Meet & talk to fellow OstoMates 20,177 members

Emergency Preparedness For Ostomates

Go to page: 1, 2  Next
Posted by Legal Eagle, on Thu Jun 18, 2015 9:26 pm

This is a topic I have never heard addressed, and I think needs to be.  How do you make sure you have enough supplies on hand at all times during a crisis?  What if you run out, or general emergency services cant help?  Has anyone for a device that is re-usable in this type of situation, or developed a sustainable system that can remedy this until supplies are available? 

Reply by klark, on Thu Jun 18, 2015 11:00 pm

Same here, never heard this subject discussed on this site. During Hurricane or Superstorm Sandy that devestated the East Coast a few years back, we had no power, heat, phone, or internet for close to 10 days. I did however build up a "spare" cache of ostomy supplies by ordering the maximum allowable every month. I was able to get through that storm with extra supplies. I still have a pretty good amount of supplies that could get me 2 to 3 weeks through another emergency if need be. I'm not sure if there is anything out there re-usable. maybe a thorough cleaning before re-using!! Interested to hear other members weigh in on this.

Reply by Immarsh, on Thu Jun 18, 2015 11:53 pm

Back in the 60's & 70's wafers weren't disposable.  They were made of a heavy rubber, or a plastic.  We then put a gummy wafer on, and used a type of "glue" on both the  plastic/ gummy wafer, and on our skin.   Both had to dry thoroughly, before applying it to the skin, other wise it would cause a burn. 

To my knowledge, there are no more "permanent" type wafers.   Everything is disposable, but I've been in emergency situations, and have creatively taken care of the issue.  Wafer came off in the dead sea in Israel....  Pulled off my bathing suit , and off came the appliane.  Without a private bathroom, it was a challenge, but I'm never without tape.  so I got into a shower.... washed out the used appliance....went to a dressing dry off as much as possible, and then double taped the mushy wafer back onto my skin, and taped it the pouch as well.   It got me through a few hours until we got back to the hotel.  did I learn a lesson....always to have supplies with me.   Nope.   Silly me.   I guess I live on the dangerous side. 

But for home purposes, I stash away extra supplies "just in case". 



Reply by Past Member, on Fri Jun 19, 2015 12:25 am

Even though I usually wear closed pouches, I keep a box of drainable ones as well as a box or two of wafers and a tube of stomahesive.  I always carry a few extra supplies in my purse for emergencies if I'm not at home.  Is there an expiry date on supplies?  I know extreme temperatures can affect the seals and adhesives but they must break down over time.

Reply by xnine, on Fri Jun 19, 2015 2:01 pm

I put all I need in a ziplock and put it my jacket. My wife also has a kit in her purse. For anything over night or more I have a pouch loaded with 3 or 4 of everything. That is the Boy Scout in me.

Reply by Monsieur Le President, on Fri Jun 19, 2015 4:05 pm

Keep a kit in the car, kit in the office, kit in backpack, kit in a briefcase etc

kit is : flange cut to size, pouch, stomahesive paste, wipes, disposal bag

all courtesy of the much maligned but incredible UK National Health Service.

it makes me weep to hear that people cannot afford the supplies that they need, & keep a bag on till it smells

Reply by ChrisP, on Sat Jun 20, 2015 2:57 pm

Keeping kit in the car (and spare trousers etc?) is an idea, but watch out, because they can go 'off' (the kit, not the trousers or the car!) if the car gets very hot. I remember stripping off a 'spent' flange in a Service Area toilet once, then discovering my 'spare' had baked hard and couldn't be used. Thankfully I'd left my OH in the car, and I had spares in my luggage because we had been away: I phoned her from inside the disabled toilet, and she brought me more.

All very difficult to explain to the queue building up waiting for the toilet, and it taught me a serious lesson about being ready for anything!

