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41,404 members
Mar 04, 2019

Ostomate Veterans Sharing Experiences and Support

This topic is all about welcoming both new and long-time ostomates into a supportive community. It highlights the importance of sharing experiences and knowledge among those who have undergone ostomy surgery, whether it's a colostomy, ileostomy, or urostomy, and whether it's temporary or permanent. The idea is that everyone, regardless of how long they've had their ostomy, has valuable insights to offer.

Here are some helpful points and advice:

1. Think of long-time ostomates as "veterans" who have gathered a wealth of experience over the years. Whether you've had an ostomy for many decades or just a few years, your experiences are valuable and worth sharing.

2. Ostomy knowledge is always evolving. Even those who have lived with an ostomy for a long time can learn new things as products and techniques change. Staying open to new information is key.

3. Support from fellow ostomates can be incredibly helpful, especially for those who might feel "broken" after surgery. Sharing stories and experiences can show that life with an ostomy can be fulfilling and normal.

4. For those who were born with an ostomy, the experience is different. They might not feel the same sense of "loss" as others, but they offer unique insights into living with an ostomy from a young age.

5. Creating an inclusive and welcoming environment encourages newcomers to ask questions and seek advice. This helps build a stronger, more informed community where everyone can learn from each other.
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