This topic is about someone who has been living with a J-pouch for ten years but has been dealing with chronic pouchitis for the past year. Since medical treatments haven't been effective, they are considering having their J-pouch removed and opting for a permanent ileostomy. They are seeking advice and experiences from others who have gone through similar situations.

Here are some insights and advice shared by others:

1. People who have undergone the surgery to remove a J-pouch and create a permanent ileostomy have shared their experiences, which can vary. Some found the surgery painful but were satisfied with their quality of life afterward.

2. Common side effects of long-term use of Prednisolone/Prednisone include feeling hyper or jumpy, anxiety, a racing heart, and developing a round "moon face" or abdominal weight gain. These symptoms often improve as the medication dose is reduced.

3. For those who have had a temporary ileostomy, managing it was generally not too difficult, although they anticipated a reversal in the future.

4. Regarding the surgery for a permanent ostomy, one person was advised against a J-pouch due to the high likelihood of developing pouchitis. Another person, who has lived with a permanent ileostomy for six years after cancer surgery, found the operation painful but is content with their life now and is open to answering more questions.

5. Specific questions about the surgery include the length of the hospital stay, what recovery at home was like, and the duration of the surgery itself. These details can vary based on individual circumstances and should be discussed with a healthcare provider.