Ostomy Surgery (Colostomy, Ileostomy & Urostomy)

Well hello 👋 everyone  needs your prayers just saw my surgeon today and they decided to remove my rectum.... has anyone had this done? How long was hospital stay and recovery?

I had my urostomy some 20 months ago, and all is going well - except:- I have quite a large hernia, not just "behind" the stoma, but another to one side and lower down on the belly. There is no pain and very little discomfort, but it is becoming slowly larger and without wearing my stoma belt, it would be very unsightly. At my last meeting with the surgeon, he said that he might need to operate, but would prefer not, unless the hernia becomes an incumbrance, and then I should first go to my GP for referral. Q1. What exactly (...

I have to have one last surgery to take out the rectum (can't leave it due to cancer risk) as I've decided not to re-attach.  Haven't had any issues since my ileostomy 4 years ago and don't really want to go through the recovery and possible complications of re-attachment. The main problem is that I am healthy and have to go in for surgery which will make me feel crappy.  It's easy to go in if you're sick because the point is to make you better.  This will make me better in the grander picture but I'm worried ...

Hiya everyone. I am soon to have surgery for ulcerative colitis. I'm just very confused which surgical option to choose.  - I can either choose to have a total colectomy with removal of rectum and anus and have a permanent bag. - I can have a j-pouch formed and have a temporary ileostomy while it heals and then have it reconnected later on.  - or if undecided they said they can leave the rectal stump, remove the colon and then decide a year down the line whether I want to keep the ileostomy permanently or have it reversed. I ...

Hello, I have my dreaded operation next week after a failed hemicolectomy last year which has resulted in an abdominal fistula. I wondered a few things:   - is the stoma itself sore? The fistula and the skin around it is, and I am worried that the op will heal this problem and create another - can you have a bath with the bag on? I haven't dared with the bag on the fistula as I can't change it myself - people say it won't smell apart from when it is changed but this does seem to smell to me all the time. Any ideas on this would be...

Yes, my subject line is correct.  Although I am quite depressed about my new situation (ileostomy), what has happened has been that my husband has had a terrible time dealing with it all.  Leading up to the surgery he was "the strong one" constantly reminding me "we can handle this together".  I don't think he truly understood what a huge change in our life this would be and he is definitely struggling with depression right now.  He tries so hard each day to be supportive but I ca...

anyone have trouble with obstructions?  seems like this is going to be a part of my great new quility of sucky life. Had ilio in march..1st I had a partial obstruction a week and a half later..I was lucky that after 10hrs in hosp. and after drinking the ct prep it opened and released on its own..not realizing that this was just the beginging of the end..may 18 was rush by ambulance a 3:00am after vomiting about 6 times with severe pain and realized I had an empty bag since about 4 in the afternoon..I should have known but was in ...

Does any one out there actually have a positive thought, story or reflection about living with a colostomy?  I am scheduled to have a colostomy with anus and rectum removal on Jan. 16th 2014.  Was diagnosed with stage 3 anal cancer in August.  Have completed radiation and one round of chemo.  I am a 59 year old large woman (250 lbs.). Both my husband and I are retired jr. high teachers.  Thank goodness I do not have to deal with this while trying to hold down a job!  My husband is...

Hi.  Has anyone had surgery to their hernia which involved them putting the mesh in and then allowing it to close itself as tissue grow over it?? I believe this is one technique they use .... how long does it take and  is it as successful as closure when in surgery? Rach xx

I posted a while ago trying to decide whether I should consider an ileostomy. While I had scheduled the surgery earlier this month, I ended up postponing it until July 21. I'm still undecided as I try to weigh the alternatives. This may sound a little crazy, but one thing that would help would be to get a rough idea of what it feels like to be wearing a pouch since the closest thing I know is a Band-Aid. I know it won't be the same, but at least I can get a general idea of what to expect. There are many different kinds, and I'd like to kn...

My rectum scar tissue has started to itch and feel strange recently, though there are no outward signs of any infection, it all looks as usual. It first started about 4 weeks ago, justy before I had a groin hernia op, and I was wearing a support belt. My GP put it down to the belt pushing the hernia back in, and a piece of gut pushing down onto the scar tissue. So I had thehernia op, all went well, started walking a bit more to recvover, after spening some time sitting around and resting, then went on a 3 mile walk. The day after, my rec...

Am wondering if anyone can share what to expect after reversal surgery? I've read too many horror stories about the pain from gas and severe and frequent bowel movements up to 20 times a day!!! Had ruptured appendix that almost killed me 4 months ago and came out of surgery with a bag. Am so grateful it can be reversed in a couple months    please any stories will help me understand what to expect!

Hello, Are there any things I need to be advocating for with my surgeon that will make life better with a bag? Don't really know what is possible so Im asking what you have already found out. If you are wearing one, you know what you wish you knew before you got it.  Thank you for sharing whatever info you can. Full of doubts and fears, but I have accepted that its happening. I am currently very active. Swimming, sailing, bike riding and surfing. An energizer bunny type. Its such an intimate subject I really do appreciate tha...

I'm having my second and hopefully last surgery this coming thursday (2/4). I had surgery Oct 2008 where I got my colostomy. I have had Crohn's disease for 16 years and it just got to the point nothing was working and surgery had to be done if I wanted any kind of a life. This second surgery they are going to remove the severed diseased intestine, remove the anus and sew up my bum. I have a few questions/concerns. I was wondering for those who have had their bums sewn up how that is? Is it weird to walk? Is it noticeable (to you)? Is sitti...

I'm not sure what to do about losing weight.  I'm 2 months post surgery (colostomy) and would like to start exercising.  Besides walking I can't seem to do a lot of twisting and turning.  My skin is very sensitive to the adhesive and if I do too much it seems to pull at my skin and I get sore.  Suggestions??

hi all!  Thanks so much for the prayers.  I am 12 days post op and finally starting to feel a bit better. They removed the rest of my colon, took down my mucas fistula, and removed part of my rectum. Pathology report came back - NO CANCER!!! Still have my iliostomy & will be tpn dependant forever. God is good!

Hi I'm Derek from Dublin,  Recently had colorectal surgery and I'm on here to try and understand the transition of the outcome of my surgery by hearing the opinions of others that have gone through similar surgery. One thing I've really noticed is that I'm still in a lot of pain, anyone out there have pain almost six weeks after surgery, allow me to elaborate, pain in the wound site, pain in the back passage area, feeling of wanting to go to the toilet, horrible pressure pains in the rectum area, I'd be honestly grateful if anyon...

Hello- I am new to this site. I hope I put this question in the right place.  Anyhow, I have had my Illeostomy for 3 1/2 yrs now due to Rectal Cancer. I was in hospital for about 10 days. Well, when I left the hospital I had a rash around my stoma site/barrier area. I was treated for yeast infection. I had lots of problems with rash like symptoms.  Well I finally went to Dr who finally did a scraping of the bumps and its Pseudomonas folliculitis. I think (after seeing a dermatologist, Internist, infectious disease speci...

 My smile says it all I'm super happy to be here  Hi everyone :) It has been six months since I have had my original colostomy surgery due to diverticulitis, perforated bowel and septicemia.  Life is good and I'm really doing OK.  I have had my ups and downs with this colostomy that I have named Donald Trump – I think I may have a small hernia but I'm not really sure I have to see my surgeon in regards to that.  Unfortunately I've gained back a lot of the weight I lost originally – and that's becaus...

Hi, last yr in march i had an ileostomy due to my crohnes disease, i have had alot of set backs infections and constant bleeding from my rectum, My surgeon has recomended that i have the rectum removed surgery i don't really want but looks like i will have to have would appreciate any advice on this matter thanks .

Has any one out there had a complete pelvic exteneration? Im about to have one in the next few weeks.  Would like to hear what your experience as been.  I know that we are all different, but would still like to speak with someone with experience.

Hi, has anybody had the BCIR procedure done, am thinking of doing this instead of a J Pouch.  Also I have an ileostomy and my output is always very thick, I drink a lot of liquids and don't understand why, anybody have any ideas?  Thanks!

I am having the colon, rectum and anus removed.  After the surgery what is the best way to start on your food.  Maybe did you start out slowly and then add foods to it.  Did some foods bother you so you waited and tried the foods later after healing.  I know we are all different but just wondering!

is the 15th of march. So all going well i'll be on the table some time that afternoon. Have my hernias fixed along with this weeping sinus that has plagued me for 4 years and i'll be ready to get to work with a flatter belly and no more aches.

hi guys, I'm 3 weeks out of hospital for a stoma revision which removed the stenosis, but failed to give me a better stoma cos the 1st op was so bodged. I had small granulomas before the revision, but the stitches aggravated it and it's spo huge now, its doubled in size in the last week and it bloeeds loads,so i cant get on top of anaemia,and it is really painful, plus the blood and the size of it makes bags not stick well. the stoma nurse says my consultant says as the silver nitrate hasnt worked, i'll have to have more surgery to cut i...

