Ostomy, Colostomy, Urostomy or Ileostomy Surgery

What Is Involved In A Hernia Operation?

posted by Anonymous

I had my urostomy some 20 months ago, and all is going well - except:- I have quite a large hernia, not just "behind" the stoma, but another to one side and lower down on the belly. There is no pain and very little discomfort, but it...

Views: 20818 Replies: 33

Ulcerative Colitis Surgery (permanent Or Temp Ileostomy?)

posted by Happy Cheeks

Hiya everyone. I am soon to have surgery for ulcerative colitis. I'm just very confused which surgical option to choose. - I can either choose to have a total colectomy with removal of rectum and anus and have a permanent bag. - I can ha...

Views: 17238 Replies: 32

Some Worries About The Operation

posted by undefeated1

Hello, I have my dreaded operation next week after a failed hemicolectomy last year which has resulted in an abdominal fistula. I wondered a few things: - is the stoma itself sore? The fistula and the skin around it is, and I am worried...

Views: 1204 Replies: 30

Surgery To Remove Rectum, Post-ileostomy.

posted by horselover

I have to have one last surgery to take out the rectum (can't leave it due to cancer risk) as I've decided not to re-attach. Haven't had any issues since my ileostomy 4 years ago and don't really want to go through the recovery and po...

Views: 49304 Replies: 28

My Recent Surgery Has My Husband Depressed

posted by tudibird

Yes, my subject line is correct. Although I am quite depressed about my new situation (ileostomy), what has happened has been that my husband has had a terrible time dealing with it all. Leading up to the surgery he was &qu...

Views: 9493 Replies: 28

2nd Obstruction Since March After Surgery

posted by Bunkie

anyone have trouble with obstructions? seems like this is going to be a part of my great new quility of sucky life. Had ilio in march..1st I had a partial obstruction a week and a half later..I was lucky that after 10hrs in hosp. and ...

Views: 16235 Replies: 26

Pre-surgery Jitters

posted by Anonymous

Does any one out there actually have a positive thought, story or reflection about living with a colostomy? I am scheduled to have a colostomy with anus and rectum removal on Jan. 16th 2014. Was diagnosed with stage 3 anal ...

Views: 10229 Replies: 24

Anyone Had 'open Mesh' Hernia Repair Surgery??

posted by lottagelady

Hi. Has anyone had surgery to their hernia which involved them putting the mesh in and then allowing it to close itself as tissue grow over it?? I believe this is one technique they use .... how long does it take and is it...

Views: 16814 Replies: 23

Postponed Surgery

posted by AD

I posted a while ago trying to decide whether I should consider an ileostomy. While I had scheduled the surgery earlier this month, I ended up postponing it until July 21. I'm still undecided as I try to weigh the alternatives. This may sound a...

Views: 10330 Replies: 23

Rectum Scar Tissue Itching 12 Years After Surgery?

posted by Telecaster

My rectum scar tissue has started to itch and feel strange recently, though there are no outward signs of any infection, it all looks as usual. It first started about 4 weeks ago, justy before I had a groin hernia op, and I was wearing a suppor...

Views: 15632 Replies: 23

Reversal Surgery

posted by Katy3943

Am wondering if anyone can share what to expect after reversal surgery? I've read too many horror stories about the pain from gas and severe and frequent bowel movements up to 20 times a day!!! Had ruptured appendix that almost killed me 4 month...

Views: 1941 Replies: 22

I Was Told Today That I Need To Have Surgery And A Colostomy Bag. I Am A Ultra-newbie.

posted by thefrog646

Hello, Are there any things I need to be advocating for with my surgeon that will make life better with a bag? Don't really know what is possible so Im asking what you have already found out. If you are wearing one, you know what you wish ...

Views: 1481 Replies: 22

Having Surgery... Questions

posted by Quietdreamer28

I'm having my second and hopefully last surgery this coming thursday (2/4). I had surgery Oct 2008 where I got my colostomy. I have had Crohn's disease for 16 years and it just got to the point nothing was working and surgery had to be done if I...

Views: 10340 Replies: 21

Exercise Post Surgery

posted by becrhomat

I'm not sure what to do about losing weight. I'm 2 months post surgery (colostomy) and would like to start exercising. Besides walking I can't seem to do a lot of twisting and turning. My skin is very sensitive to the adhesive ...

Views: 2351 Replies: 21

Home From Surgery

posted by janice

hi all! Thanks so much for the prayers. I am 12 days post op and finally starting to feel a bit better. They removed the rest of my colon, took down my mucas fistula, and removed part of my rectum. Pathology report came bac...

Views: 8205 Replies: 20

Post Surgery Questions

posted by Derek48

Hi I'm Derek from Dublin, Recently had colorectal surgery and I'm on here to try and understand the transition of the outcome of my surgery by hearing the opinions of others that have gone through similar surgery. One thing I've reall...

Views: 9897 Replies: 20

Skin Issues Since Surgery- Am I The Only One?

posted by NRG1022

Hello- I am new to this site. I hope I put this question in the right place. Anyhow, I have had my Illeostomy for 3 1/2 yrs now due to Rectal Cancer. I was in hospital for about 10 days. Well, when I left the hospital I had a rash aro...

Views: 7684 Replies: 19

Surgery To Remove The Rectum

posted by ange123

Hi, last yr in march i had an ileostomy due to my crohnes disease, i have had alot of set backs infections and constant bleeding from my rectum, My surgeon has recomended that i have the rectum removed surgery i don't really want but looks like ...

Views: 8784 Replies: 18

Surgery In Next Few Weeks

posted by Ro

Has any one out there had a complete pelvic exteneration? Im about to have one in the next few weeks. Would like to hear what your experience as been. I know that we are all different, but would still like to speak with som...

Views: 5968 Replies: 18

Bcir Procedure

posted by Roxy

Hi, has anybody had the BCIR procedure done, am thinking of doing this instead of a J Pouch. Also I have an ileostomy and my output is always very thick, I drink a lot of liquids and don't understand why, anybody have any ideas? ...

