Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
40,882 members
May 06, 2009

Living with J-Pouch and Considering Permanent Ileostomy

Topic Explanation:
The discussion revolves around a person who has been living with a J-pouch for the last 10 years and is now considering a permanent ileostomy due to constant pouchitis over the past year. They are seeking insights and personal experiences from others who have undergone similar major surgeries. Additionally, they are inquiring about the side effects of long-term use of prednisolone, as they have been experiencing issues with this medication.

Advice and Insights from Replies:
1. Experiences with Prednisolone:
- Prednisolone can cause side effects such as feeling hyper, jumpy, developing a round face, and a round belly. These effects seem to be common with its usage.

2. Insights on J-Pouch and Pouchitis:
- One participant was advised against a J-pouch as it was suggested that "everybody develops pouchitis," indicating a commonality in developing this condition among J-pouch patients.

3. Experiences with Ileostomy and Surgery:
- One individual shared their experience with an ileostomy, which they have had for about 6 years. They described the surgery as quite painful, but this was also due to them having cancer which required the removal of the entire colon and rectum.
- Another participant had a temporary ileostomy for three months, which was then reversed. They managed it without much difficulty, expecting the reversal.

4. General Support and Encouragement:
- Participants expressed support and shared their own upcoming surgeries, such as a scheduled permanent colostomy, indicating a community of individuals undergoing similar procedures.
- Encouragement and well-wishes were exchanged among the participants, highlighting the supportive nature of the community.
See full discusison
Gray Logo for MeetAnOstoMate
Why Join MeetAnOstoMate?

This is a remarkable community of 40,882 members.

You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.

And it's not all about ostomy - there is friendship and relationships too.

Privacy is very important - your profile is not visible to the outside world.

Join Us

Popular Topics

Using Hot Glue to Seal Filters: Tips and Tricks
Staple Appearing from Stoma: Anyone Experienced This?
CHOICES
FAVORITE COLOR
UOAA Conference 2025
Best Time of Day for Planned Ileostomy Bag Change?
Missing Sweet Corn on the Cob with an Ileostomy
Happy Canada Day
CREEPY NEWS
A RISKY LIFE

New Topics

Happy Canada Day
Greetings from Heidi!
Urine leakage at night
I'm in the club now :-)
Painful White Spots on Stoma: Seeking Advice
Ostomy Bag Recommendations for Higher Ileostomy Placement
A THREE EARED KANGAROO
FLIP FLOPS
B Withers - Be Kind 27-8
BUDGERIGAR
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Join
Currently Online: 54  
↑