Hey every one , hmmm where to start had my 9th major operation for my 2 big bastard Hernias,only spent 5 days in hospital coz im very bad for hanging around in a hospital bed (smoker) so wasnt in my room barely at all had more fun 3 floors down one major corridor and outside Hospital think my exersize was well and truly done . yes i know blahhhh blahhh   LOL Had my op on 27th feb A Monday here in australia melb. Must forget to adf i thought such a hot day on sunday yey short bikini top beach quick swim oops made it 6 hours swimm...

My Questions is once Crohn's patients have had the ostomy surgery do you stay on Crohn's maintenance drugs?  If so why?

Good Afternoon, I have had IBSC my whole life and at 47 it finally took it's toll on my colon and had a full open colectomy in July of 2015 but I did not have an ostomy bag after that surgery. After that, things still weren't working right. It was discovered the rectum was damaged as well so in November I had my loop ileostomy surgery. I have done much research (alot of it on this site) and have found it very helpful in trying to adjust to such a huge life change. At the begining of January this terrible pressure on my bottom st...

    HI ALL,       Had an attack over this past Christmas- which landed me in the hospital on the 27th.  By the 29th I had surgery due to my Scans showing serveral perfrations that the antibiotics couldnt settle down.  I'm 49 year's old and for the most part a healthy active man.  Granted I drank, smoked more cigars then I should have but that's another story at this point.  Had a great surgeon and have had very few issues being almost three weeks removed from the procedure.  Due to the ...

Hi There I had my emergency surgery in Sept 2017 for my stoma,now im 1 week away from getting a "Barbie Butt" Im super scared. Any thoughts comments helpful tips would be greatly aprreciated. Also wondering the recovery time as far as when I can return to work I have a desk job.

Hi all, Ok, got my date (again - was bumped the first time) for my rectum removal - Oct 25. (had ileo Dec 09). What can I expect when I'm at home, following the operation? I was told that this op will be more involved than my ileo (which was done laparoscopically). Wondering ... will I lay on my side on the couch during the day most of the time? Can I sit for extended periods? How active will I feel like being during the first couple of weeks? Stuff like that. Any tips/suggestions appreciated. Many thanks, Bea

Hi guys, I'm confused by my body - the background is: I've known a guy for about seven years, I used to see him standing very quietly with his mates at a night club I used to go to, and he'd occasionaly be looking at me, to cut a long story short, it took five years for me to be the one to approach him and say 'hi'. I was married at the time (getting divorced now), and there was no way I would be anything more than friends. We danced occasionally (he obviously plucked up the confidence!) I gave him my number to text as a friend, we kept in...

Hi All, let me begin by saying thank you for this community and the welcoming, supportive energy it provides. I suffered for years with ulcerative colitis (UC)..mostly sigmoid but sometimes pan. It finally came to surgery, or should I say, I finally had come to admit surgery was the only option. I have a supportive husband and after 3 weeks in the hospital, we are home. I had never had surgery until now, I thought I was scared prior but since having the surgery, I am deathly afraid of having it again. Things didn't go well, the surgeon...

hi i just had  my pouch surgery done and am looking for tips to control the diarohea and diet before they join my bowel back.  have read some horror stories and am getting worried that i may have made the wrong decision.  please some one give me some hope that all will be ok

I have never suffered from back pain until now.  I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the pain and discomfort. I'm wondering if anyone else had this problem post-op.  I'm hoping this is maybe because I had a large incision cut down my belly.  Any input is appreciated.  I

I recently had colon resection surgery where they removed some 14 inches. The surgery was about 7 hours and I couldn't get out of bed for 8 days. Come to find out I have 2 bulging disks that I didn't have before. The surgeon believes that the damage was caused by the hydraulic operating table they used. Has anyone ever seen these things they're medieval.

Good evening to all,    Hope all is well, I am just asking what should I expect on my reversal??? Its been a tough year for me but finding the right clothes to feel comfortable with myself. My family and my fiance have been by my side all along. I have been strong and have not let this get me down. Im just nervous on the reversal since I had a lot of things go wrong during my 2 surgeries done at the beginnng of last year. Im just blabbing off... 😊   Hope to hear from someone,   Thks bunches... ❤

Thought i would let you guys kow i am having the op on monday and they are going to move the stoma  so after tom it off line for me am on morphine as have my husbands brothers wedding on sat i dont wont to miss it as all relatives from around country will be in new zealand

I have several fistulas but they also found a "mass". It's either scar tissue or mets to my colon. Won't know for sure unless he does surgery. Another stem to sternum, 4-6 hr surgery followed by chemo if it's malignant. He will take out the remainder of my colon, remove my mucas fistula and I'll just have the ilio & tpn. OR - I can do nothing & risk infection followed by sepsis, or bowel contents comming out my vagina. Really not much of a choice huh? Prayers appreciated.

Hi lovely people, I have a problem with my stoma that needs surgical intervention,in essence it needs resiting as have fistulae which cause leakage and soreness. That in itself is possible to deal with, it's just the anaesthetic I am a bit nervous of. In December I had a perforated duodenal ulcer which decided to perf when I was on night duty! Caused a bit of a kerfuffle I stopped breathing during the procedure and spent four days on life support. Am unsure of whether to go ahead. BUT want this fixed so that I can continue the full lif...

I finally got up the nerve to take a hot bath..... I've been nervous to do so since the surgery.   I figured tonite was my night to change wafer, so why not chance a bath.  If it ruins the seal, no big deal.   It was glorious!!!  My first soak since surgery .   I'm happy.  LOL

I had ileostomy surgery with a closure to the rectum at the end of October 2012.  It is now six months later and the rectal wound has not closed and I still have pain and drainage associated with it.  I used a wound vac for 6 weeks and it sped up the process but it was too shallow to continue with the vac.  Home health and my doctor agreed it would take several more months before it closed completely. I am unable to do any squatting or lifting of any kind due to 2 other surgeries and the wound attempting to cl...

     Going in for hernia surgery, its going to be the "stem to stern" incision again, the hernia is the size of a football above my belly button, they will do mesh and probably a reversal while I am open, I have no colon so my small intestine will be reattached to my rectum. If anyone has had this done could you give me an Idea of what to expect after surgery and your recovery time, I may lose everything again because I wont be able to work and there is no help in Michigan other than homeless shelters an...

It is November 1,2013 and my surgery is on the 14th. I'm trying so hard to be positive, but my fear is intense. I do not know yet if i will need a temporary or permanent ostomy. I go to the stoma nurse for markings and have final consult on November 6th. My cancer is very very low in my rectum just about 1.5 mm from sphincter muscle, so the surgeon is not sure if she can protect the integrity of the reversal and that i might not be able to regain control and could be facing fecal incontinence forever. I am 51 and this is my biggest fear. ...

hi everyone,  i am new here. I have had UC for 12 years now though 6 of them have been in remission. On a routine colonoscopy low grade dysplasia was found. After 6 months it was decided I needed to have an ' laparoscopic ileostomy pouch form + proctectomy/panproctocolectomy' (quoted from letter). If anyone can shed any light on what that actually means I will be very grateful. I'm under the impression I'm having everything removed with a temp illeostomy so I can have the reversal at any date. I have my pre op tomorrow so will ask lo...

I'm having surgery in two weeks.  I'm not sure if they will be able to perform anastomosis - I'm hoping so.  Two years since they removed my sigmoid colon.   I have a lot of damage inside from where I walked around for so many days with a ruptured bowel.  I'm hoping somebody explains it to me more what they will do.  I haven't talked with the surgeon since my ct scan, so I'm not sure what they can do...I'm in a great deal of pain, from scar tissue and adhesions.  But had to try to let them do their thing....

Hey, I have posted before, but have not received any response.  I will be having surgery to remove my large intestines.  I already have a colostomy, but they will be converting it to an illeostomy. Due to the fact I have no motility along with a stricture and part of my bowel has a right angle, they said I have been on TPN long enough and have every test and conservative measure possible.  I am very afraid, because I have so many other abdominal operations. They say it will take 6-8 hours and there is a lot to...

