This topic is about the possibility of reversing a total proctocolectomy with an ileostomy. A person who has undergone this surgery is curious if, in the future, it might be possible to live without a permanent ostomy. They are comfortable with their current situation but are seeking information on any new medical procedures that might allow for a reversal.
Here are some insights and advice shared by others:
1. Generally, a traditional reversal is not possible after a true total proctocolectomy. This is because both the colon and rectum/anus are removed, leaving no bowel segment to reconnect.
2. The Mayo Clinic website provides authoritative explanations confirming that a total proctocolectomy is intended to be permanent. Searching for "proctocolectomy" there can offer more detailed information.
3. It's important to distinguish between different procedures:
- Some "total colectomies" leave the rectum and anus in place, which might allow for a future J-pouch or ileorectal anastomosis.
- A "total proctocolectomy" removes the anus as well, which means standard reversal options are not available.
4. There are alternative continent options, though they are not true reversals:
- A K-Pouch (Kock pouch) or BCIR (Barnett Continent Intestinal Reservoir) can sometimes be created if the patient has at least about 12 feet of small intestine. These internal reservoirs require catheterization instead of an external appliance.
5. Many people emphasize that surgeons typically explain the permanence of a total proctocolectomy beforehand, ensuring patients are fully informed.
6. Personal experiences shared include:
- One person had surgery on April 23, 2013, and was clearly informed it was irreversible.
- Another individual with Familial Adenomatous Polyposis (FAP) mentioned that all colorectal tissue was removed and considers the ostomy a small price for renewed health.
7. While there is currently no way to restore normal anatomy after a full proctocolectomy, medical technology continues to evolve. Staying informed through reputable centers like the Mayo Clinic is recommended.
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