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Sep 13, 2023

Post-Ileostomy Complications - Seeking Advice and Support

This topic is about a person who recently had an ileostomy and is experiencing complications, including blockages and severe abdominal pain. After undergoing emergency surgery to address these issues, the person and their partner are seeking advice on recovery and managing these challenges. Here are some helpful insights and advice shared by others who have faced similar situations:

1. Diet and Intake Management
- Stick to clear liquids or very soft foods until a healthcare professional gives the go-ahead to try other foods.
- Make sure to drink plenty of fluids to stay well-hydrated.
- Chew any solid foods thoroughly to help prevent blockages.

2. Monitoring and When to Seek Help
- If severe pain continues and there is little to no output from the stoma, it's important to go to the emergency room right away, as obstructions can be serious.

3. Short-term Measures for Suspected Partial Blockage
- Consider fasting for 24 to 48 hours while drinking lots of fluids, such as water and an electrolyte drink like Gatorade.
- Sip fluids slowly rather than drinking them quickly. If fasting is extended, consider adding calorie and protein supplements like Ensure Enlive.

4. Professional Follow-up
- Schedule a review with another colorectal surgeon and an experienced stoma nurse to get a second opinion on managing ongoing pain and adhesions.

5. Expectation Setting and Emotional Support
- Understand that having three abdominal surgeries in a short period can lead to significant and varying pain, and recovery may take time.
- Keep hope alive, as many people eventually regain a good quality of life even after facing multiple complications with their stoma.
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