My reversal surgery is set for December 4. You would think I'd be celebrating but I am really scared. My last surgery almost killed me. Plus I do not hear a lot of great things about reversals. Are there any happy stories out there about reversals that went well? It is only about 5 weeks since I got my ostomy and it is about 5 weeks til surgery is scheduled. I have not had time to "get used" to this business. I still feel like I am healing. Lots of aches and pains. I get winded really easy (I developed plural effusions with las...

Hello, I am new to this site. I would love any advice. I have had ulcerative colitis since 2009. I have not been in remission since April and I am on several medications. I have an appointment with a surgeon in a few weeks. I know that removing my colon is the drastic last resort move. My life is so miserable now being tied to the toilet.Will surgery improve my quality of life? Or should I keep taking medicine that makes me feel like crap (pun indended) and not placing me in remission. Thanks for any advice.

Is there anyone who can tell me about ileostomy.  I have colonoscopy (stoma from my Large Intestine) Now the Surgeon is taking out the rest of my Large Intestine and portions of the Small Intestine.  He said that the STOMA will be on the other side of my body and higher up.  Do you know if this surgery will be painful and what is the recovery time?  I am having the surgery done in Rochester, MN at MAYO.  I am very nervous for Monday.  Could you Please inform on information. Thank

Me again!   i was just wondering what kind of pain is normal after 7 weeks from surgery?   My scar is still very itchy to start with. I get sharp pains at times in my sides, abdomen and chest, especially when I am trying to get to sleep. I get pain in my back too. Nothing unbearable, just uncomfortable most of the time. I also get burning pains in my abdomen too. I only take paracetamol, I was on tramadol after op, but came off it after about 4 weeks (which wasn't a pleasant experience so do not want to go back on that! Lol) ...

There are several posts here about sex, so, I'm just adding another one. I've had my permanent ileostomy since 2015. I do not like it. I know that is surprising lol! But, it is what it is, and life goes on. After the surgery, I knew sex might be an issue. Maybe a bit physically, but, mostly mentally.  To be honest, we were never one of those couples that had sex everyday. But, we still had a good sex life. Ever since my ostomy, things have been different. I had body image issues before all of this, so, this only made things worse. Whe...

hi everone can anyone give some real advise about scar tissue pain??? I have had 8 abdominal surgery's the last being 2008 i have got unbearable abdominal pain i have been on high pain reief but have had enough i am going to pain management they are going to try muscle stimulation with electrodes i have no feeling on my scars the first few layers skin .I have been told i have refered pain as i thought it was back pain but thats what ive been told it sounds like that is the problem i know more surgery would be np good or thats what i know ...

I have a big decision to make soon. I have almost no bowel control.There are two surgeries that I can have - a colostomy which Iunderstand isn't a really major surgery or a muscle transplanted frommy leg which is a serious surgery. Any information would be appreciated.

Will be offline for awhile.  Hopefully the mass is just scar tissue and not more cancer.  They're taking the rest of my colon and taking down my mucas fistula.  Will just be left with the iliostomy & tpn.

I had emergency surgery a week ago. Had a portion of colon removed due to rupture from diverticulitis. Released from the hosp on Friday with only a small amount of liquid output from stoma. Since I've been home, I have been eating more solid foods but there has been absolutely no output, besides a small amount of gas. No liquids or other output. My appetite is terrible because I feel too full to eat. How long does it take to see output? I still have cramps and some abdominal pain, but my incision is still pretty fresh. Should I be concerne...

hi all, am home after day surgery for a revision. this  has got to be the sorest i have ever been. feels like  a trampoline on my gut. any idea why it would hurt so much.  but i am sucking it up and dealing. just thought i would let  you know. take care  have a great day.

I will be having my colon, rectum, and anus removed soon.  I am scared but excited to get it over with.  I know it will be tough using the bag but I will learn through trial and error.  I do have a sense of humor.  I even have been trying to think of a good name for my stoma.  I have had ulcerative colitus for 7 years and it was time to do something.  Pills were not working and I had no hope left.  I sure do not want colon cancer either.  I think I will be a lo...

I am 9 days after surgery. Nothing could have prepared me for this. The pain, not feeling well, the constant trips to bathroom. Its hard work. I have had leaks and dont know why. Not being able to do much for myself. They kept telling me in the hospital "your doing great, your doing great". When I got home totally did not feel like Im doing great. My ostomy nurse ordered me supplies and now I have so much stuff I dont know what is what. I am extremely overwhelmed and feel so alone.

My 11 year old daughter has been suffering from gastrointestinal issues for several years now, and recently went in for another test. From the results of this test, the doctor came out and told me that he wanted her to be admitted into the hospital to clean out her system, do a test that would show the contractions of her intestines,  and also do a surgery that would be an ostomy that would place a button on her belly button so that she could push it and it would clean her system everyday. That is all the information he gave us. I hav...

Hi Everybody I am new to this page and I have some questions regarding the weight gain/loss after an ileostomy surgery. I have crohn's since 2009 and my first ileostomy surgery will be within 3 months. The idea is that it will be for 6 months but i have been warned that it might be permanent. Never had an issue with flare ups that i lost alot of weight. Maybe 1 or 2 kg at most. I I do have problems with maintaining my weight, especially after the long term prednisone i had 3 years ago. Gained 10kg and only lost 2kg of those. Permanentl...

Just wanted to report that I have just completed the first of two surgeries needed to complete my reversal/reconnection. Actually I had considered it for years & had already decided not to undergo the surgeries. I had a good system & had learned to live quite comfortably w/ my ostomy, plus at my age I just didn't want to go thru all the time, pain & discomfort. Then the peristomal hernia I had developed trapped my bowel & almost cut off it's blood supply. After 8 hrs in the emergency room I was about to be prepped w/ a naso...

Well, I got a call today with the surgery date. Why am I suddenly not feeling so brave?? The rectal stump has been nothing but problems and I know it has to go (had ileo Dec 09). Looking at the positives ... and please send good thoughts my way. Thanks all!

Hi everybody! It's been ages since I last posted but I finally have a new computer that I can actually use... So in 2 weeks I'm going in for more surgery, a reversal if possible and for sure a hernia repair with mesh. I had my colostomy 3 years ago and since then have had 3 emerg. surgeries for strangulated hernia. My new surgeon, my 5th! is going to do all he possibly can to reverse me but he tells me that I have so many adhesions from previous surgeries that he's not sure what he'll be able to do until he gets in there. Even though I've ...

Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and future. I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused m e constant daily excruciating pain. I haven't slept through the night and have had so many accidents. I am so glad I found this site. Gained so much information so I am much better prepa...

I just had a Ileostmy due to a failed jpouch. I'm 2 weeks out. Sorry, I have no patience but I'm just so tired. Beyond tired, I just want to get back to life again. How long is a recovery? And what can I do to speed things up? 

well today has arrived. Surgery time to remove tge large bowel ceeat a stoma for my permenent bag

Hi everyone Im back... I had my take down surgery on May 6th and I now have a permanent colostomy bag... they closed the rectum and took down the pelvic pouch./  I am very happy with my decision. It was a tough recovery but now I am healthy and happy. I will be joining as a full member soon so I am looking foreward to chatting with my new friends. You all have giving me the strength and coureous  to have this surgery. After 4 surgeries I am done God willing. Take care and talk to you all soon Sincerely Dee

MY BODY My body fails me, My mind never. My body scares me. My soul is comforted. My body hurts, always. My thoughts touch me softly. My body is angry with me. My Lord, always forgives. My body has turned on me. In my heart, I have no enemies. My body stops me My will is always moving. My body is punishing me My love is total & complete. My body is but a vessel My spirit is eternal.

I have crohns and had a colostomy 2 years ago.  Since then the crohns has spread to the remaining tranverse colon and is not responding to medication. One option is to reverse the colostomy, remove the remaining colon and have a permanent ilieostomy. The surgery would require cutting through existing scar tissue from my previous surgery.  What are the chances of the wounds healing properley when cut into old scar tissue? many thanks Steve

They moved my surgery to next Wednesday (Apr 13th). Looking forward to only having ONE ostomy!

I have an ileostomy and need to have shoulder surgery.  Has anyone else out there experienced having use of one arm with their ostomy (for a limited time of course). I have had my ileo since 1972, but I'm stumped over the after care on this one!  How will I empty my bag???  I don't like anyone else to mess with it.  Plus, I live alone now.   Thanks to anyone who has some experience.