Views: 8182 Replies: 17

Diet Plan After Surgery

posted by carolgeb60

I am having the colon, rectum and anus removed. After the surgery what is the best way to start on your food. Maybe did you start out slowly and then add foods to it. Did some foods bother you so you waited and t...

Views: 5230 Replies: 17

I Am Six Months Post Surgery And Thought I Would Just Check

posted by pnwgirl1963

My smile says it all I'm super happy to be here Hi everyone :) It has been six months since I have had my original colostomy surgery due to diverticulitis, perforated bowel and septicemia. Life is good and I'm really doing ...

Views: 1623 Replies: 17

Surgery Date

posted by Gus

is the 15th of march. So all going well i'll be on the table some time that afternoon. Have my hernias fixed along with this weeping sinus that has plagued me for 4 years and i'll be ready to get to work with a flatter belly and no more aches.

Views: 6599 Replies: 16

Have To Have Another Surgery On Huge Granuloma.. Anyone Els

posted by bluebelgirl

hi guys, I'm 3 weeks out of hospital for a stoma revision which removed the stenosis, but failed to give me a better stoma cos the 1st op was so bodged. I had small granulomas before the revision, but the stitches aggravated it and it's spo huge...

Views: 9839 Replies: 16

Hernia Operation

posted by mooza

Hey every one , hmmm where to start had my 9th major operation for my 2 big bastard Hernias,only spent 5 days in hospital coz im very bad for hanging around in a hospital bed (smoker) so wasnt in my room barely at all had more fun 3 floors down ...

Views: 8403 Replies: 16

Maintenance Drugs For Crohn's Disease After Surgery

posted by Penguins7

My Questions is once Crohn's patients have had the ostomy surgery do you stay on Crohn's maintenance drugs? If so why?

Views: 7740 Replies: 16

Pressure On Bottom After Ostomy Surgery

posted by October Born

Good Afternoon, I have had IBSC my whole life and at 47 it finally took it's toll on my colon and had a full open colectomy in July of 2015 but I did not have an ostomy bag after that surgery. After that, things still weren't working right.&nbs...

Views: 2761 Replies: 16

Caused By Surgery Or Not?

posted by Rhian

Hi guys, I'm confused by my body - the background is: I've known a guy for about seven years, I used to see him standing very quietly with his mates at a night club I used to go to, and he'd occasionaly be looking at me, to cut a long story shor...

Views: 11664 Replies: 15

What To Expect Post Barbie-butt Surgery?

posted by beatrice

Hi all, Ok, got my date (again - was bumped the first time) for my rectum removal - Oct 25. (had ileo Dec 09). What can I expect when I'm at home, following the operation? I was told that this op will be more involved than my ileo (which was...

Views: 10103 Replies: 14

Ileo Surgery..before And After

posted by toodie

Hi All, let me begin by saying thank you for this community and the welcoming, supportive energy it provides. I suffered for years with ulcerative colitis (UC)..mostly sigmoid but sometimes pan. It finally came to surgery, or should I say, I fi...

Views: 10373 Replies: 13

Pouch Surgery

posted by Anonymous

hi i just had my pouch surgery done and am looking for tips to control the diarohea and diet before they join my bowel back. have read some horror stories and am getting worried that i may have made the wrong decision. ...

Views: 6481 Replies: 13

Back Pain After Ileostomy Surgery

posted by tudibird

I have never suffered from back pain until now. I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the ...

Views: 12868 Replies: 13

Anyone Have Serious Back Problems After Surgery?

posted by Jay

I recently had colon resection surgery where they removed some 14 inches. The surgery was about 7 hours and I couldn't get out of bed for 8 days. Come to find out I have 2 bulging disks that I didn't have before. The surgeon believes that the da...

Views: 5115 Replies: 13

Operation

posted by airforce1

Thought i would let you guys kow i am having the op on monday and they are going to move the stoma so after tom it off line for me am on morphine as have my husbands brothers wedding on sat i dont wont to miss it as all relatives from...

Views: 4272 Replies: 12

Looks Like More Surgery..possible Mets To My Colon

posted by janice

I have several fistulas but they also found a "mass". It's either scar tissue or mets to my colon. Won't know for sure unless he does surgery. Another stem to sternum, 4-6 hr surgery followed by chemo if it's malignant. He will take ou...

Views: 6356 Replies: 12

Need Surgery But Am Nervous

posted by tippitop

Hi lovely people, I have a problem with my stoma that needs surgical intervention,in essence it needs resiting as have fistulae which cause leakage and soreness. That in itself is possible to deal with, it's just the anaesthetic I am a bit ner...

Views: 5983 Replies: 12

A First Since My Surgery

posted by Laura59

I finally got up the nerve to take a hot bath..... I've been nervous to do so since the surgery. I figured tonite was my night to change wafer, so why not chance a bath. If it ruins the seal, no big deal. It wa...

Views: 5633 Replies: 12

Second Surgery In September Hernia And Mesh

posted by Anonymous

Going in for hernia surgery, its going to be the "stem to stern" incision again, the hernia is the size of a football above my belly button, they will do mesh and probably a reversal while I am open, I ha...

Views: 5328 Replies: 12

Countdown To Surgery

posted by singinac

It is November 1,2013 and my surgery is on the 14th. I'm trying so hard to be positive, but my fear is intense. I do not know yet if i will need a temporary or permanent ostomy. I go to the stoma nurse for markings and have final consult on Nove...

Views: 3981 Replies: 12

Operation On Wednesday 21.9.16

posted by Katerina.kits

hi everyone, i am new here. I have had UC for 12 years now though 6 of them have been in remission. On a routine colonoscopy low grade dysplasia was found. After 6 months it was decided I needed to have an ' laparoscopic ileostomy pouch f...

Views: 881 Replies: 12

Surgery

posted by elisabeast

I'm having surgery in two weeks. I'm not sure if they will be able to perform anastomosis - I'm hoping so. Two years since they removed my sigmoid colon. I have a lot of damage inside from where I walked around for so man...

Views: 729 Replies: 12

Having Surgery On Tues, Need Support

posted by Maryland Gal

Hey, I have posted before, but have not received any response. I will be having surgery to remove my large intestines. I already have a colostomy, but they will be converting it to an illeostomy. Due to the fact I have no m...