Reply by Salt.Air.Honey, on Fri Nov 27, 2015 11:17 pm

I've wondered about this too. I never go through all my supplies each month (only change my bag once or twice a week), so I stockpile my extra stuff. I break down my supplies into quart zip lock bags. One eakin seal, one flange, one bag already prepped with a clip (I also cut off the tap for burping the bag because it irritates me). I use the Ziploc to dispose of the used bag, so everything is pretty self contained and ready. Some washcloths and medical tape and I'm ready to roll.  

Also, I too keep a spares in my purse, car, and at the office. When I travel I pack a change for each day I'm gone, just in case, and I put it in my carry on in case they lose my luggage. 

So all in all I'm fairly well prepared, except if it's a long term issue, like a zombie apocalypse. Lol. Now my bug out bag (yes, I'm in the process of making a bob because I'm a dork) is another matter. How many supplies do you pack in a bob? You want to have enough, but you also don't want to take up a ton of room. So I would most likely hunker down unless I really had to bug out for some reason. I can't think of a reason why I would need to, but that is the whole point really. Being prepared for the unexpected. 

Reply by Mrs.A, on Wed Dec 02, 2015 9:59 pm

Bug out bags are great and I agree that everyone should keep at least one. It's a quick back pack to grab and go in an emergency where you can expect to be gone from home for a few days. You never can be to prepared.

Reply by godswoman, on Wed Jan 27, 2016 11:51 pm

So glad to find folks talking about this. Over the Summer I had to cut short a trip to Canada, because I had "issues" and went through the supplies I had brought with me. However, when I got home I discovered that I had squirreled so extra supplies away in a luggage pocket I never checked! I'm also very interested in preparing for an emergency. I keep a change in my purse, but I also want to have a useful and efficient bob. I live in the North Country of NYS on the Canadian border. You never know when we might be snowed in for days. Not to sound too doom and gloomy, but, what if there was a major problem with transportation and the mail or other delivery services couldn't get supplies to us? What could we use instead and not have major skin breakdown? Questions I'm looking for answers to.

Reply by Mrs.A, on Fri Jan 29, 2016 11:43 pm

Interesting question godswoman, heaven forbid if we have to figure out what to use if we couldn't or didn't have supplies frown. Maybe now would be a good time to experiment with idk, plastic bags and medical tape??

Reply by GraphX12, on Wed Feb 03, 2016 1:26 am

I keep a smaller plastic "tub" w/lid in my car at all times with the essentials. I also have a tackle box with more than enough of all supplies that I will need for travel - carry on planes, would NEVER check it through baggage. Every trip I check, re-check, and re-check again to make sure everything I need is there. Ha, I don't even pay attention to my suitcase LOL.

I use drainable pouches and always use water to wash the pouch clean when emptying. I have a small backpack just large enough for 2 water bottles which has zippered pockets that fit flushable wipes, spare flanges, bags, etc. that I keep in my "tub" and carry with me whenever I will be somewhere for any length of time. It can be a hassle always having it hanging on my shoulder but something I live with.

Reply by blueonthetyne, on Wed Feb 03, 2016 9:03 am


ive enjoyed reading this,i often wake up to the fact when im out that i dont one spare ostomy item with me, bit of a contrast to two years ago after my op,im not sure if this is confidence or stupidity.i do keep tape at work and have had to use it once. maybe i will look at this, the point about old stuff is a good one, good  idea maybe to rotate spare stock

Reply by h5g, on Thu Feb 11, 2016 7:40 am

Wow are you resilient! Bravo for your tape idea!!

Reply by Gileo, on Sat Jul 16, 2016 8:23 pm

I am purchasing extra ostomy supplies every month.  I expect civil unrest and interruption of supply for most goods that are delivered JIT.  I expect this here in the US, but can see it in the EU and GB with the refugee invasion.

THERE IS ONLY 3 days inventory of food on the store shelves.

like the Boy Scouts....always be prepare.

Go to page: 1, 2  Next
* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 17    
4 members & 13 visitors
Jennie (f)
w30bob (m)