Hi everyone, ive joined this forum hopefully to get advice for my dad.  I would like to know if it is common to recieve a colostomy pouch after surgery to remove one of his kidneys?  He had the operation through keyhole surgery,  they told him after the first surgery  that everything went well and he was really happy. Then he started to suffer with severe pains etc and went back in hospital this was a good few weeks after the operation, they ran ct scan etc and found he had a blockage and he needed e...

I have just last week had the final part of my reversal surgery and am now fully connected, (which am I very glad about) I was unaware till after the surgery that this meant I would have an small open incision/hole left where my stoma used to be. I am aware this is to allow the wound to heal from the inside out to prevent any type of infection which makes sense. It has to be re-packed and re-dressed every 2 days (something I find very distressing!). I was wondering if anyone has been in this similar situation and could share their exp...

Hi, Im just wondering if anyone else has had there rectal stump removed?  I’m due to have this surgery done on Monday 14th and I’m starting to feel pretty anxious about it! What is the recovery like? How long did you need to take off work? Did you have keyhole surgery? My surgeon seems to think it’s unlikely I’ll be able to have it done keyhole 😔 Any info would be greatly appreciated!  Camilla 

Good morning Ostomates, Today quite girl is having her surgery.  Let's wish her a successful operation  and a speedy recovery. We as  Ostomates have been there. Let's Pray that all goes well for her.

Hi everyone dont know if im doing this in the right place but here goes, got some news and a few question's, let me explain first....I have a loop colostomy (since may 2010) recently i have had lots of problems with it. Leaking lots and often from my bottom, going to the toilet in the "normal" way, pain etc etc. From the start i kind of knew to expect some mucous from the back passage because of the type of colostomy i have but wasnt prepared for this. For the past few months i have been leaking feacal fluid daily - passing sto...

Howdy, It's been just about five months since my surgery now and I feel great.  (Can I git a 'hallelujah!' haha)   I feel better than I have in years.  Only problem is this has lead to a large degree of restlessness.  After a long time living practically as a hermit, never doing much outside my apartment, I can't sit still. In general and all things considered, this is not a bad problem to have.  Except a large part of my job involves sitting still, staring at a screen, and being able to...

Hi, I would like to know if anyone has had surgery on their stoma? My stoma keeps retracting into my stomach which is very painful. I had my ileostomy 2 years ago (Crohn's). My surgeon is operating on 31.10.2011, but I don't really know what she is going to do! Angie  

I have to change my ID to CDB4 just had my reversal surgery yesterday... So far so good

At age 37, Linda Brashier battled Stage 4 cervical cancer, undergoing grueling rounds of chemo and radiation. Slowly, she beat back the cancer and recovered, but realized she would probably never have sexual intercourse again. The scar tissue inside her vagina (caused by radiation), made intercourse too painful and made it impossible for her to have intercourse without pain. Doctors prescribed a "dilator" (a phallic type device), but it burned and stung to use it. Now age 50, she started a dating site (www.2date4love.com) for pe...

hello just need some answers about having bowel movements I have had my Ilostomy for 2 years with only some bloody mucus coming out, But on feb 1st my doctor went in and scraped the walls of my rectum. But know i am having bowel movement what i am eating is coming out there and not so much in my Ilostomy have only had to empty bag 2 times with only a bit in each time.... should i go to the hospital or will it pass. any help would be appreciated i am a little worried

well, finally saw my new specialist and he's fantastic. It's been decided that my stoma is too malformed to fix with any appliances on the market currently....I've tried absolutely everything.  He said the stoma will need revision and maybe resite too.  What is the difference, any recommendations? If so, did they have to access the midline incision? what was recovery like? scared to think it will be like "bowel resection surgery".......praying it's less painfull and less involved, I've got enough scar tissue a...

Had an ileostomy nearly 6 years, at the time of the operation, the internal pouch (20 years in place) was not removed, but no longer used. It has now started to show signs of deteriorating, and the big question is,- do I risk another risky operation or carry on as I am, for as long as possible, I am not in any pain. There is also a hernia trapped between the pouch and the stoma. I have M.S. in remission and low blood pressure which can be affected by operations..especially long ones. which is why the pouch was not removed 6 years ago. Wo...

Hi there guys, my name is sadie im 31 years old and have had chrons for 14vyears and a illeostomy for 5 years, I was told at some point that this could be reversed , I have been going round circles of consultations and colonoscopies over the last 5 years to no avail, my consultant tells me there is inflammation, and says they wont touch it until the infflamation isgone, yet the dr that did my last colonoscopy told me prior to sedation that the only real way to sort this would be to reconnect and let nourishment run through.when I mentioned...

I had surgery 4 weeks ago and now have temporary ileostomy. My question is has anyone suffered from super sensitive skin across abdomen after surgery. I can't bear to put clothes on. Lying flat gives me some relief but I wondered if anyone had ever experience this and if so how long did it last? 

Hello, I had my emergency colectomy on 17 March this year and I was in quite a state for a few weeks leading up to that and so I was warned that my recovery would take some time. I was extremely malnourished, weighing just over 50kg but being around 6ft tall. I was also very anaemic and was diagnosed with toxic megacolon on the morning of my surgery, hence the emergency. It has been just over 12 weeks since the surgery and I feel fine generally, but some nights I feel absolutely knackered for no particular reason. For example, last Friday...

I currently have an ileo-anal anastomosis and will be having elective permanent ileostomy on Oct 26.  I had a temporary ileostomy back when i had my first surgery 30 years ago.  I remember how liberating it was after 3 years of full-flaring UC.  I look forward to the full liberation again as i've suffered a very painful fistula for 29 of the 30 years.  I've just bore the pain but now that the nest is empty, i'm finally taking care of myself.    My question is, will i need to alter my eating habits and/o...

Hi 👋 everyone well it’s been a month since my surgery and Pain is still pretty intense and I still can’t sit. Still have some drainage. I feel like I should be much further than I am . I walked to mailbox and started bleeding. If I try to sit more than a few minutes I bleed. At night it REALLY hurts.😔😔 Anyone else had this problem? Really could use some encouragement 😔😔

Ok, this is my first ever forum post! But it's good news I've contacted my surgeon (well left a message with his secretary) about getting my ileostomy reversed! If anyone already has a pouch I'd be glad to hear from you as I am a little bit nervous too!

Well last month I was on here asking about complications associated with the Hartmann's procedure...I had my surgery last week. The takedown of the transverse loop went fine and they created an end sigmoid colostomy...but it's not emptying. At first I thought it was swollen shut and having a hard time for that reason (it was passing some gas and a little stool but not much). Now though, I haven't passed gas for about 20 hours and no stool either. I can feel bowel moving and contracting and it's like a really bad cramp and I feel a bit sick...

Hi all this will be my last post for a while just spring cleaned before going in,packed bag and just waiting will be pleased when it is over morphine tabs make me stay awake all night,then tired during day.Just planted some lettue and parsley hope the old boy waters them

Well I have been on a roller coaster! Was going to have a jpouch. Met with many doctors but the 3rd tested one of my 100 polyps and it was a T1 tumor  in my rectum so can't keep any of it with the chance it might come back. So I am off to have the BCIR done , I decided to do an internal resevoir instead. Not sure if anyone is familiar with the BCIR but I prefer this over the ileostomy. Have a few friends with them that love it. www.BCIR.com Been blogging on my wordpress account and will continue to do so after surgery. A long 2...

My reversal and hernia surgery is tomorrow, Feb 3rd!  I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now.  It's funny how food looks and smells so great when you can't have it.  I'm nervous and anxious for tomorrow to come.  I pray all will go well and all of you on this site have helped me with all of your encouragement and information.  I am truly thankful to you all.  I'll post again as soon as I'm able after my surgery and let you ...

Hi all!    This is my first posting on this forum, and I am brand new member!   I have been a UC sufferer for over five years now, and have had so many bad experiences.  The flare ups are bad and take me months to recover.  Steriods are just awful Sooo, I have decided to undergo surgery to rid me of my disease and the many side effects of my drugs.  I'm posting to look for other people who have gone through the similar path as I.  Or anyone who has had an ileostomy, o...