Views: 8673 Replies: 11

Reversal Surgery Scheduled - Can't Work Up Good Thoughts

posted by Anonymous

My reversal surgery is set for December 4. You would think I'd be celebrating but I am really scared. My last surgery almost killed me. Plus I do not hear a lot of great things about reversals. Are there any happy stories out there about rever...

Views: 10124 Replies: 11

Deciding On Surgery

posted by Army wife

Hello, I am new to this site. I would love any advice. I have had ulcerative colitis since 2009. I have not been in remission since April and I am on several medications. I have an appointment with a surgeon in a few weeks. I know that removing ...

Views: 4798 Replies: 11

Rectal Surgery Closure And Expected Recovery Time

posted by Hot for teacher

I had ileostomy surgery with a closure to the rectum at the end of October 2012. It is now six months later and the rectal wound has not closed and I still have pain and drainage associated with it. I used a wound vac for 6...

Views: 10491 Replies: 11

Surgery

posted by POLO

Is there anyone who can tell me about ileostomy. I have colonoscopy (stoma from my Large Intestine) Now the Surgeon is taking out the rest of my Large Intestine and portions of the Small Intestine. He said that the STOMA wi...

Views: 5118 Replies: 11

Post Surgery Pains

posted by Scord

Me again! i was just wondering what kind of pain is normal after 7 weeks from surgery? My scar is still very itchy to start with. I get sharp pains at times in my sides, abdomen and chest, especially when I am trying to get to ...

Views: 4241 Replies: 11

Sex With (or Without) Partner Post Surgery

posted by bukowski

There are several posts here about sex, so, I'm just adding another one. I've had my permanent ileostomy since 2015. I do not like it. I know that is surprising lol! But, it is what it is, and life goes on. After the surgery, I knew sex might be...

Views: 654 Replies: 11

Abdominal Pain After 8 Surgery's

posted by mooza

hi everone can anyone give some real advise about scar tissue pain??? I have had 8 abdominal surgery's the last being 2008 i have got unbearable abdominal pain i have been on high pain reief but have had enough i am going to pain management the...

Views: 7550 Replies: 10

Waiting For Surgery - Any Information Appreciated.

posted by pastorpatricia

I have a big decision to make soon. I have almost no bowel control.There are two surgeries that I can have - a colostomy which Iunderstand isn't a really major surgery or a muscle transplanted frommy leg which is a serious surgery. Any informat...

Views: 5735 Replies: 10

Surgery Tomorrow

posted by janice

Will be offline for awhile. Hopefully the mass is just scar tissue and not more cancer. They're taking the rest of my colon and taking down my mucas fistula. Will just be left with the iliostomy & tpn.

Views: 4225 Replies: 10

New Colostomy After Emergency Surgery

posted by florajo

I had emergency surgery a week ago. Had a portion of colon removed due to rupture from diverticulitis. Released from the hosp on Friday with only a small amount of liquid output from stoma. Since I've been home, I have been eating more solid foo...

Views: 8561 Replies: 10

Day Surgery For Revision

posted by mimirubie

hi all, am home after day surgery for a revision. this has got to be the sorest i have ever been. feels like a trampoline on my gut. any idea why it would hurt so much. but i am sucking it up and dealing. just ...

Views: 4685 Replies: 10

Surgery

posted by carolgeb60

I will be having my colon, rectum, and anus removed soon. I am scared but excited to get it over with. I know it will be tough using the bag but I will learn through trial and error. I do have a sense of humor.&n...

Views: 4244 Replies: 10

After Ileostomy Surgery

posted by pammer

I am 9 days after surgery. Nothing could have prepared me for this. The pain, not feeling well, the constant trips to bathroom. Its hard work. I have had leaks and dont know why. Not being able to do much for myself. They kept telling me in the ...

Views: 6064 Replies: 10

Ostomy Surgery Questions

posted by thebabymaker

My 11 year old daughter has been suffering from gastrointestinal issues for several years now, and recently went in for another test. From the results of this test, the doctor came out and told me that he wanted her to be admitted into the hospi...

Views: 4542 Replies: 10

Reversal Surgery

posted by bamatex

Just wanted to report that I have just completed the first of two surgeries needed to complete my reversal/reconnection. Actually I had considered it for years & had already decided not to undergo the surgeries. I had a good system & had...

Views: 7248 Replies: 9

Barbie Butt Surgery Sept 2

posted by beatrice

Well, I got a call today with the surgery date. Why am I suddenly not feeling so brave?? The rectal stump has been nothing but problems and I know it has to go (had ileo Dec 09). Looking at the positives ... and please send good thoughts my ...

Views: 9450 Replies: 9

Fear Of My New Surgery

posted by soapie

Hi everybody! It's been ages since I last posted but I finally have a new computer that I can actually use... So in 2 weeks I'm going in for more surgery, a reversal if possible and for sure a hernia repair with mesh. I had my colostomy 3 years ...

Views: 6697 Replies: 9

Going In For My Takedown Surgery Tomorrow

posted by Brooklyn kara

Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and futur...

Views: 3556 Replies: 9

Surgery Recovery

posted by Susans53

I just had a Ileostmy due to a failed jpouch. I'm 2 weeks out. Sorry, I have no patience but I'm just so tired. Beyond tired, I just want to get back to life again. How long is a recovery? And what can I do to speed things up?

Views: 2034 Replies: 9

Surgery Is Completed And Recovery Is Done....(o:

posted by dee05

Hi everyone Im back... I had my take down surgery on May 6th and I now have a permanent colostomy bag... they closed the rectum and took down the pelvic pouch./ I am very happy with my decision. It was a tough recovery but now I am he...

Views: 3719 Replies: 8

A Poem I Wrote Right After My Surgery.(maybe U Can Relate)

posted by Txgirl

MY BODY My body fails me, My mind never. My body scares me. My soul is comforted. My body hurts, always. My thoughts touch me softly. My body is angry with me. My Lord, always forgives. My body has turned on me. In my heart, I have n...

