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Stoma Care

Posted by Newstom, on Mon Mar 18, 2019 9:29 pm

i was wondering does everyone just get a stoma and a bag and go home and heal and take care of all our own? I wish there was a stoma nurse or someone i could ask a question, also I want to know if I have a little hernia. Where do you get your info?

Reply by Bagface, on Mon Mar 18, 2019 9:40 pm

When I got out of the hospital with my "new stoma"', I had visiting nurses come and teach me how to take care of it; emptying and changing the bag. It took several visits from the nurses to finally get the hang of it.

Reply by Past Member, on Tue Mar 19, 2019 5:29 am

They should certainly have stoma nurses that you can make an appointment with at the hospital where you had your surgery.  I'm sure you'll have a lot of questions that will need answering and I would think the hospital would have nurses you can make an appointment with in the surgery department.  I don't beleive any hospital would just discharge you and leave you on your own to deal with a stoma.  Please call your surgery dept.  and find out what they offer.  I can't believe they wouldn't offer any kind of follow-up care.  It's necessary.   

Reply by countyclare, on Tue Mar 19, 2019 12:03 pm

Your surgeon or other physician caring for you can refer you to an ostomy nurse or other ostomy professional for guidance and advice.

Ideally, you should have been set up with ongoing teaching/assistance after your surgery and prior to youe being discharged from the hospital.


Reply by Newstom, on Tue Mar 19, 2019 7:54 pm

I wasn't sure if they had stoma professionals/nurses. A call to he surgery department can't hurt! Thanks for replies. 

Reply by Ranger2705, on Wed Mar 20, 2019 9:51 pm

I had a stoma nurse visit me in the hospital before I was discharged. She set up the first order with the ostomy supply company that Kaiser Insurance uses. She showed me how to change bags and how to care for stoma. She also set up a follow up appointment to check on how it was healing. I would imagine it will be the same in your case. I would suggest doing a search on YouTube on ostomy care. Many videos that were very helpful to me. I pretty much knew how to do much of the things she went over. 

Reply by NJ Bain, on Wed Mar 20, 2019 11:54 pm

Idealy, if it's a planned surgery, you would meet the stoma or ET nurse well before the surgery to give you an idea of what to expect.  Then after the surgery, he/she would assist you while in the hospital recovering and after you are discharged.  At least that was my experience.



Reply by Dunja, on Sat Mar 23, 2019 11:57 pm

I live in California & have had wonderful Ostomy    Nurses . The hosp. has one or some of my doctor’s clinics. Or it maybe a whole biz devoted to Ostomy Care. Also Byram is a wonderful co. They have given me wonderful instruction! I had wonderful nurse in Hosp . Then an independent instructor . Also we had an awesome support group thur my local Hosp . You could always start one too. I have done my care since second one of being one with "“Minzy”. ( Silly me thought if I gave her a pretty name it would be Inice since she does such a shitty job! Wrong!!! She has proven me wrong sooo many times.

Reply by Iskaheen, on Thu Mar 28, 2019 10:21 am

I had a Stoma nurse come out to my home and teach me how to deal with my bag and whatnot until she felt confident I was able to do it all by myself.

Reply by iMacG5, on Fri Mar 29, 2019 10:11 pm

Yup, Newstom.  What they all said!  You'll become proficient fairly quickly.  You'll improvise and, before you know it, you'll be advising others.  But a stoma nurse or WOCN is invaluable in the early stages because we're all different and an experienced practitioner can eliminate  or answer so many questions specific to you and your stoma.

These folks here have given you good advice.



Reply by Lits, on Tue Apr 02, 2019 4:29 pm

I was hooked up with the ostomy/wound nurse a week before the surgery and have had continued interaction with both her/and her part-time colleague.  This is a travesty if you've truly been left o your own. My best to you and hope this situation will improve.

Reply by HenryM, on Sun Jun 16, 2019 11:03 am
I can empathize, since I had my ileostomy surgery at age 21. It took awhile for me to heal psychologically. But, let me tell you, I'm now 76, I've had a full life, and you can do the same. If you have any questions, I'd be glad to try and answer them for you. HenryM
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