Hiya I had a emergancy colectomy last year due to UC, I decided to go for a jpouch and had my rectum removed & jpouch formed 3 weeks ago (ill have take down surgery in afew months) I'm recovering very well no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on anti biotics incase I had a water infection from the catheter but still no better! Did anyone else experience anything like this? I'm scared something may have been damaged in surgery :-/

I am having major shoulder surgery in a few weeks. I have had a continent ostomy for over 30 years. and besides the obvious stress about the surgery, pain, not being able to move or work, I am very concerned about handling my ostomy. It requires two hands to intubate and irrigate and the doctor does not want me moving anything other than my wrist. I have yet to figure out how I am going to manage that! No one in the medical community where I live has any experience with my type of ostomy, so I am feeling panicky about the situation. I have...

been diagnosed with crohns, three years! I have not taken the meds. asacol, imuran ect, have tried asacol and one other, but got irregular heartbeat and stopped after two/three weeks, have nt yet taken imuran! my new doc prescribed it! read side effects, and really got scared! so I have not been on any meds, but now I feel blocked up, can anybody tell me if it is time for surgery! I know the doc. is the best person to say! but somebody out there might have some idear, or do you think it is to late to start the imuran?  

 Hello   Post prednisone medication I have been experiencing rather severe joint pain. Has  anyone else experienced this? If so, can you explain why this is happening and how long I should expect it to last? Thanks   Dale

Hi my name is Shirley.  Looking for reversal surgery experiences.  I had an ileostomy surgery 3/2016 after a failed resection surgery. Planning reversal for August. I have Crohns disease. 

I am going into hospital next week to have my ileostomy made permanent and to get a barbie butt. I was wondering how long before people felt comfortable sitting for long lengths of time. I really love going to the cinema but worry sitting would be painful.

Hi I am new to this site, I had a colostomy last march and have made out great, this was done because of chronic UC, they left the rectum with the idea I could have a reversal.  I had pretty much made up my mind to not have a reversal because I like haveing the control I have now of bathroom breaks etc.  problem a couple of weeks ago I started having bloody mucus and feeling of urgency thinking the UC is in the rectum now and going to GI tomorrow, wanted to get your input about recovery etc

Hi, I am going in for surgeryto treat rectal cancer on Dec 27th and have been told by my surgeon that a permanent colostomy is the likely outcome. I have been trying to gather as much information as possible on ostomies and all things colostomy. I see the Ostomy nurse this Tuesday to be marked for the ostomy location and I am sure she will have good information for me, but I want information from this community. Maybe stuff nobody told you, or suprises good and bad about having a colostomy. Anything you can tell me would help, I am pr...

Hi everyone, want to thank everyone for their comments before my colostomy surgery on Dec 27th.  I got home 2 days ago, alot of adjustments to go through, but boy am I glad to be home!  

Hi! I have had my ileostomy for 42 years and I just turned 60 last week!  So I was very young with Ulcerative Colitis.  The actual surgery was ON my 18th birthday...long story short, I had 4 C-sections without any complicaitons.  My stoma has always been very small and close to "flush" with my skin.  Although I do have occaisional leakage, for the most part, I've had no problems.  I am having a hysterectomy next week and the doc mentioned that if I wanted to have the stoma "raised" at the same time, she could have...

Having only started reading the postings on this forum a few days back, forgive me if I am asking a question already raised. I had a urostomy about 18 months ago, and some six months back noticed a swelling to the side and below the stoma. Surgeon said that it may need an operation should it get any larger but they are reluctant to do so as it can result in infection. I have noticed in other postings on this forum, members mention that they have had more than one hernia operation, and I just wonder why. What can - and did  go wr...

I've been reading these posts and trying to find out everything I possibly can before going for my colostomy. I only know now I will have the bag. I have SO MANY questions I didn't think about when the doctor told me the news. And many of them I think I'd be too embarrassed to ask him face-to-face. I only know they are cutting me through the stomach. I've had decades of fighting with adhesions---my body seems to be a breeding ground for the things. I read a post that talked about the adhesions, and hernia, and B-12 injections, and vaginal ...

I am due to have my rectal stump removed on the 30th November 2010 I am starting to get very anxious about having surgery again ( I had my ileostomy 8 years ago ) can anyone reasure me how the recovery is after I would appreciate any advice ?

Having an enormous hernia following a urostomy about three years ago, I am due to go back in to hospital in some four to six weeks time to have it "corrected" using the mesh method. However, reading a number of blogs on this forum, I am beginning to wonder if it's worth while, since the majority of reports are negative, it would seem. Although I have genuine sympathy with those who have reported failures or frequent repeat operations, I would love to hear from anybody who has had a successful hernia fix. Come on, there must be ...

Hello Everyone, I just came across this site late last night and am so glad I found it. Husband admitted through the ER on March 31st.  He unexpectedly experienced a perforated colon due to diverticulits which resulted in having surgery after 10 days of antibiotic treatment in the hospital. They removed his sigmoid colon and a portion of his rectum on April 10th. He was given a temporary ileostomy while the colon/rectum connection site healed. He has had his barium enema test and flex sigmoidoscopy and the surgeon said everythi...

I have bee rubbish on here - only made a few posts and then vanished to 'normal' life but I think that's a good thing.  I am a 33 year old professional single mum of one and I coped pretty well I think with having a stoma for 2 years.  I have just had my final appointment with the nurse (for dressing checking) four weeks after my reversal surgery.   I'd be happy to chat with anyone who's recently 'gained' a stoma and wants to talk to someone who's been in their shoes or anyone hoping for a reversal. We're a ...

Not having a good day. Just not feeling well. Kept trying to go in chat room but no one is ever there. I will try to have a rest and hopefully connect with someone soon.

Hi, I'm new to this site and would appreciate some advice from people who have had ileostomy surgery. I would like to know anything that might help me before my operation. Is it extremely painful? Should I stop eating beforehand? How long is the average hospital stay? I would be grateful for any information. Thank you and I appreciate you taking the time to read this and reply.

In a couple of weeks I will have reconnection surgery. Right now I have a temporary stoma. An illiostamy. 

Hello it's me again ... I hope and pray everyone is well. I have a family member my father to be exact that really doesn't understand the highs and lows of day to day function. I when to a barbecue on the forth of July had an accident I was discreet about it ... family had another barbecue today and chose not to go . It's at a park with bathrooms close by. My father thinks I'm making it more than what it is. My backing of my two piece did not stick. So I had to clean up on the car. How do I get him to understand or will he ever understand....

Help please awaiting removal of the rectal stump as bleeding continued since permanent colostomy surgery due to severe crohns. Just anxious as been waiting on Urgent list since December 2015 meant to have it yesterday was all gowned up ready then they cancelled me so upset .New date 6/9/17

Hello all.   I am a 60 yr old male who has had a mild form of colitus for about 20 years now.  For 2 years I have been on remicade which has helped but not totally brought me into remission. I work in an office environment and have lived a full active life with travel and activities, mainly running, tennis and I love riding my motorcycle up north on country roads.  Except for this condition, I am relatively healthy and fit.  During a recent colonoscopy and subsequent biopsy of samples taken, my doctor told me that there...

I have a permanent colostomy for about 10yrs. I had it done because of colorectal cancer. Recently I had a hysterectomy and the doctor removed both ovaries. Uterus cervix and Fallopian tubes because of heavy bleeding and huge fibroids. I’m still experiencing pain in my lower abdomen lower and near the incision. Anybody had to have a hysterectomy with a colostomy???

Hello, I am scheduled for my ileostomy september 20.  I was wondering if anyone could share with me their experience of the actual surgery and days after?  I will be going to the university of washington.  I have had a j-pouch for 8 years, and am needing the ileostomy because I started having fistulas two years ago. Thank you!!

Hello This is my third question to this forum since I found it very useful and so many good people offer great advices. As communicated before, my mom had a TME surgery (permanent ileostomy) about six weeks ago; currently my mom is still hospitalized because the hospital ostomy nurse didn�t manage to fit the right stoma appliance which caused a serious leakage and skin burn. Yesterday our surgeon told us that looks like my mom will need a second operation to relocate the ileostomy because the skin is not improving and thus the ostomy ...

Hi all,  I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work.  I know I have to get this done in order to get off the TPN and try to lead a more normal life and be able to eat again. All my doctors and friends have said I should get this done, so I will be getting my surgery date when I see my surgeon on Thursday July 1st.  Because I have had so many complicatio...

Well i am now 2 weeks post op from my 2nd surgery to create a Permanent Iliestomy, as for how i am going i feel that i am GREAT was only in hospital for 5 days, but after being discharged things started happening too me like my entire body swelling to 2 sizes bigger than what i really am, and my feet ankles and legs where like water melons, at one stage i couldnt feel my feet they hurt that much and i also had a constant tingle feeling in them:( i went to the local ED department and they didnt think it was urgent so i went home, within a f...

