I read an article in Women's Healthsource magazine someone gave me. Has anyone ever heard of Cellvizio? It is the smallest diagnostic microscope flexible for gastro and biliary problems. They can pinpoint tissues that these conventional tools can't with minimal surgery. I found a doctor in PA that does this in Lankenau Medical Center outside of Philly. I made an appointment as they said they may be able to help me. There are only 20 hospitals in the US that have this procedure. If I don't do something soon, I think I will die as they said in my local hospitals that they can do no more for me. I cannot eat anything solid anymore. I get at least 2 blockages a week now, so painful with vomiting. I have been in the hospital 2 times this month. The second time I went in, they let me lay there for 12 hours in pain. When it finally opened up, they sent me home in scrubs in 30-degree weather with medical transport because my clothes were soiled. I live alone. They didn't even give me fluids nor did they call my primary. Basically, they said I am done. I cannot have any kind of solid food at all now. It just gets worse and worse. This last blockage happened on 2 spoonfuls of mashed potatoes. I just eat ice pops, broth, fluids, water, some yogurt. I might as well die if I have to go to baby food, but I will probably block with that as it is not liquid. I can no longer live with these 12-hour vomiting painful blockages alone. I am so weak sometimes I can hardly stand up. Going downhill real quick. I have a consult with this doctor in PA in Feb. That is the soonest I can get in if I make it till then. Anyone else have these problems? I thought as time went on this would improve. It is almost 1 year, and I am getting worse. The medical profession gives me no hope at all. When I asked how long I had to live like this, they were very quiet with no answer, so I guess it won't be too long. I have already started to give my things to who I want to have them, and I am selling my furniture so it is less on my kids. For me, this improvement operation became my final death sentence. If anyone has heard of this procedure or anything, please let me know. I am getting near the end of the line and need some answers soon. I am so skinny and malnourished. I am still going back and forth between bags as it is all liquid, and I cannot find one decent one to hold it. I hate to sound so awful, but I don't really care anymore. I have 0 of a life. I try to keep to myself because the real people that have lives don't want to hear this all the time, so I am always alone. Me, my dog, and cat. I live now only for them. So tired of trying but still going. It's not over till it's over. Help anyone. Judy.
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