Views: 4439 Replies: 8

Surgery Cut Into Old Scar Tissue?

posted by warmknight

I have crohns and had a colostomy 2 years ago. Since then the crohns has spread to the remaining tranverse colon and is not responding to medication. One option is to reverse the colostomy, remove the remaining colon and have a perman...

Views: 12649 Replies: 8

Surgery Date Moved Up

posted by janice

They moved my surgery to next Wednesday (Apr 13th). Looking forward to only having ONE ostomy!

Views: 3846 Replies: 8

Ileostomate With Impending Shoulder Surgery: Help!

posted by LilyJ

I have an ileostomy and need to have shoulder surgery. Has anyone else out there experienced having use of one arm with their ostomy (for a limited time of course). I have had my ileo since 1972, but I'm stumped over the after care on...

Views: 6448 Replies: 8

Help Advice Regarding Family Members Surgery Treatment.

posted by in need

Hi everyone, ive joined this forum hopefully to get advice for my dad. I would like to know if it is common to recieve a colostomy pouch after surgery to remove one of his kidneys? He had the operation through keyhole surge...

Views: 3522 Replies: 8

Wound Care After Reversal Surgery

posted by Jenniee

I have just last week had the final part of my reversal surgery and am now fully connected, (which am I very glad about) I was unaware till after the surgery that this meant I would have an small open incision/hole left where my stoma used ...

Views: 11371 Replies: 8

Surgery

posted by charleston guy

Good morning Ostomates, Today quite girl is having her surgery. Let's wish her a successful operation and a speedy recovery. We as Ostomates have been there. Let's Pray that all goes well for her.

Views: 1741 Replies: 8

More Surgery For Me!

posted by Pami 22

Hi everyone dont know if im doing this in the right place but here goes, got some news and a few question's, let me explain first....I have a loop colostomy (since may 2010) recently i have had lots of problems with it. Leaking lots and often fr...

Views: 4974 Replies: 7

Post-surgery Restlessness Or Can't... Sit... Still...

posted by matts12

Howdy, It's been just about five months since my surgery now and I feel great. (Can I git a 'hallelujah!' haha) I feel better than I have in years. Only problem is this has lead to a large degree of restlessne...

Views: 5072 Replies: 7

Stoma Surgery

posted by angelafeatherstone

Hi, I would like to know if anyone has had surgery on their stoma? My stoma keeps retracting into my stomach which is very painful. I had my ileostomy 2 years ago (Crohn's). My surgeon is operating on 31.10.2011, but I don't really know what she...

Views: 3853 Replies: 7

Reveral Surgery

posted by CDB3

I have to change my ID to CDB4 just had my reversal surgery yesterday... So far so good

Views: 4074 Replies: 7

One Woman's Journey: Surgery, Sex, And Painful Intercourse

posted by baggette

At age 37, Linda Brashier battled Stage 4 cervical cancer, undergoing grueling rounds of chemo and radiation. Slowly, she beat back the cancer and recovered, but realized she would probably never have sexual intercourse again. The scar tissue in...

Views: 8149 Replies: 7

Bowel Movements After Surgery

posted by quiz

hello just need some answers about having bowel movements I have had my Ilostomy for 2 years with only some bloody mucus coming out, But on feb 1st my doctor went in and scraped the walls of my rectum. But know i am having bowel movement what i ...

Views: 5668 Replies: 7

Operations.

posted by Anonymous

Had an ileostomy nearly 6 years, at the time of the operation, the internal pouch (20 years in place) was not removed, but no longer used. It has now started to show signs of deteriorating, and the big question is,- do I risk another risky oper...

Views: 2692 Replies: 7

Question About Surgery

posted by sadie31

Hi there guys, my name is sadie im 31 years old and have had chrons for 14vyears and a illeostomy for 5 years, I was told at some point that this could be reversed , I have been going round circles of consultations and colonoscopies over the las...

Views: 2428 Replies: 7

Post Surgery

posted by jessica16

I had surgery 4 weeks ago and now have temporary ileostomy. My question is has anyone suffered from super sensitive skin across abdomen after surgery. I can't bear to put clothes on. Lying flat gives me some relief but I wondered if anyone had e...

Views: 714 Replies: 7

Should I Still Feel Exhausted On Occasion Three Months After Surgery?

posted by HungryHamster

Hello, I had my emergency colectomy on 17 March this year and I was in quite a state for a few weeks leading up to that and so I was warned that my recovery would take some time. I was extremely malnourished, weighing just over 50kg but being a...

Views: 254 Replies: 7

J-pouch Surgery

posted by Franicaa

Ok, this is my first ever forum post! But it's good news I've contacted my surgeon (well left a message with his secretary) about getting my ileostomy reversed! If anyone already has a pouch I'd be glad to hear from you as I am a little bit n...

Views: 6915 Replies: 6

Had Hartmann's Procedure Done But...

posted by elli bean

Well last month I was on here asking about complications associated with the Hartmann's procedure...I had my surgery last week. The takedown of the transverse loop went fine and they created an end sigmoid colostomy...but it's not emptying. At f...

Views: 8090 Replies: 6

Surgery

posted by airforce1

Hi all this will be my last post for a while just spring cleaned before going in,packed bag and just waiting will be pleased when it is over morphine tabs make me stay awake all night,then tired during day.Just planted some lettue and parsley ...

Views: 3095 Replies: 6

Having Surgery On The 9th

posted by vanessavy

Well I have been on a roller coaster! Was going to have a jpouch. Met with many doctors but the 3rd tested one of my 100 polyps and it was a T1 tumor in my rectum so can't keep any of it with the chance it might come back. So I am off...

Views: 3787 Replies: 6

Colostomy Reversal With Hernia Repair Surgery

posted by MJMuraco

My reversal and hernia surgery is tomorrow, Feb 3rd! I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now. It's funny how food looks and smells so great when you can't have it.&nb...

Views: 5611 Replies: 6

Surgery

posted by daveo

Hi all! This is my first posting on this forum, and I am brand new member! I have been a UC sufferer for over five years now, and have had so many bad experiences. The flare ups are bad and take me ...

