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LOOKING FOR INFO

Posted by gutenberg, on Sat Sep 18, 2010 8:05 pm
OK, dear friends, I have another request and hope to get some feedback as my last request gave me a great boost, knowing that we're not alone.
This time I'd like to know if anybody ever had spinal injuries before landing up with a stoma. In my case before the four surgeries that got me into this mess I had two spinal operations, I wont go into details, but I was coping well with my herniated discs before I had all these operations in 2003, then about three years ago something happened to my spine and caused my left leg from the hip to the ends of my toes to go into this absolutely mind numbing pain and unlike when a disc pops out you know in a few days or weeks this will pass, but with this thing that happened to me has turned into constant pain and cripples the hell out of me. I make it a point to go to the grocery store almost every day just to keep this thing from from getting away on me. My doctor has said the surgeons would like to see me as much as I'd like to see them as the second spinal operation I had was ten times worse than all four operations, aneuryism, two ops for the ileostomy and another op to stop all the blockages I'd been having and then this piece of shit hits me and worse, my family doctor can't tell me a hell of a lot except I have spinal disc degeneration. If I go to see a specialist its a 300 mile round trip and I just know this would involve at least three trips and I don't want to go there, knowing sometime in the future I'll probably have to make that decision. I thought I remembered from sometime in the past someone had mentioned having similar problems and would like to hear from someone, thanks in advance, Ed
Reply by bearcat, on Sun Sep 19, 2010 9:24 am
can't help you out with any advice, but just wanted to say i feel for you, never had much pain of any sort in my 68 years, but know people who have. i don't know which is worse back pain or headaches, but i do know both are a pain in the butt..................and are  hell to deal with..................
Reply by boatlady, on Mon Sep 20, 2010 7:42 am
hi, I have developed an arthritic spine, quite painful should really walk more but I have given up on that, so now go to tha pool where I do aquaexercises, they seem to help a bit, the water takes the weight of my body, so I suppose that is why the exercise help loosen me up.
Sorry to hear that you have been having so much trouble, hope you get some relief soon........ keep taking the pills!!!!! lol
Reply by ok girl, on Mon Sep 20, 2010 10:05 am
Hello Gutenberg here is what I know I also have disc degeneration and can only stand for about 10 minnutes and then I have to sit down and take the pressure off my back and then go again but that is not the point here is. My friend had it alot worse than me and could not walk very good at all and was starting to get very crippled up. She went to a clinic in Irving, Texas and had microsopic(not sure on the spelling) surgery went home the next day and is great today. They put in two things can't remember if called plates or what but all done without invasive surgery.She had to wear a brace around her mid section for a while but not long (this may be the only upset in our case, get if the way of the stoma)I know you are in canada but I am sure they have  places like that in Canada. I can get the name and address for you if you like and you could see if they can refer you to someone up their. Hope this helps.
Reply by Tampabay, on Mon Sep 20, 2010 12:32 pm
I don't know if this helps you but I have been paralyzed since 1984 do to a car accident , got a spinal injury which left me a quadriplegic incomplete so I have been in a wheel chair ,so without making too long in 94 had a urostomy done a pouch which I do intermittent cath. ( all because of the paralysis that I lost control of my low extremities)done lot of different things about my bow so may of 18 210 I had my first colostomy it did not work got it redone on July  22, 210 and been battling an infection since, all because I did not wanted to drive to a Colorectol surgeon that was 3 hours away ,now 5 months later and lot of misery I had to go see him. My advice to you is go see the right surgeon no matter how far your life can depend on it.
good luck.
Reply by gutenberg, on Mon Sep 20, 2010 3:18 pm
Just saying THANKS for your replies, now I really have to make up my mind. I see my doctor on the  30th of this month and will set the wheels in motion,  Ed
Reply by LakeJames, on Mon Sep 20, 2010 8:14 pm
I used to visit people at the hospital.  Once, I put my foot on the bottom of this ladies bed and she about flew out of that bed.  Same pain you are talking about.

I don't know what she did, but before surgery -- I would look at a Medronic Pain Stimulator.  The Pain Management Doctor would have you wear a small belt around your waist for a couple weeks with a tiny tube taking Morphine to the spot where the pain is.  Then, if it helps, he would implant a small probably 4" disc in your abdomen with that tube going to where the pain is.  My father had a broken back.  We always didn't want morphine.  He was so goofy with all the other things, we decided to try that.  It gave him his life back.  He could straighten up and smile again.  They can increase the amount that goes there as you tell them on a 1-10 scale where your pain is.  Then, every month, you go in and they fill it with a syringe -- no pain involved in that.  The difference is, the medicine goes where the pain is instead of all over your body.  After seeing my dad struggle for so long, I'd advise that to anyone in constant pain.     

Donna
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