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Retracted Stoma

Posted by Sunshineeyes, on Wed Jun 27, 2018 10:29 pm

I would like to hear from anyone that has a retracted stoma (an innie). Actually mine is below the skin level, my surgery was 4 weeks ago, & I have leaked everyday. I Need advice, anyone have or had this issue?

Reply by Bill, on Thu Jun 28, 2018 1:45 am

Hello Sunshineeyes.  You raise a very good subject, which has not been aired on here for some time. I hope you get lots of replies. However, just in case this doesn't happen,  I went trawling through 'Premium Content' on your behalf under the heading' Ostomy complications, There was a past post on this subject with a few replies which you might like to peruse.   POst by northeyalan
United Kingdom
Private Message
Posted: Sat Apr 26, 2014 7:20 am

I hope this is helpful

Best wishes


Reply by Past Member, on Thu Jun 28, 2018 1:31 pm

I’m an innie like time stoma will get bigger and stick out more with more years to come I have gotten more oute and biger now after five years now I’m getting back to normal sow to say.hope this helps.

Reply by sassie, on Thu Jun 28, 2018 9:01 pm

mine is a lil bit raised , like less then 1/4 inch above the skin and yes it can really cause leaks, but yesterday i was told there is a hernia under it, so another surgery is needed, but i used a ostomy belt all night and today, what a difference "Alice" sticks out alot more with a belt on..

Reply by Sunshineeyes, on Thu Jun 28, 2018 9:45 pm

Sassy, can you give me more information about the belt? What does it do?  I really appreciate you responding so quickly.  This is all new to me, I'm still learning.

Reply by Sunshineeyes, on Thu Jun 28, 2018 9:47 pm

Thank you Bill, I will check this out.

Reply by vdahl, on Thu Jun 28, 2018 10:05 pm

Hi Sunshine,

I had my second surgery on June 11th. Along with removing the colon, they were hoping to raise my stoma. (the stoma was revised from a "loop" to "end" ileostomy. They put at flat flange on me out of surgery, which I continued at home... like you, lots of leaks. Now I'm using a convex appliance ~ not only no leaks, but the skin around the stoma is looking great!

Best of luck, Vicki

Reply by CharK63, on Sun Jul 01, 2018 1:39 am

I had an “inverted” stoma. Even had corrective surgery, just on the stoma, and it didn’t help. 

The surgery made my stoma size a 19 but by next measurement it was down to 9. Smaller than before. That’s because being oval shaped the sides were always moist so my body constantly tried to “heal” it. Then I’d pass a stool and it stretched it some and caused a little bleeding sometimes. 

Due to the spaces between bag and skin, I more often than not, had pancaking. No matter what my skin was always in contact with something that created raw oozing skin I sometimes had to change bags 3 times a day. I’m allergic to adhesives so I was always irritated and bags always leaked. 

I tried rings but I ended up tearing them into PCs to use to make a flat surface. I tried a ring that was shaped like eye but that didn’t help. I tried to stretch it but it returned to original shape. I got som strips shaped like a “c” that aficed to outside and it helped sometimes. I got an adhesive 4x4 pad that I had to cut hole in the middle shaped like my stoma and afix to my skin but that leaked too. 

I ended up getting reversed a lot sooner than I expected. By then I was crystallizing the stoma powder (repeated applications of powder and skin barrier ((I bought spray kind))) to try to protect the skin. 

In hindsight and since I still have problems with getting backed up I won’t be surprised if I have another ostomy, I was going to learn about irrigating. I’m told you control the timing of your movements so you’re prepared when it happens. I don’t know particulars about it at this time. I’m not looking forward to itbut I just can’t seem to get regulated and I still have painful explosive diarrhea.The preventive stool softeners and miralax make me too loose.  I’m trying maluka honey and aloe Vera drink right now. If that doesn’t work, next I’m going to get probiotics. Anything I can find to regulate my stomach. I feel like I live in the bathroom and too many conversations are focused on poop in my opinion. I’m 60 lbs overweight, maybe I’ll quit eating for a long while. Who knows?

i also used a belt  the hooks are already on most ostomy bags. It pulls the bags tighter to your stomach  it was a great find.