Views: 3737 Replies: 6

Bladder Pain After Jpouch Surgery

posted by rachel_louise

Hiya I had a emergancy colectomy last year due to UC, I decided to go for a jpouch and had my rectum removed & jpouch formed 3 weeks ago (ill have take down surgery in afew months) I'm recovering very well no problems at all apart from reall...

Views: 4110 Replies: 6

Shoulder Surgery With Ostomy

posted by littlered1

I am having major shoulder surgery in a few weeks. I have had a continent ostomy for over 30 years. and besides the obvious stress about the surgery, pain, not being able to move or work, I am very concerned about handling my ostomy. It requires...

Views: 3344 Replies: 6

When Is It Time For Surgery.

posted by chuckduck

been diagnosed with crohns, three years! I have not taken the meds. asacol, imuran ect, have tried asacol and one other, but got irregular heartbeat and stopped after two/three weeks, have nt yet taken imuran! my new doc prescribed it! read side...

Views: 2897 Replies: 6

Joint Pain Post Ileostomy Surgery

posted by Dieseldog

Hello Post prednisone medication I have been experiencing rather severe joint pain. Has anyone else experienced this? If so, can you explain why this is happening and how long I should expect it to last? Thanks Dal

Views: 2620 Replies: 6

Post Surgery

posted by l15484

I am going into hospital next week to have my ileostomy made permanent and to get a barbie butt. I was wondering how long before people felt comfortable sitting for long lengths of time. I really love going to the cinema but worry sitting would ...

Views: 745 Replies: 6

Ostomy Surgery

posted by drfields24

Hello it's me again ... I hope and pray everyone is well. I have a family member my father to be exact that really doesn't understand the highs and lows of day to day function. I when to a barbecue on the forth of July had an accident I was disc...

Views: 184 Replies: 6

What Can Go Wrong With A Hernia Operation?

posted by Anonymous

Having only started reading the postings on this forum a few days back, forgive me if I am asking a question already raised. I had a urostomy about 18 months ago, and some six months back noticed a swelling to the side and below the stoma. Surg...

Views: 7815 Replies: 5

Getting Ready For My Surgery...

posted by Anonymous

I've been reading these posts and trying to find out everything I possibly can before going for my colostomy. I only know now I will have the bag. I have SO MANY questions I didn't think about when the doctor told me the news. And many of them I...

Views: 4574 Replies: 5

Tail End Surgery

posted by craftytaff

I am due to have my rectal stump removed on the 30th November 2010 I am starting to get very anxious about having surgery again ( I had my ileostomy 8 years ago ) can anyone reasure me how the recovery is after I would appreciate any advice ?

Views: 5341 Replies: 5

Are There Any Successful Hernia Operations?

posted by Anonymous

Having an enormous hernia following a urostomy about three years ago, I am due to go back in to hospital in some four to six weeks time to have it "corrected" using the mesh method. However, reading a number of blogs on this forum, I ...

Views: 4302 Replies: 5

Stoma Revision/resite Surgery----anyone Experienced This?

posted by kimmer

well, finally saw my new specialist and he's fantastic. It's been decided that my stoma is too malformed to fix with any appliances on the market currently....I've tried absolutely everything. He said the stoma will need revision and ...

Views: 12359 Replies: 5

Reversal Surgery Too Soon ???????

posted by sharon82657

Hello Everyone, I just came across this site late last night and am so glad I found it. Husband admitted through the ER on March 31st. He unexpectedly experienced a perforated colon due to diverticulits which resulted in having surg...

Views: 4945 Replies: 5

Ostomy Reversal - Hartmanns Procedure

posted by Gemmas80

I have bee rubbish on here - only made a few posts and then vanished to 'normal' life but I think that's a good thing. I am a 33 year old professional single mum of one and I coped pretty well I think with having a stoma for 2 years.&...

Views: 5110 Replies: 5

Day 15 After Surgery

posted by pammer

Not having a good day. Just not feeling well. Kept trying to go in chat room but no one is ever there. I will try to have a rest and hopefully connect with someone soon.

Views: 2526 Replies: 5

Reversal Surgery

posted by ShirleyR45

Hi my name is Shirley. Looking for reversal surgery experiences. I had an ileostomy surgery 3/2016 after a failed resection surgery. Planning reversal for August. I have Crohns disease.

Views: 757 Replies: 5

Due My Surgery For An Ileostomy, I'm Really Worried.

posted by Maz

Hi, I'm new to this site and would appreciate some advice from people who have had ileostomy surgery. I would like to know anything that might help me before my operation. Is it extremely painful? Should I stop eating beforehand? How long is th...

Views: 802 Replies: 5

Reconnection Surgery- Any Tips?

posted by Ruth56

In a couple of weeks I will have reconnection surgery. Right now I have a temporary stoma. An illiostamy.

Views: 257 Replies: 5

Rectal Stump Removal Years After Colostomy Surgery. What To Expect During And After Surgery And Recovery Time

posted by Debbiedo

Help please awaiting removal of the rectal stump as bleeding continued since permanent colostomy surgery due to severe crohns. Just anxious as been waiting on Urgent list since December 2015 meant to have it yesterday was all gowned up ready the...

Views: 227 Replies: 5

Concerns Regarding Surgery

posted by MHY

Hello all. I am a 60 yr old male who has had a mild form of colitus for about 20 years now. For 2 years I have been on remicade which has helped but not totally brought me into remission. I work in an office environment and have liv...

Views: 245 Replies: 5

Having Surgery Oct 26 - Ileostomy

posted by Catwoman

I currently have an ileo-anal anastomosis and will be having elective permanent ileostomy on Oct 26. I had a temporary ileostomy back when i had my first surgery 30 years ago. I remember how liberating it was after 3 years of full-fl...

Views: 97 Replies: 5

Surgery Date Is This Week

posted by pilatesgirl

Hello, I am scheduled for my ileostomy september 20. I was wondering if anyone could share with me their experience of the actual surgery and days after? I will be going to the university of washington. I have h...

