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Mar 02, 2014

Struggling with Post-Surgery Complications and Regret

This topic is about someone who recently had surgery for ulcerative colitis and is experiencing some challenges with their ostomy bag. They are dealing with nighttime blowouts, fatigue, and second thoughts about their decision to have the operation. Here are some helpful insights and advice shared by others who have been through similar experiences:

- In the early healing phase, it's normal to feel tired, sore, and have a heavier output. These issues usually improve over time as you settle into a routine.

- For managing nighttime issues:
1. Consider setting an alarm, like at 3 a.m., to check the pouch until your body adjusts.
2. Some people find it helpful to rely on pets or natural wake-ups to monitor the pouch.

- To ensure the appliance is secure:
1. If using a 2-piece system, make sure the pouch is fully snapped or locked to the wafer, and then tape the lock shut for extra security.
2. Reinforce the edges of the wafer with hospital-type tape.
3. An elastic ostomy belt clipped to the pouch can provide additional support, especially at night or when wearing work clothes.

- For preventing leaks, consider this routine that has worked for others:
1. Attach an Eakin Cohesive Ring to the pouch flange.
2. Apply stoma paste around the ring.
3. Brush a thin coat of Torbot liquid adhesive over the assembly.
4. If your skin is uneven, use small pieces of Eakin material and adhesive as filler until the area heals and flattens.

- Many people find that changing the appliance once a week works well. When removing a well-adhered wafer, use a gentle adhesive remover to protect your skin.

- Keep a positive mindset. Remember that the surgery was life-saving, and as you refine your techniques, your confidence will grow. A sense of humor can also be a great ally during this time.
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