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Well finally in recovery from from the Ken bum surgery.

Better late than never,
hospital about a week and then home so far so good, not a lot of pain,
can now say I’m an official member of the Ken club

as you gain your pre-surgery weight back? I lost about 10 pounds before my surgery because of being so ill, and then on clear liquids and not having an appetite. My appetite has improved, about back to normal. My ostomy surgery (I have a colostomy) was the first week of April. I have now gone back to my "normal" weight.

I know your stoma shrinks as you heal, and mine was down to an odd ...

My skin is on fire and honestly I'm in tears every time I've changed it today changed it within 1 hr after getting home from the ostomy clinic the new bag they tried she said was actually for a urine-ostomy that was a joke in fair ness she thought the adhesive would be better for my skin. So to say I'm frustrated is an understatement. Was an emergency surgery so my stoma is flat.

Ok so I have been having trouble with my wafer not sticking down when I take a shower and it gets wet. I have tried wafer extenders and they don't stick down when they are wet. And I bought an adhesive that was suggested on here and I paid nearly 30 for it and it was a 1oz bottle and it didn't compress and spray. SO... I couldn't even try it. And I'm not going to spend more money to buy it aga ...

What was your worst ostomy experience?
For me it was right after had my first colectomy. I just got discharged from the hospital and went to the pharmacy to get my meds. I got out of the car and SPLAT….my ostomy bag fell off right in the parking lot. First time out. I stood there and cried wondering what to do surrounded by people in a crowded parking lot.

i swear some days its ...

Anyone able to get in a hot tub or swim? What about going to an amusement patk? With the tight belts and roller coasters….am I possibly going to leave a mess? What other things worry you guys?

Hello, I have small painful white spots between my skin and the middle of my stoma. My surgeon, who operated on me 8 years ago, took a biopsy whose results I will only have in a month because she is going on vacation. I am still able to do my daily irrigation. The area around my stoma bled for more than 7 days and now it looks good, but the spots in the middle of my stoma are still painful if ...

Hello,
Many greetings from me. My name is Ciska and I am 58 years old. In March 2011, it was known that I had colon cancer. In April 2011, I received a colostomy. And several operations, chemo treatments, and radiation later, it is now 2025!!! I am aware that all my so-called "friends" have vanished. And that hurts. A LOT.... Sometimes you want to just say hello or have a nice phone call. Or j ...

WE ALL HAVE BAD HABITS and one of mine is that I am constantly snacking. I may be reading, or working at the computer, or watching a movie on TV, but I seem to be unable to avoid having something available to shove in my mouth constantly. In psychoanalytic theory, overeating (or in my case you might call it over-noshing) is seen as an oral fixation. It is associated with being under- or ove ...

Gobbledygook.

Not a word we experience alot in everyday life. But a useful expression when a person attempts to come across as both, sage and wise, while spouting obtuse phrasology. Intended to impress, but really exposes their muddled thought process and lack of facts. Gobbledygook at its finest.

Know anybody like that?

So I had my fourth CAT scan today and the big C came back with a vengeance! Abdomen and pelvis are loaded. Seeing an Oncologist next week. I had a funny feeling I was in for bad news.

The outer edges of my ostomy tape have itched for years. Is there anything I can do? There's no irritation or redness.
This itch is driving me insane—any advice would be appreciated!
Tiffany

Hi! I'm looking for support and friends that understand what it's like to have an ostomy. I'm very shy around new people and I have always struggled to make friends. But I think finding friends that can relate might make things easier. I have a permanent ileostomy which I got in 2017. It was a particularly difficult surgery and I suffered from many complications. Even after all this time, I st ...

Most of you already know I have 2 permanent stomas, colostomy and urostomy. I also have a drain in my pelvis due to small bowel fistula that I jokingly refer to as my third stoma.

You'd think I'd be happy with this collection but noooooo...

Tomorrow morning I will be getting a temporary nephrostomy in my left kidney.

That's right folks! I am about to be the circus side show freak with ...

Great day for sunshine and strolling along the sea shore.

Strangely, on my jaunt's, I never run into dead folks. Like wily corrupt politicians, old washed up has beens, or faded hipsters. I spend my days living in the real world.