Views: 3885 Replies: 4

**second Surgery To Relocate Ileostomy-whoa Advice Is Needed

posted by Anonymous

Hello This is my third question to this forum since I found it very useful and so many good people offer great advices. As communicated before, my mom had a TME surgery (permanent ileostomy) about six weeks ago; currently my mom is still hosp...

Views: 7829 Replies: 4

Having Surgery To Convert Colostomy To Ileostomy. Have ?'s

posted by Maryland Gal

Hi all, I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work. I know I ha...

Views: 5873 Replies: 4

Surgery Number 2!

posted by wookie2005

Well i am now 2 weeks post op from my 2nd surgery to create a Permanent Iliestomy, as for how i am going i feel that i am GREAT was only in hospital for 5 days, but after being discharged things started happening too me like my entire body swell...

Views: 2808 Replies: 4

No Matter How Long Since Your Surgery, Still A Learning Exp.

posted by Celeste

I've had an illeostomy for 7 years, and wear a 2 piece convetec appliance Went to my daughters Parent/ student orientation in Galveston this past weekend. Sorta like a mini vacation too. We did alot of walking and enjoyed the sand and ocean an...

Views: 3569 Replies: 4

Pre-surgery Exercise

posted by Anonymous

I'm awaiting surgery for a colostomy reversal on November 24th next. This is what I always wanted in the end, but I have no problem with having my stoma. As a matter of fact I've become quite used to having it now. What I'd like to know is wheth...

Views: 3092 Replies: 4

Opening Of Old Surgery Wound

posted by Opa Ray

More than 2 years after my operation and have been fitted with a Ostemy bag my old surgery wound has opened again. Most likely after a few good coughing spells. Had the Medical Nursed visiting me every 2 days until lthe wound closed again. And o...

Views: 3127 Replies: 4

After The Operation

posted by Rhian

Hi folks, well I've had a colostomy for over three years, but struggled with controlling the crohn's, had lots of bleeding, watery output for months, despite strong meds including 'Humira'. I went for a regular appointment to see my IBD nurse ju...

Views: 3256 Replies: 4

Pain With Stoma Surgery 9months On

posted by Verdun

Can anyone tell me why my stoma is sore and painful and I have severe back and arm pain any thing will help me thanks

Views: 2209 Replies: 4

Just Had Surgery

posted by northeyalan

Hi all I am new to all this so just thought I'd try this site out. My name is alan and I have just had surgery and had and ileostomy formed and now gave a bag. 4/4/14...... I am. Finnaly home and feeling a lot better. I am just after advice o...

Views: 2530 Replies: 4

Rectal Area Surgery Drainage.

posted by becky55

I have had Drainage from here since my surgery, a year and 5 months ago, is this normal, will this ever stop " ! " ?

Views: 2107 Replies: 4

Reversal Operation

posted by Anonymous

hi all, wondering if anyone would like to share stories re: successful reversal operations. Had emergency colostomy Sept 20/16 for perforated colon (diverticulis) with plans for reversal in next 4-6 months... have read various stuff about this ...

Views: 507 Replies: 4

Rectum Removal Surgery (barbie Butt) Recovery Time?

posted by Firefox

Hi I am new to this site, I had a colostomy last march and have made out great, this was done because of chronic UC, they left the rectum with the idea I could have a reversal. I had pretty much made up my mind to not have a reversal becau...

Views: 607 Replies: 4

Post - Ileo-anal-procto-colectomy Surgery And Bike Riding

posted by jae03753

Hi all, Any suggections regarding a more comfotable bike ride? With no rectum and anus, it feels like my cocyx is reting on the seat post. Bike seats, in geneal, have always been uncomfortable. I have tried a gel seat cover with little relief. ...

Views: 120 Replies: 4

Got To Have More Surgery - Little Bit Nervous

posted by LilacFaerie

Hi I got a temporary sigmoid colostomy done mid November 2010. It saved my life. However, what was temporary has just become permanent and within 2 weeks my doctor wants to operate again. She intends to turn Tomi from a loop colostomy to a end...

Views: 3338 Replies: 3

Brock Lesnar Surgery

posted by SigmoidFreud

I admit that I watch MMA from time-to-time although not a WWE fan, however. Since my surgery in October 2010 I have read how there is still stigma to an ostomy; how most or many have to struggle how to tell someone or whether to do so...

Views: 6451 Replies: 3

Fertility After Reversal Surgery Advice Needed!

posted by Anna O

Hello ladies and gents, I've seen some really amazing responses in these threads and am both very happy and reassured to know there are so many people willing to offer their support and advice; this website is a valuable resource! I'm hoping...

Views: 5088 Replies: 3

Colectomy, Healing Post Surgery

posted by CALYPSO

Has anyone been left with an open incision following surgery? I had a Colectomy in June 2011, the incision was not closed and quite a size about 6cm round and 4cm deep, the surgeon said he wanted it to heal from the inside out. 3 months in hos...

Views: 3155 Replies: 3

Surgery And Recovering

posted by pitterpatter

I have finally had j pouch surgery on feb 25, am still in the hospital (nursing home) and this was the hardest thing to endure in my life. They had to remove my uterus because of fibroids and it was in the way before the did the other...

Views: 2369 Replies: 3

Possible Hernia After Ileostomy Surgery

posted by tudibird

Looking for some advice. Had ileostomy surgery 11 days ago and now that I am home have noticed a bulge to the left of my stoma which is quite painful. I should mention I had this bulge after surgery but the sharp, burning p...

Views: 3388 Replies: 3

Diet Problems Post Surgery

posted by Feff

Hi all, I had a subtotal colectomy in Feb 2011 due to UC and have recently had reversal surgery to have the j-pouch formed. Im now 7 weeks post op, had a problem with a couple of infections (a water infection caused by the catheter and one at th...

Views: 2888 Replies: 3

Prostrate Surgery Or Radiation

posted by ostomy71

Recently diagnosed with prostate cancer. I was looking into complete removal of my prostate but have scar tissue in the area from ileostomy and rectal resection done 47 years ago and then a revision done in 2013. My question :. Have any ot...