I've had an illeostomy for 7 years, and wear a 2 piece convetec appliance Went to my daughters Parent/ student orientation in Galveston this past weekend. Sorta like a mini vacation too. We did alot of walking and enjoyed the sand and ocean and the down town district also. Lots of live bands and lots of good food..... I woke up Sunday morning around 315 with bag blowed up tight and hardly able to get out of bed, I made it and noticed that I had also had a bust. Got that all fixed back up and noticed how weak I felt, and kinda nauseated....

I'm awaiting surgery for a colostomy reversal on November 24th next. This is what I always wanted in the end, but I have no problem with having my stoma. As a matter of fact I've become quite used to having it now. What I'd like to know is whether anyone has any advice regarding bum exercises? I just wondered if it was worthwhile for helping with so many loo visits? I know this probably sounds absurd but the thought had just crossed my mind with so many reversal posts here saying how often they had to visit the loo. Many thanks in advance,

More than 2 years after my operation and have been fitted with a Ostemy bag my old surgery wound has opened again. Most likely after a few good coughing spells. Had the Medical Nursed visiting me every 2 days until lthe wound closed again. And once more after a good sneez it opened up again. A real pain as it takes lots of bandaged and patience to completely heal again After all that time back to the Surgeon again!! Opa Ray.

Hi folks, well I've had a colostomy for over three years, but struggled with controlling the crohn's, had lots of bleeding, watery output for months, despite strong meds including 'Humira'. I went for a regular appointment to see my IBD nurse just over three weeks ago, knowing I was flaring, with a temperature of nearly 39, and in denial as I'm also in the middle of a marriage break up... I was kept in, and ended up with an emergency colectomy, so I now have an ileostomy, but the good news is I'm finally in remission! I'm out of hospital, ...

Can anyone tell me why my stoma is sore and painful and I have severe back and arm pain any thing will help me thanks

Hi all I am new to all this so just thought I'd try this site out. My name is alan and I have just had surgery and had and ileostomy formed and now gave a bag. 4/4/14...... I am. Finnaly home and feeling a lot better. I am just after advice on how long until I will be back to doing normal things and how people react to you have bags? Also my output is still watery. Is there any good foods to thicken it up?? Is there any chance I'd play football again and are there protectors for my stoma? Also what clothes are best to wear? Sorry fo...

I have had Drainage from here since my surgery,  a year and 5 months ago, is this normal, will this ever stop " ! " ?

hi all, wondering if anyone would like to share stories re: successful reversal operations. Had emergency colostomy Sept 20/16 for perforated colon (diverticulis) with plans for reversal in next 4-6 months... have read various stuff about this and just curious about others' experiences

Hi all, Any suggections regarding a more comfotable bike ride? With no rectum and anus, it feels like my cocyx is reting on the seat post. Bike seats, in geneal, have always been uncomfortable. I have tried a gel seat cover with little relief. Padded shorts help some, but I'm hoping there exists a special seat designed for this post-surgery concern. Thanks, JAE

Hi all -I had a colostomy about 7 months ago.  Since that time I have occasionally had real bad back pain.  Usually I have some mucus output about three days a week but haven't for awhile.  I think I read somewhere that this can cause back pain.  Has anyone else ever had this problem?  Thanks so much for your help.

Do you recommend hernia surgery?  How do you feel about wearing ostomy hernia support belt instead of having hernia surgery.

Hi I got a temporary sigmoid colostomy done mid November 2010. It saved my life. However, what was temporary has just become permanent and within 2 weeks my doctor wants to operate again. She intends to turn Tomi from a loop colostomy to a end colostomy making him permanent, remove my sigmoid colon, rectum, anus and anal sphincter, then sew up my bottom giving me a "barbie butt". She is also going to remove a badly dislocated and probably fractured coccyx (tail bone) at the same time I am perfectly happy on one level to have ...

I admit that I watch MMA from time-to-time although not a WWE fan, however.  Since my surgery in October 2010 I have read how there is still stigma to an ostomy; how most or many have to struggle how to tell someone or whether to do so. Most would likely agree  it not something that is easily or (comfortably) discussed with friends, co-workers and the like; and the negative implications that is likely prevalent in the public's mindset. Interestingly Brock Lesnar,  a huge name in WWE and MMA, just had colon s...

Hello ladies and gents, I've seen some really amazing responses in these threads and am both very happy and reassured to know there are so many people willing to offer their support and advice; this website is a valuable resource! I'm hoping to find some further information on ileo-anal, or j-pouch, surgery (for an ileostomy reversal - as if you guys didn't know I had an emergency total colectomy in May this year (family fun for the UK bank holiday!) which was an awful, painful nightmare of an experience - as many of you will know/can...

Has anyone been left with an open incision following surgery? I had a Colectomy in June 2011, the incision was not closed and quite a size about 6cm round and 4cm deep, the surgeon said he wanted it to heal from the inside out. 3 months in hospital, 9 months District nurses visiting daily, since June 2012 I've been cleaning and dressing the wound. Slowly it is healing, but I was not prepared for this in the least and wonder if anyone else has had similar experiences.

I have finally had j pouch surgery on feb 25, am still in the hospital (nursing home) and this was the hardest thing to endure in my life.  They had to remove my uterus because of fibroids and it was in the way before the did the other surgery.  Hhad a bowel blockage and was throwing up, had an ng tube for 2 days to pump my stomach, things got infected and I've got an abscess in my abdomen and a wound vav for the incision to close up....I am depressed.

Looking for some advice.  Had ileostomy surgery 11 days ago and now that I am home have noticed a bulge to the left of my stoma which is quite painful.  I should mention I had this bulge after surgery but the sharp, burning pain began two days ago.  This area is very tender to the touch and hurts considerably.  Every where else pain has diminished significantly.  Should I be concerned about the possibility of hernia?  What symptoms should I look out for?  Any advice is g...

Hi all, I had a subtotal colectomy in Feb 2011 due to UC and have recently had reversal surgery to have the j-pouch formed. Im now 7 weeks post op, had a problem with a couple of infections (a water infection caused by the catheter and one at the bottom of the incision) but these havent been too troublesome, although I think the water infection has reoccured. My main problem has been consistency of the output. Im finding it extremely hard to keep the output thick enough. Most days it seems that anything I drink goes straight through me int...

Recently diagnosed with prostate cancer.  I was looking into complete removal of my prostate but have scar tissue in the area from ileostomy and rectal resection done 47 years ago and then a revision done in 2013. My question :. Have any other males had this done  or even have had radiation to stop the prostate cancer? Any input would be appreciated. Thanks

Hello, everyone. I'm hoping I can get some answers as I'm very concerned with my situation. I had loop ileostomy 4 weeks ago. This was as a diversion from my Jpouch which failed. In last few months, I started to lose lot of weight from my illness and at the time of surgery I was 86 pounds. Here it is a month later and I'm still 86. I'm 5 feet. I'm consuming average of 2300 calories per day but can't seem to gain. My surgeon tells me that I'll start to gain after 2 months or so.  But my temperature hovers barely over 96.7 and my pulse ...

On 01/31/18 I had my 2nd illeostomy revision surgery because of my 1st illeostomy revision surgery my illeostomy was hanging out almost 5 and a half inches causing sever pain.  On this last revision surgery they used a drainage tube and it wound up causing my illeostomy to backup and get plugged making my completely bloatd and not passing anything through my system.  When they took out the drainage tube I've had nothing but extreme gas and complete discharge that's nothing but watery come out.  Whenever my system lets out ga...

Hello my name is John I just got a dissection surgery they took out my large intestine also my colon also they made J pouch I am about one week into my 8 weeks until I go for my second surgery. Today was going good I don't think I ate as much maybe that's why.. I've been having cramps it feels like I have to go to the bathroom. I went to the bathroom to see what happens the cramps came and I pushed a little blood came out is this normal maybe it's left over from surgery or something or should I go to doctor please help.......

I had my surgery on Nov 10th.  She did a loop ilestomy.  Surgery went well.  The third day was my worst so far.  Alot of bloating and being unfortable.  My stomach is still bloated but they told me it should go away.  Surgery was on Thursday and today is Sunday and I'm still in the hospital so far.  My issue, to update people, was having a slow colon and pelvic floor disfuntion for the last 25 years.  The last two years have been the worst with pain and bloating. I'm hoping this will help.  I'...

I had an ileostomy a year ago, but the first one failed and I had to have another surgery for that two weeks later.  Three months after that my ileostomy failed again, so I had another surgery.  A few months later I had a fourth surgery.  All has been well for six months.  I am now feeling like a normal person again, although I do have my moments of being self-conscious. My problem isn't really myself anymore, but now my husband informs me that it bothers him that I do not take exercising seriously and he is also turned...

