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41,405 members
Mar 11, 2010

One Year After Cancer: A Journey of Fear, Recovery, and Hope

This topic is about a person reflecting on their journey one year after being diagnosed with colorectal cancer. They underwent surgery, lived with an ileostomy for seven months, and experienced chemotherapy. Now, they are celebrating a successful ileostomy reversal and looking forward to the future. Here are some insights and advice from their experience:

- The reversal surgery took place during a challenging time, with severe weather conditions causing power outages. Despite these difficulties, the surgery was successful.

- After the surgery, the person experienced unexpected faecal incontinence due to pelvic nerves being affected during the procedure. Initially, fear of a failed reversal kept them from seeking help, but a visit to the surgeon provided reassurance. The surgeon explained that nerve healing takes time, and continence has since improved significantly.

- The person now feels pain-free, hopeful, and grateful, especially for the support received from the online ostomy community during chemotherapy.

- They have donated all unused ostomy supplies to Haitian relief efforts, showing a desire to give back and help others.

- Pathology reports from the original surgery showed no signs of cancer, and blood work remains normal, leading to a cancer-free status.

- To celebrate and express gratitude, they plan to take their mother on a two-week trip to Hawaii, acknowledging her support throughout the year.

- A friend’s positive outlook on life after a successful reversal has inspired them. The friend chooses not to let the past define their future, and the person finds their own memories of living with an ileostomy fading.

Here are some pieces of advice and insights they offer:

1. Don’t hesitate to reach out for help after surgery. Whether it’s the online community or your medical team, support is available and can provide reassurance.

2. It’s common to feel emotionally withdrawn during illness, but accepting support from others can aid in recovery.

3. Focus on the future and embrace new opportunities, such as travel or hobbies, rather than dwelling on past experiences with an ostomy.

4. Celebrate milestones, whether big or small, to reinforce hope and acknowledge progress.
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