Views: 86 Replies: 3

1 Month After Surgery - Feeling Weak And Not At All Well

posted by Ileo1

Hello, everyone. I'm hoping I can get some answers as I'm very concerned with my situation. I had loop ileostomy 4 weeks ago. This was as a diversion from my Jpouch which failed. In last few months, I started to lose lot of weight from my illnes...

Views: 758 Replies: 3

Just Had A Dissection Surgery

posted by NJKid1998

Hello my name is John I just got a dissection surgery they took out my large intestine also my colon also they made J pouch I am about one week into my 8 weeks until I go for my second surgery. Today was going good I don't think I ate as much ma...

Views: 582 Replies: 3

Ilestomy Surgery Nov 10th. Update

posted by Sis1949

I had my surgery on Nov 10th. She did a loop ilestomy. Surgery went well. The third day was my worst so far. Alot of bloating and being unfortable. My stomach is still bloated but they told me it should go away.&nbs...

Views: 419 Replies: 3

Getting Back To Life After Surgery

posted by JayneK

I had an ileostomy a year ago, but the first one failed and I had to have another surgery for that two weeks later. Three months after that my ileostomy failed again, so I had another surgery. A few months later I had a fourth surger...

Views: 301 Replies: 3

Reversal Surgery Soon And Consultation Tomorrow

posted by HungryHamster

Hi everyone, I have my J-pouch surgery on November 23, so about six weeks from now. Tomorrow is my final consultation with my surgeon before the surgery, but because of uni I haven't given myself any time to think about the surgery very much. I...

Views: 193 Replies: 3

Major Problems W/surgery, Surgeon And Pain...help

posted by JCatGuy

I originally posted this question but in the wrong section, so a member wrote to me and suggested that I enter my post in this section, as she also mentioned that sometimes actual "Ostomy Nurses" reply as well. Anyway, read...

Views: 3607 Replies: 2

1 Year On From Surgery

posted by woody

Today is my one year annivesary from my ileostomy surgery. I would like to this opportunity to say thank you to all on this site for their helpful tips and hints. I have been very fortunate to eat all the food I ate prior to surgery. I hav...

Views: 2135 Replies: 2

Reversal Procedures - How Many?

posted by Anonymous

I have heard from some souls that they have had their reversals repeated. how soon after the first reversal was the second and the third? What was the rason to re-do the reversal. It has been a year a...

Views: 2766 Replies: 2

More Surgery

posted by jjjnettie

Here I am , one week out after yet another round of surgery. The surgeon couldn't fix the kink in my colon, where it comes through the hernia mesh, so I need to manage on a high fibre diet to prevent any blockages. The rest of the surgery was pr...

Views: 2302 Replies: 2

Advice On Colostomy Reverse Procedure

posted by Anonymous

I have a friend who had a very serious case of colorectal cancer. Much of his tissue was removed leaving him with a colostomy. Are there any clinical trials that use stem cells to grow new organs in that area? Wh...

Views: 3032 Replies: 2

Ureter Stints Before Reversal Surgery

posted by notexpectingthis

Hey Yall - My surgeon said that after I am knocked out for the reversal that a urologist will place stints in my ureters so he can be certain to visualize them while he is fixin me up & they will come out while as soon as my surgery is com...

Views: 3824 Replies: 2

Complications From Hernia Under Stoma Surgery

posted by Cnetter

I had my stoma put in April, 2011. (I had Ileal Conduit ByPass Surgery) In August of this year, I developed 3 hernias; the largest one was under my stoma. The doctor placed a large piece of mesh in my abdomen. (I have had 37 surgeries in the pas...

Views: 2666 Replies: 2

Planta Facitits Operation Re Crohns

posted by mooza

DOES ANYONE HAVE BAD FEET I HAVE HAD CHRONIC CROHNS FOR YEARS NOW TOO MANY OPS ... I HAVE HAD 26 INJECTIONS AND SEVERE FOOT LEG CRAMPS SO ANYONE HAD THIS OP DONE DOC SAID I CAN WALK STRAIGHT AWAY DONT SOUND LIKE THATS RITE ?? ANY INFO I...

Views: 1500 Replies: 2

Bleeding And Now 7 Months Out Of My Second Surgery

posted by tknight1

They tried the reversal on me in June and it did not works so I had my second ileostomy on July1. I am now 7 months out of surgery and I have started back bleeding from my rectum again. I do not know if it is becau...

Views: 1524 Replies: 2

New Medical Problems After Surgery

posted by Family12

Hello, I had a dr. appt with my family dr first time after my surgery today. I was suppose to have it in may. I have blood work done 2 weeks ago, so when i go in mya he would have them. Howver, they called me yesterday ...

Views: 1786 Replies: 2

Post-rectal Removal Surgery Soreness

posted by Rhian

Hi everyone, has anyone any ideas how to cope with the bad soreness after rectal removal please? I had my large intestine removed three years ago, leaving my rectal stump. But for over a year have had blisters and bleeding. I finally had my rect...

Views: 2166 Replies: 2

Reversal Surgery

posted by precious baby

my reversal surgery is coming up. ive had a ostomy for 16 months. i had to wait a year post op before the insurance kicked in. its painful i had no underlying heath issuses besides a 14 pound tumor removed that had broken through my intestines.i...

Views: 2141 Replies: 2

2nd Surgery. Redoing Ostomy

posted by Sask girl

Hi all, ive just spent the last month in hospital due to an abscess due to Chrons On IV meds but they are not. Doing the job. I am opting to have surgery to remove the abscess and a 2nd fistula. The surgeon will have to redo my ent...

Views: 2184 Replies: 2

Colostomy Reversal, Error In Procedure

posted by Anonymous

i'm a newby so please make allowances. Last August I had my reversal. Went home after a few days. The aperture (I call it my shrapnel wound) was left open so that it healed from the inside. After about four weeks I went back to the surgeon and ...

Views: 956 Replies: 2

Thoughts Before And After Surgery!!!!

posted by Angelicamarie

i had chronic diarreah for one year and a half and all the meds my doc put me on didn't help so he sent me to see another gi doc who said he could get rid of diareah, didn't happen well my gi doc called my neurologist to see if he would give mor...