Along the morning shore, theres solitude, sea birds, and the endless sea shimmering to the far horizon.

My morning, curtesy of the Beatles:

Got up...rol ...

I had a stoma bag fitted about 18 months ago due to a twisted bowel. Yesterday evening, there was a sudden heavy bowel movement, which resulted in the bag being absolutely flooded with poo all over. Now, therefore, I'm afraid to leave the house in case it happens again. Perhaps I should mention that there has been no dietary change lately, but I have been trying to drink more water.
I'm using ...

When have you found to be the optimal time of day to do a planned change? I haven't been able to determine a time of day that is ideal; what works one time might not work the next. Vesuvius (my name for this cursed opening in my wife) might demand a sacrifice. Is there an offering I can give to have her grant favor to my attempt to minimize her foul expulsions?
I'm seriously thinking that we a ...

Hi
I am 8 weeks in from my ileostomy and suffering from low appetite, a full feeling, and lots of gurgling. Did anyone else suffer this? Does it eventually go away?
Thanks
Petrr

Got my samples yesterday and changed it this morning; already so much more comfortable! They bend with me when I bend, which the more convex products were not doing, which then led to leaks and a general mess. The video nurse told me that there was zero chance of any convex product ever pushing my stoma to being an ‘outie,' so it would be better to go with a smaller convex product that would ...

Well, mostly. For the pool, I was so afraid of leaks that I bought a swim bottom meant for menstruating women, labeled as “waterproof.” I know! For swimming! Ha. I wear them under my longer boy short bottoms with a loose tank top.
I haven't had leaks, but I feel more confident.

Hi
I had my colostomy in March 2024; my rectum and anus were removed due to rectal cancer. I am still struggling with pain in my bum area after 15 months. Has anyone else been through this?

The name I use is melonie. It is spelt slightly different..my mum's fault. But is pronounced as Melanie. I am new here. I am looking for company and perhaps a true companion

I started off with a colostomy February of 2023And then it was not enough they had to remove the large intestine So now I have an ileostomy and that was done on February of 2024I actually had to have the site moved Twice 1st one was right next to my Belly button so literally I couldn't get a seal and then when they placed it the other side it was in A bunch of loose skin so I couldn't get m ...

I have used, from the get-go, a baggie to cover the clipped end of the appliance. Even with a really good clip, those "fluids" can be tenacious. So I slip a plain old baggie (no zip lock) over the clip end. I worked as a legal secretary/assistant for 40 years in the rarefied environment of the law firm and never experienced a leak that was not contained. Give it a try. It worked and still work ...

I'm a mother of a 5 and 6-year-old, and I got my ileostomy two years ago. They are starting to wonder why mommy goes to poop in a bag. I don't know how I would tell them or if I should show them my stoma because I think they would get scared. I tell them mama needs a bag because my body doesn't work right and I have a disease, but then my 6-year-old asked how the poop comes out. All I say is, ...

I have a high-output permanent ileostomy. The leaks are horrendous, and the phantom leaks torture, tease, and poke me. I have been provided with all the right medical supplies: I have big bags, small bags, adhesive rings, paste, and Demi-lunes. The stoma is right on my belly button, and I have an old scar that pleats. I block it up with paste and have the extra security of Demi-lunes. I starte ...

I’ve read through a few threads and intros during the short time I’ve been part of this community.
Y’all are AMAZING! It’s great to see so many of you just carry on with “life as usual.”
This Ostomy Life absolutely ZAPS me! Anemia, brain fog, muscle loss, liquid diet, whacked out labs, the job-thing…haha!
Y’all are saying, “love to travel,” dating, “back in the gym…� ...

BEFORE COVID, I was working out every morning at a local gym and putting on some muscle. I felt great. But my fear of Covid caused me to quit going to the gym and I never made it back. Now I can tell that I am losing muscle mass. It’s as if it is deserting me in resignation, looking back at me as it goes out the door and saying “Too bad, old man, but that’s it.” One problem with r ...

I'm just joined, and I can't wait to meet and virtually meet other Ostomies especially Ileostomy. My name is Monica and "Hope" is 3moths old. New to Cleveland Ohio so if you are local, please don't hesitate to say hi.