Good luck, Charlotte 

Reply by Immarsh, on Wed Jul 04, 2018 7:37 am

Hi  Sunshineyes and all  who are dealing with " innies".   I'm Marsha, and I have my ileostomy for over 50 years, since I was 15.   It was as " perfect" as a stoma could be, althought the supplies were antiquated versions of what  is available today.   It took awhile to learn to manage my ostomy, until I received a " permanent" appliance.....     Through the  years,  had no trouble with baths, or showers, had two children, gained some weight, and then a lot more weight.   My stoma managed,   but my verry stretched out skin ( from 4 years of steroids when I was sick) didn't do so well.   The texture changed,and my stoma began to pull in.   At this point, it's almost flush with the skin, and, my belly under the stoma formed a pocket.   I also have a huge, abdominal hernia,  that paralels my  original breast bone to pelvic scar, distorting my  stomach even more.   I use to get a weeks  use of my wafer and pouch, but leaks are now happening much more often.   I use convatec's convex, moldable wafters, / 2 piece system,  which really do a great job, of fitting to my distorted belly.   I use eakin seals ( sometimes good, sometimes not) to mold into the depressions under my stoma.   When the wafer is " on,   I spray stoma hesive powder, into any gaps that form, between the skin and wafer....hoping to seal the gap.   And then I put on he pouch.   I'm now 70,   but still like to get out and about, drive, travel, visit friends, go out for dinners, have sex,  swim......and live each day with confidence...    Not so easy anymore.   I never did carry supplies with me, but now that's what I have to do..   Such is life...   I'm grateful for the good days, and " *** annd moan" and change when I have to....   Have to take the good with the bad.... but I keep looking & reading, and experimenting with ways to improve my condiition.   I'm not a good canditated for a revision, due to other medical issues, so I do the best I can...  Best of luck to you...

Reply by Immarsh, on Wed Jul 04, 2018 7:44 am

Ps......Try the belt Sassy suggested.    every wafer has a " hook" on each side of it, with a belt that fits that wafer.    I used the belt for  years ( much like the old sanitary napkin belsts)   because the heavy plastic permanent wafer I used in the old days,  got very heavy when filled up, and could pull the wafer & pouch off my skin.   When the new light weigh disposable wafer and pouches came along, I found  that I didn't need the belt any more.   It would sometimes slip off my hip, and pull up to my " w aiste" which I no longer have,   and dislodge the wafer, pulling it up and off.   I switched to taping all four sides of the wafer,  instead of using the belt...   It's worked for more than 20+ years....Try different things and see what  works for you.  

Best regards,   Marsha


Reply by CharK63, on Thu Jul 12, 2018 4:48 pm

Hi Marsha it’s Charlotte,

Sorry to hear it’s gettin a little rough on you but great attitude. 

Im going for second hernia repair and still have a lot of pain. I think “normal” is out of reach but I’m doing ok without the “bag.”

My Mom was in hospital for 6 days for constipation! We are now housebound because she lost a lot of strength. She got a POOP calendar for her birthday!! Isn’t that just too much!? It has poop stickers so we don’t lose track again. 

She was in bed for ten days before they admitted her so she hadn’t gone for more than 3 weeks! Pretty harsh on a 92 yo. 

They gave her constulose to get her going. Hadn’t heard of it but now ima fan! Don’t use it often but I keep myself going too. 


Sorry Sunshine,

Didnt mean to get going there. Hope some of this advice helped. 


Reply by SMW1972, on Sat Jul 14, 2018 11:09 pm

Hi Sunshineeyes

It's been five weeks for me and I usually have to change my bag a minimum of once a day and often twice a day due to leakages and my stoma being very uncooperative with healing. It's been a challenge for sure. Lots of times I seem to get a pancake effect which puts so much pressure on the bag and often leads it to being pulled off. I think I will ask about a belt like some have suggested here, thanks! Perhaps I won't leak as much? Or even just feeling more secure with it nicely secured away.

Reply by Past Member, on Mon Jul 16, 2018 10:51 am
My stoma (Jake) sometimes tend to retract after I change the wafer. I have got used to its unpredictable behavior. Seems to retract when its
Reply by Past Member, on Mon Jul 16, 2018 10:52 am
I also remember the band Chiliwack, from the early 80's
Reply by Rozanskyism , on Fri Aug 03, 2018 6:58 pm
Sunshineeyes wrote:

I would like to hear from anyone that has a retracted stoma (an innie). Actually mine is below the skin level, my surgery was 4 weeks ago, & I have leaked everyday. I Need advice, anyone have or had this issue?

Hi there, while I don’t have an innie, after my jpouch surgery, I went from having an Outtie  that was very easy to fit to a concave stoma area with a stoma they’re only rose slightly above my skin level.  This was a huge change for me. I have been struggling for sometime since the surgery. Lately I have been using paste with the ring to help my bag stick.  As a result I’ve had far fewer leaks. Space Since I have been doing this I have had less leaks. Before this are used to change my bag on an average of five 

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