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So Frustrated!!!

Posted: Wed Oct 18, 2017 9:09 pm

Well, this last weekend I had my first official blockage.  I tried some strawberries and ended up in severe pain for two days.  I had a little discharge from the stoma but not much.  I had to fly to Salt Lake City VA for a checkup on my throat surgery and had to suffer the pain until Monday at 0530 when it finally cleared and then all hell broke lose!! I had googled blockages and went down the list doing each fix.  When I finally soaked in the hot bath,  the blockage worked itself out and the pain stopped.  I stayed in the bathroom for 10 minutes leaning over the commode while everything that was backed up cleared.  By that time, I had been up for two days.  By the time I returned home,  I was barely functioning.   I am angry because it seems that I can't eat anything!!  It seems as it all has to be white, no fruit, no vegtables, no nothing!!  I read so much about other ileostomy owners that claim they have no problems and it makes me mad that everything goes on my no go list!!!  My question is why me?? Food just seems tasteless and unappetizing to me more each day.  More and more as I try to eat and more things go on my no go list the more I don't enjoy eating any more.  The only thing that was good about this is that I learned to deal with it so I didn't have to go to the hospital.   I have reached out to dietitians for help but no one can help me figure out what to eat.  Any suggestions will be greatly appreciated. 

Posted: Thu Oct 19, 2017 1:49 am

Hello freedancer.

Sorry to hear that there are so many things you don't seem to be able to eat without an adverse reaction. You seem to be approaching the problem of blockages in a sensible way by testing each of the foods individually before deciding which ones go on the no-no list. However,what I found was that almost all of what I could not eat for the first year or so, I gradually experimented with after a couple of years and voila! I found that I could eat more or less anything I wanted as long as it was masticated thoroughly. At first I put it in the liquidiser and reduced it to to a sludge because I wanted to see whether it was the food that caused the problems or the texture. It turned out to be the texture so I gradually liquidised it less and less whilst I chewed it more and more. The end result is that I can now eat everything I like with confidence that I will not have problems.

I hope this helps. 

Best wishes


Posted: Sat Oct 21, 2017 12:36 am

Aww. I, like many here understand where your coming from. It is frustrating and it won't last forever. I like Bill's reply. Maybe a processor or a juicer would be a good idea. You don't have to mix all your food in it, especially not all different types at once. Maybe just something "new" that you want to test. Kind of what some of us use to do when we wanted to give our young children before so much comercially made baby food in a jar became so popular. If it is small enough to swallow without much chewing it shouldn't cause a blockage.

Best wishes

Posted: Tue Nov 07, 2017 9:59 am

Hi FreeDancer, In the early days I also experienced some issues with my ileostomy.  I was instructed by a wound care nurse to drink lots of water when I ate which was contrary to what I usually did.  I know, I know....I should drink liquids while eating but I never needed to... I would drink all my beverage at the end of a meal.  Anyway, I also chew my food alot today.  These two additions to my routine has helped me out.  Give it a try, it may help you as well.  Also, I do not eat anything with little seeds such as strawberries, blueberries, raspberries, blackberries or grapes.  If these fruits are offered, I may eat one (1), no more.  They do not agree with me, and I never liked the crunchy seeds.  I also take the seeds out of cucumbers and tomatoes and I love summer tomatoes and cucumbers.  Good luck and please keep us posted.  LadyHope

Posted: Mon Jan 22, 2018 12:11 am

Hi Freedancer:  I really feel for you.  My ileostomy is totally different from yours.I can eat whatever I wantt.  I have my ostomy for 2 years now, and I can eat whatever I want to, including meat, fruit, veggies, all types of berries, watermelon.  The only thing I am careful with is anything with skin on it such as apples.  I just peel the skin off, and eat the apple.  Mabey I am just lucky.  If you get a chance, google Hollister company, and ask them to send you all the literature they have aabout foods to eat etc.  They will send  it at no cost to you.  Hope this helps, and please let me know if this helps.



Reards  Raydog.

Posted: Mon Jan 22, 2018 11:39 pm
Hi Freedancer, A blockage can be a nasty and painful experience. I've had my ostomy for 50+ years, and while I was able to eat almost anything from the beginning ( except raw veggies like carrots or celery) the occasional blockage did happen. Doing what Ladyhope does, ( drinking a lot of water & chewing well ) helps. Ironically, as I've gotten older, more foods began to cause back ups, if not quite blockages. I'd have belly pain, cramps, gas, liquid output, and nausea. Sometimes, it would take a day or two for the culprit food, to make it's way out. There's no way of knowing the condition of our inner bowels, but many of us may have lesions, that make easy digestion more difficult. Problem foods for me know, are any kind of veggie with shells ( peas) or high fiber ( corn) I avoid poppy seeds and most nuts, and although I can eat some salad, I never do it on an empty stomach. All my veggies are cooked " well", to almost a mush consistency. Broccoli, cauliflower etc.. I've become a fan of making my veggies into a soup.. Squash or pumpkin soup. Fresh fruit can also be a problem...Either too high in sugar ( I'm diabetic) or too high in potassium ( bananas). or too much fiber ( apple skins, oranges etc) I've learned to eat more simply....and be attuned to hidden problems ( no mushrooms) I use apple sauce as a side dish...not just a dessert. If you continue to have problems, check with your doctor, to make sure you don't have a physical blockage. For a time, my endocronologist, thought I might have " nerve damage" in the bowel, because my digestion slowed down. I'd feel like I had a blockage...because foods took 24 hours to pass, instead of the usual 4-6. My suggestion to you, is " test" yourself, by limiting your diet to basics, and then add one new food every day or so. Use broth, cereal, mashed potatoes, apple sauce, bread, as a basic diet. avoid dairy products for awhile... Then start adding proteins... well chewed, easy to digest. If any of those foods cause problems, it may not just be the food. Best of luck. Marsha
Posted: Tue Jan 23, 2018 3:14 pm

Thanks for the great input.   I just found out "Maxine" likes Venison and gravy with biscuts.  My veteran friends brought me 20 pounds of Venison and I was very happy!!

Posted: Sun Jan 28, 2018 5:17 pm
I use a body wand high frequency vibrator.laying down flat on my back.15 or 30 mins does the trick for me .you just need to relax.i eat one smal meal around 1 o’clock thean granola milk v8 juice watermelon oatmeal juice.good luck kemo jerz
Posted: Mon Jan 29, 2018 9:00 pm
V8 juice -- regular original variety is excellent. You need to cut everything in small pieces or chew very well. I lay down after eating and it helps. If you suspect a possible issue, soak in a warm bath and then be sure to press a bit here and there to make things move around a bit inside -- I have a lot of organ tissues removed and careful to remind myself to do a few sit ups or toe touches or whatever. You do have to be very careful with any uncooked food. And anything that might become a potential "dam builder" . Water and/or hot tea are "by my side" 24 hrs a day -- and everytime I clear the bag I drink a glass of fluid just as a habit. Short walks keep the food from lodging too.
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