Topic Explanation:
The discussion revolves around a person who has been living with a J-pouch for the last 10 years and is now considering a permanent ileostomy due to constant pouchitis over the past year. They are seeking insights and personal experiences from others who have undergone similar major surgeries. Additionally, they are inquiring about the side effects of long-term use of prednisolone, as they have been experiencing issues with this medication.
Advice and Insights from Replies:
1. Experiences with Prednisolone:
- Prednisolone can cause side effects such as feeling hyper, jumpy, developing a round face, and a round belly. These effects seem to be common with its usage.
2. Insights on J-Pouch and Pouchitis:
- One participant was advised against a J-pouch as it was suggested that "everybody develops pouchitis," indicating a commonality in developing this condition among J-pouch patients.
3. Experiences with Ileostomy and Surgery:
- One individual shared their experience with an ileostomy, which they have had for about 6 years. They described the surgery as quite painful, but this was also due to them having cancer which required the removal of the entire colon and rectum.
- Another participant had a temporary ileostomy for three months, which was then reversed. They managed it without much difficulty, expecting the reversal.
4. General Support and Encouragement:
- Participants expressed support and shared their own upcoming surgeries, such as a scheduled permanent colostomy, indicating a community of individuals undergoing similar procedures.
- Encouragement and well-wishes were exchanged among the participants, highlighting the supportive nature of the community.
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