I am a healhy 47 year old that have always excersized and taken pride and care of myself, athletic ..etc. On December 22nd 2017, I went to poop that morning and ended up in excruciating pain. Went to the Emergency room...after 2-3 hours, they told me my colon had ruptured. They removed 9 inches of my sigmoid colon, surgery lasted 3.5 hours because I was so septic and almost died. Spent 11 days in the hospital and I am left with a colostomy bag and have been told that I can reverse my condition in 4 months.  in addition, I had an open wo...

Hi everyone, I have my J-pouch surgery on November 23, so about six weeks from now. Tomorrow is my final consultation with my surgeon before the surgery, but because of uni I haven't given myself any time to think about the surgery very much. Is there anything that you wish you knew or asked your surgeon before your reversal? I can't think of any specific questions for him at the moment. I know of the complications, like pouchitis occuring in about 20-25% of people and the risk of cancer in the cuff of rectum that is left over.  Tha...

I had an Colonoscopy done 3 weeks ago or so. I still have my wound vac attached to me, but my nurse says I'm about ready for the wet to dry dressing. I don't feel any pain really from my stomach unless I contract it too much, or if I laugh really hard. So I want to know is it safe to have sex at this point in time, even with the wound vac? I know my positions are limited, but I just wanna make sure I won't be *ucking up my insides. Lol

Hi there, If anyone has had hernia repair surgery with a colostomy, how long did it take for you to have a bowel movement after surgery??  Thanks for reading.   Regards, Five

Hi there. This is my first post. I am an immunosuppressed person having had a liver transplant 14 years ago and have a parastomal hernia that I am considering having surgery for. My question is: Are there any immunosuppressed people out there who have had parastomal hernia surgery? My potential surgeon advises that there are many risks for me ant that I can expect a long and difficult recovery. Any advice/thoughts would be most welcome. Have a Great Day.  

Has anyone had this procedure? I've had several perineal abscess/fistulas surgeries the last one being in February 2018. This procedure is more invasive but hopefully will prevent any future flareups in that area .....never a 100% guarantee. Surgery is to be scheduled at the end of this month...still waiting for a date and I'm scared. Jan

I originally posted this question but in the wrong section, so a member wrote to me and suggested that I enter my post in this section, as she also mentioned that sometimes actual "Ostomy Nurses" reply as well.   Anyway, read below please: " Hi all,     I had my Ileostomy put in right a day or so before 1/1/09 and well, was hospitalized nearly 2 months becuase they goofed initially by not doing an open surgery, as planned, as I had impacted stool (top to bottom) and well, when I awoke...alth...

Today is my one year annivesary from my ileostomy surgery. I would like to this opportunity to say thank you to all on this site for their helpful tips and hints. I have been very fortunate to eat all the food I ate prior to surgery. I have also returned to my fasvourite hobby quad biking ,trail riding and camping with my family. I did return back to work 6 weeks after returning home from surgery. I also returned back to hospital 5 months later to have all the remaing bits removed. No J-Pouch option availble now. I had some con...

I have heard from some souls that they have  had their reversals repeated.  how soon after the first reversal was the second and the third?  What was the rason to re-do the reversal.   It has been a year and a half since  mine.  I don't have any symptems of any thing wrong,  but would like to know what to watch for? Jacksprat

Here I am , one week out after yet another round of surgery. The surgeon couldn't fix the kink in my colon, where it comes through the hernia mesh, so I need to manage on a high fibre diet to prevent any blockages. The rest of the surgery was prophylactic removal of my uterus and ovaries. I've Lynch Syndrome, and well, that's where the cancer normally turns up next. Happily the surgery was done laproscopically and I was discharged the next day. I spent 2 nights at a mates house, and am now home, alone. Going through a bad case of the "...

I have a friend who had a very serious case of colorectal cancer.  Much of his tissue was removed leaving him with a colostomy.  Are there any clinical trials that use stem cells to grow new organs in that area?  Where should someone go to have this procedure reversed?

Hey Yall - My surgeon said that after I am knocked out for the reversal that a urologist will place stints in my ureters so he can be certain to visualize them while he is fixin me up & they will come out while as soon as my surgery is complete. Do any of yall know anything about this? Had experience with it? Is it common? Just wondering because I have to go meet this urologist & sign a release for her to do it.

I had my stoma put in April, 2011. (I had Ileal Conduit ByPass Surgery) In August of this year, I developed 3 hernias; the largest one was under my stoma. The doctor placed a large piece of mesh in my abdomen. (I have had 37 surgeries in the past 10 years. Four of these required large incisions.) At the beginning of this week, I started having pain at the stoma. The has been very bad the last three days. I am throwing up once a day or I am nauseated. I don't have a fever but I am having very bad night sweats. They are so bad that I have to...

DOES ANYONE HAVE BAD FEET I HAVE HAD CHRONIC CROHNS FOR YEARS NOW TOO MANY OPS ... I HAVE HAD 26 INJECTIONS AND SEVERE FOOT LEG CRAMPS SO ANYONE HAD THIS OP DONE DOC SAID I CAN WALK STRAIGHT AWAY DONT SOUND LIKE THATS RITE ?? ANY INFO I GLADLY NEED TO KNOW MERRY XMAS ALL.......

     They tried the reversal on me in June and it did not works so I had my second ileostomy on July1. I am now 7 months out of surgery and I have started back bleeding from my rectum again. I do not know if it is because I had to ride for 4.5 hours on Sunday then sit for a 1.5 funeral. I have become very weak today and very pale. Has anyone had this recur after 7months from surgery?

Hello,   I had a dr. appt with my family dr first time after my surgery today.  I was suppose to have it in may.  I have blood work done 2 weeks ago, so when i go in mya he would have them.  Howver, they called me yesterday to go today as they saw someting.  I go and now I find out that I have under active thyroid (whatever that means), low iron (which i knew and he gave me something for thatn), and l?ow sugar??  What does that mean?  What am i suppose to do...have any of you had these or anuany thing af...

Hi everyone, has anyone any ideas how to cope with the bad soreness after rectal removal please? I had my large intestine removed three years ago, leaving my rectal stump. But for over a year have had blisters and bleeding. I finally had my rectum removed last monday, to which they found had completely broken down due to the Crohn's, and found a mass behind it. I came out last Friday full of stitches, and the district nurse has been putting dressings on. I am raw and sp sore I can hardly sit down, even on a special cushion. It is dry and c...

my reversal surgery is coming up. ive had a ostomy for 16 months. i had to wait a year post op before the insurance kicked in. its painful i had no underlying heath issuses besides a 14 pound tumor removed that had broken through my intestines.i never know how im going to feel day to day. its very difficult and i have told very few people about my ostomy.im located in texas and the surgeon is in san antonio which is a few hours away from padre island. there was a gentelman from houston who had a reversay surgery in houston im looking ofr h...

Hi all,  ive just spent the last month in hospital due to an abscess due to Chrons On IV meds but they are not.  Doing the job. I am opting to have surgery to remove the abscess and a 2nd fistula. The surgeon will have to redo my entire ostomy and possiibly move sites.  Has anyone else gone through this? What were your experiences?  Thanks

i'm a newby so please make allowances. Last August I had my reversal. Went home after a few days. The aperture (I call it my shrapnel wound) was left open so that it healed from the inside. After about four weeks I went back to the surgeon and said that I could feel stitches inside. He said that it couldn't be so, but he had a good look as the wound was still open. He then agreed that there were still some stitches in place, the insoluble ones. He cut them out there and then - no need for an anaesthetic. Then I had another month of healin...

i had chronic diarreah for one year and a half and all the meds my doc put me on didn't help so he sent me to see another gi doc who said he could get rid of diareah, didn't happen well my gi doc called my neurologist to see if he would give more of my migraine medicine because it slowed my diareah up. The neurologist did so, the only thing was I couldn't drive and I had a feeling of euphoria. So my husband would take me to the doctor in which we made the appts on his off days. I was going so much and my backside was sore and what helped i...

Hi all you lovely people.....A question for  some of you? I'm due to go in for another operation to fix my stomach muscle (insisional hernia) caused by prior operations for colitis....I had an illeostomy in 2014. I'm going to have it done by Guys Hospital in London, the surgeon there says its a good idea to have my rectal stump removed at the same time as it'll save any further complications. I'm not convinced about it???  Any one here tell me how theirs went and any consequencies afterwards?   Thanks  Pete

Its been 5 weeks since my surgery.  Things are going ok.  I only had one issue with a bag leak.  But I do have another issue that I'm concerned with. When I get up in the morning I feel fine, but after moving around for about an hour or so my "stomach" (Under my belly button) starts to swell up and I'm very uncomforable.  Sometimes it swells above my belly button.  I went to the doctor a week ago and she didn't seem to concerned about it.  Only if it continues after a few more weeks come back to see her...

