fledged blockage..never felt it coming on at all..Had nothing to do with anything I ate..I was loaded with adhesions..was gutted like a fish from top to bottom..They we...

I have a round sore above my stoma and near the edge of my wafer. I have tried the powder, antibiotic with bandaid and paste, all sorts of diaper rash stuff, calmaseptine,etc.  any suggestions.  It begins to secrete a couple of days after changing.  Also looks like it has gotten to second layer of skin   Any help would be appreciated

I’ve been told that the pain underneath the skin beside my stoma is likely nerve damage. My skin looks fine. Has anyone else been told this? 

Fistula with a Kock Pouch

I have been having fairly constant semi-sharp pain below my stoma for a few weeks. I am not sure what's causing it but I'm not obstructed. I think it might be gas pain but why does it feel stuck in that area and never leaving?

Greetings all!

I used to have a rather active account on this website but over the years I stopped coming as often because my real life got rather  busy. In any event it's awesome to be back and I look forward to reconnecting with some old and hopefully new friends here as well!

To make a long story short, my beautiful and very much loved husband, Tyler, has had his ileostomy since he was a...

Hi all

It's been 3 weeks tomorrow since my operation for an ileostomy.

I woke up this morning panicking that I couldn't see my stoma. I rang the stoma nurse and she said it has retracted and this is normal!

Has anyone else's done this and have you had any problems with bags etc?

pHi There my friends,/p p        & nbsp;       &nb sp;         ;        & nbsp; I am in need of some advice and information. This is not in regard to myself but a dear friend who has several health problems./p p    The current major problem is a Prolapsed Rectum. She is around 55 and has had a very bad, almost exclusively liquid nutrition for quite some time, way too long. Protein drinks have been her main sourc...

 

when they do a urostomy and leave the bladder behind my query is

does the bladder produce a blood statined discharge post op

does the bladder also disgharge post op

it long term

do i have use any form of pads ect

thanks in advance

I am having ileostomy revision surgery in a couple of weeks for a prolapse. I have had it for quite some time, but never caused any problems. I could go for 7 days before changing the appliance, and then looked like I could have gone longer. In the past 6 months, after 2 days it has become very itchy and leaking between the ring and my skin. Sometime, especially at night the stoma will go below...

Hi Friends :)

I have a concern and a worry that brings on this question! I had emergency surgery 5 years ago and thats how I ended up with a colostomy. This past june I had another emergency surgery due to a blockage caused by my small intesting slipping into a muscle and some hernia repairs. So now I have mesh in alot of my stomach. I healed up very well but then I had an soroma (pocket of fl...

Is it normal for your abdomen to cramp and swell, after having no stoma output for over 24 hours?

They tell me keeping healthy people in the hospital is insurance fraud :)

OK, some practical advice for reversal candidates that I have learned through this ordeal:

The most important thing you can do during your time with the bag is pelvic floor exercises. That will really help afterward in that you will have kept your anal sphincter muscles in shape and will not be in a position to have an ...

I've had my ostomy with a 2x failed ileoanal pouch since 2007. The pouch never worked and left me in diapers for a summer in Phoenix... Which just doesn't work. For whatever reason, they left the pouch in but discovered it. Throughout the years I've have multiple surgeries with multiple complications.  Most of the surgeries were do to poorly placed stoma, to an inny that leaked and leaked. But...

I have a very sore bleeding stoma. So painful I cannot sleep. Been to see my nurse about 5 times.... no change. Anyone got any ideas. I'm desperate now. Ruining my life. Thanks.

 

I learned a sad lesson today.  It is about making sure you chew everything completely.  I am now officially off of french fries for a while.  I had lunch with my son yesterday and rushed through my french fries.  This morning I awoke with a frightening stoma blockage.  It was extreemly painful and I am still passing clumps of french fries that are causing great discomfort.  I managed to t...

Has anyone experienced awful constipation and stoma problem.  I've had colostomy 4 yrs.  Now I have a

Hernia on left side quite swollen.  I'm on miralax 1 or 2 x a day.  But past Saturday I could tell less output...so I added more miralax,  prune juice,  very little food, it took until Sunday in the

Middle of the night FINALLY get relief...but stoma was still swollen red. Skin pink/red ...

So ive had this colostomy bag since i was 4 and im 20 now and for the past 3/4 years mucus has been a problem in the bottom. It seems to just mount up for months and then start putting a type of pressure and a type of burn feeling before it comes out. Its as if the mucus builds into a ball and decides its time to relase it. It smells pretty bad and effects me for a few weeks. Now im still in co...

Hello Everyone< >  < > Not sure if this is the right place to get an answer but I am hoping to get a feedback. For the past two weeks I have been having a bad upper right adominal pain. It is just below where the chest cavity ends. I had scans and xrays and there are so signs of a hernia or anything major except for gaseous bowels. It causes me a lot of discomfort especially when I sit. I also hav...