Views: 581 Replies: 2

Operation

posted by pete b

Hi all you lovely people.....A question for some of you? I'm due to go in for another operation to fix my stomach muscle (insisional hernia) caused by prior operations for colitis....I had an illeostomy in 2014. I'm going to have it done...

Views: 440 Replies: 2

5 Weeks After Surgery - Loop Ileostomy

posted by Sis1949

Its been 5 weeks since my surgery. Things are going ok. I only had one issue with a bag leak. But I do have another issue that I'm concerned with. When I get up in the morning I feel fine, but after moving around for about an ...

Views: 449 Replies: 2

Urostomy Surgery Video

posted by pphild

As strange a this may sound, could anyone tell me where i can download an actual dvd of a urostomy surgery. I have searched everywhere I can thinkof but to no avail. I wouldlike to watch what surgeons actually did when I ha...

Views: 4405 Replies: 1

Reversal Surgery

posted by Anonymous

man i wish it was me mine is not able to be reversed stuck with it forever ((( sucks ya know my mom who says she thinks its cleaner old fashioned way good she can worry about 24 7 and i will take her normal bathroom habits and gi...

Views: 3524 Replies: 1

Reversal Surgery

posted by Anonymous

man i wish it was me mine is not able to be reversed stuck with it forever ((( sucks ya know my mom who says she thinks its cleaner old fashioned way good she can worry about 24 7 and i will take her normal bathroom habits and gi...

Views: 3238 Replies: 1

Anyone Had Nissen Funduplication Surgery And Colostomy?

posted by Anonymous

If so, I'd sure like to hear from you!

Views: 2526 Replies: 1

Fistulas Post Surgery???

posted by Almo68

Hi everyone<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ; /><o:p></o:p> I have had recent ileostomy surgery (permanent) in Oct 2010 after approx 20 years with Crohn’s. My proble...

Views: 3297 Replies: 1

Trying To Have Children After A Iliostomy Surgery??

posted by Mart

Iv had my ilio. for some 7 yrs. having this it blew our chance for having a child till I recoverred. i also suffered for four years before it too. So i am looking for some advice about trying to have a...

Views: 2556 Replies: 1

Reversal And Other Procedures Complete ;)

posted by Laura59

On April 18 I went in for my surgery. I am left with about six inches of healthy colon, lysis of major adhesions (again), four anastomotic sections, and reversal of ileostomy. Thankfully I had epidur...

Views: 2288 Replies: 1

Take Down Surgery Scheduled

posted by Anonymous

Hey all. My first post on MAO. I'll be having reversal surgery in about three weeks. It's been a long six months. I've read some of the horror stories here, and sort of know what to look out for. My dr. says my j-pouch is somewhat stiff and sho...

Views: 1715 Replies: 1

Promlems Since Surgery

posted by cherylem

I had an ileostomey reversal a year ago. since then i have trouble having normal bms. its usually diarreha. last week i was admitted to hospital with sm blockage from scar tissue and since then having more diarreha than usual. I will be seeing t...

Views: 1771 Replies: 1

Operation?

posted by Jackiee

Hi, what kind of op did you have Jackie

Views: 418 Replies: 1

Anyone Had Pouch Excision And Anus Closure Surgery ........ Anyone?

posted by PhoenixRising

Hello All Having had a total colectomy in 2012 as an emergency, I opted to have IPAA (J-Pouch Formation) surgery in August 2013. I suffer from a genetic Primary Immune Disease calle CGD and the docs did say that healing was more difficult for p...

Views: 313 Replies: 1

This Uc San Diego Professor Planned His Surgery In Virtual Reality

posted by annofsd

KPBS has an article about a computer scientist who had a 3-D model made of the part of his colon that was going to be cut out. Access the article at http://www.kpbs.org/news/2017/mar/09/why-u c-san-diego-professor-planned-his-surgery-vir/. H...

Views: 284 Replies: 1

Pre Surgery

posted by jhudson1963

I would like to know, what were the steps prior the revrrsal of colostomy? Did you have to drink a prep drink like the one.before a colostomy? I am having an end to end surgery, does that require a rehab for a certain amount of time? I know my t...

Views: 228 Replies: 1

Da Vinci Robotic Surgery

posted by Rider1000rr

Can the Da Vinci robotic surgery be used to do a total collectomy?

Views: 166 Replies: 1

After Surgery

posted by Valgal

I recently had surgery for colon cancer first surgery was fine up until three days later I needed emergency surgery from complications of first one .I am cancer free by the way ,yaaaa. Anyways my question is after surgery I've notice I sweat und...

Views: 178 Replies: 1

Urge Incontinence And Colostomy Surgery

posted by Anonymous

Hello I�m Richard. I am a relatively new member, but also new to using this message board. I really need some help please. I�ve had my colostomy a long time and am used to living with it now. However, I suffer from Urge Incontinence, which was ...

Views: 2896 Replies: 0

Looking For Answer About Mesh Surgery

posted by Anonymous

Can anyone tell me if they have had laperascopic ventral mesh rectopexy performed and was it successful My small intestine has collapsed and this can be used to lift it up Don't get frightened anyone who is readi...

Views: 1629 Replies: 0

Pending Colostomy For Fi And Surgery For Prolapse Bladder

posted by bobcat

Hi Peeps I hope someone can put me straight on this topic. I will at some stage have to have a colostomy for enduring FI following multiple surgeries on rectum for disease and recurrant fistula. I have now been told I have bladder and bowel (no ...

Views: 1841 Replies: 0

Bcir Surgery....

posted by wouldyouforrme

Please read my story at http://gofundme.com/3oqcro..... anyone have any advice for a brooke ostomy, needing the BCIR surgery, single mom, two kids who need their mom to get back to life....any suggestions or advice would help so much....

Views: 1666 Replies: 0

Mid Line Hernia Surgery Anyone?

posted by labrat

had sigmoid colon removed in nov 2014. now the mess is falling apart and big hernia is developed allowing blockages. so there talking about maybe a reverale and abdomiable re enfocement. anyone tell me about this? good bad ugle?

Views: 710 Replies: 0

Ostomy Surgery (Colostomy, Ileostomy & Urostomy)