I'm looking for some advice regarding anyone who has had their rectal stump removed. I've been having a lot of problems with it recently . I had a Scope done last week but they could go through with it as it was so uncomfortable. I've to go for another one under anaesthetic but the talk of surgery has been brough into it. I met with the surgeon today and they filled me in with what would happen. My main worry is they said it would be very difficult to have kids after having this surgery. As I am only 19 this is a really big deal to me as ...

Post-op, how long after wound vac therapy is it safe to go swimming? I had my vac removed Monday and can I swim by the weekend? It looks 99% closed 

Does anyone know if you have surgery for a thyroid when you have an illeostomy does it affect your ostomy in anyway?I would appreciate any feedback?

As strange a this may sound, could anyone tell me where i can download an actual dvd of a urostomy surgery. I have searched everywhere I can thinkof  but to no avail. I wouldlike to watch what surgeons actually did when  I hadmyurostomy . many thanks phil

man i wish it was me mine is not able to be reversed stuck with it forever (((   sucks ya know my mom who says she thinks its cleaner old fashioned way good she can worry about 24 7 and i will take her normal bathroom habits and give her my bag can.t wear same kinda clothes i did before cause it sticks out a lot .   i wish which quack doctor to blame this whole cancer thing on the first place hope they enjoy their stay in hell makes me question where the medical profession in this country is heading. &nb...

man i wish it was me mine is not able to be reversed stuck with it forever (((   sucks ya know my mom who says she thinks its cleaner old fashioned way good she can worry about 24 7 and i will take her normal bathroom habits and give her my bag can.t wear same kinda clothes i did before cause it sticks out a lot .   i wish which quack doctor to blame this whole cancer thing on the first place hope they enjoy their stay in hell makes me question where the medical profession in this country is heading. &nb...

If so, I'd sure like to hear from you!

Hi everyone<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ; /><o:p></o:p> I have had recent ileostomy surgery (permanent) in Oct 2010 after approx 20 years with Crohn’s.  My problem now is that although op went well, new life is great and I seriously don’t remember ever feeling this well , still confused ……has anyone had this surgery when fistulas were active and what was the result?  I had several active fistulas at the time of surgery and at this stage (3 mo...

Iv had my ilio. for some 7 yrs.  having this it blew our chance for having a child till I recoverred.  i also suffered for four years before it too.  So i am looking for some advice about trying to have  a intimate relationship with my wife and have a child.  ???      ;  Im going on 51 and she is starting her 40s so we are getting a late strart .  That is the qqueserion if we can though  So I need some advice  So anyone got any recom...

On April 18 I went in for my surgery.    I am left with about six inches of healthy colon, lysis of major adhesions (again), four anastomotic sections, and reversal of ileostomy.    Thankfully I had epidural this time!  Three days after surgery I threw a pulmonary embolism, so epidural came out and all the various protocols for that started.     Hospital stay of 10 days.     So happy to be home and in my bed. Lol.    &nbs...

Hey all. My first post on MAO. I'll be having reversal surgery in about three weeks. It's been a long six months. I've read some of the horror stories here, and sort of know what to look out for. My dr. says my j-pouch is somewhat stiff and should over time gain some flexibility. I'm wondering if anyone else was in that situation. I had a total IPAA. Ileo-pouch anal anastomosis (in case anyone didn't know). My last flex-sig was two weeks ago and my dr. recemmended the takedown based on my progress. Some risks involved, I know that going...

I had an ileostomey reversal a year ago. since then i have trouble having normal bms. its usually diarreha. last week i was admitted to hospital with sm blockage from scar tissue and since then having more diarreha than usual. I will be seeing the dr again next week for this. has anyone had the same problems with their reversal? at this time ive been very depressed and also my husbands going thru stress from all this. wondering if i should had not the surgery.

Hi, what kind of op  did you have Jackie 

Hello All Having had a total colectomy in 2012 as an emergency, I opted to have IPAA (J-Pouch Formation) surgery in August 2013. I suffer from a genetic Primary Immune Disease calle CGD and the docs did say that healing was more difficult for patients with this and warned me against the surgery. I am at greater risks of infection too but I decided to give it a go as I was really keen to "restore intestinal continuity" as they call it. Well, the surgery was very traumatic indeed. After 6 hours in recovery, with me constantly being given f...

KPBS has an article about a computer scientist who had a 3-D model made of the part of his colon that was going to be cut out. Access the article at http://www.kpbs.org/news/2017/mar/09/why-u c-san-diego-professor-planned-his-surgery-vir/. His surgeon used the model in preparation for the surgery and the 3-D image during surgery. The surgery was successful and he is recovering nicely. "It remains to be seen whether other bowel surgeons will want to incorporate 3-D imaging into their operating rooms. Ramamoorthy said she is enthusiastic...

I would like to know, what were the steps prior the revrrsal of colostomy? Did you have to drink a prep drink like the one.before a colostomy? I am having an end to end surgery, does that require a rehab for a certain amount of time? I know my type is.consideted major surgery, I guess if it were a loop, that is.considered minor surgery. Well any information would be highly appreciated.    Thank, Evelyn

Can the Da Vinci robotic surgery be used to do a total collectomy?

I recently had surgery for colon cancer first surgery was fine up until three days later I needed emergency surgery from complications of first one .I am cancer free by the way ,yaaaa. Anyways my question is after surgery I've notice I sweat under my underarms now band smell real strong , deodorant doesn't even help .why is this and is this common or am I going thru something else I am 50yrs old since June 8th very glad to have seen my bday. Lol well can anyone help?

I’m having my J pouch surgery in two days and my surgeon has explained that it will hopefully be a successful second and final step procedure. Because my colectomy was such an emergency, he didn’t form the J pouch then, and so he is going to hopefully form one in this surgery and connect it up all in one go.I’ve been reading on the internet (which I shouldn’t) and it doesn’t seem that anyone has it done this way. Everyone seems to have the J pouch formed in the first step and connected in the second. I’...

Has anyone experienced severe cramps and pressure around your stoma. Is this normal?

I have had a colostomy for 25 years now and for the last 2 to 3 years I have noticed blood spots in my rectal discharge. Lately However, more blood is showing up.  I also have a stoma lately mostly protrudes about 3 to 4 inches past my herniated belly. Anybody else having these symptoms by chance? Should I just go to Emerg to get a few tests or wait until I MIGHT be contacted by a specialist? Any help here would be of serious value. 

Hello I�m Richard. I am a relatively new member, but also new to using this message board. I really need some help please. I�ve had my colostomy a long time and am used to living with it now. However, I suffer from Urge Incontinence, which was caused by the colostomy surgery. I�ve got by with a good system for coping with it, but it�s worsening. I�ve got the medical side covered, been seen by urologist and about to be seen in the continence clinic, but feel it would really help if I could chat with others who are in the same situation. I ...

Can anyone tell me if they have had laperascopic ventral mesh rectopexy performed  and was it successful  My small intestine has collapsed and this can be used to lift it up  Don't get frightened anyone who is reading this and waiting for surgery I had a permanent colostomy done in 11 and a hysterectomy  a couple of years before and there isn't much left to keep things in place my colostomy op. has been a success can eat anything and never has a blockage didn't have cancer  have only just f...

Hi Peeps I hope someone can put me straight on this topic. I will at some stage have to have a colostomy for enduring FI following multiple surgeries on rectum for disease and recurrant fistula. I have now been told I have bladder and bowel (no suprise there) prolapse. This means the clock is starting to tick for an op of sorts. Will they do the bladder hook up op at the same time as the colostomy? I would much prefer it if it was all done in one hit but have not had the chance to speak to my surgeon yet. I cannot see the point of me h...

Please read my story at http://gofundme.com/3oqcro..... anyone have any advice for a brooke ostomy, needing the BCIR surgery, single mom, two kids who need their mom  to get back to life....any suggestions or advice would help so much...hope everyone is having a great summer....love you all leslie

had sigmoid colon removed in nov 2014. now the mess is falling apart and big hernia is developed allowing blockages. so there talking about maybe a reverale and abdomiable re enfocement. anyone tell me about this? good bad ugle?