So I'm still pretty new to terminology and such. Back in March of 2024, after a year of my ileostomy, I saw a surgeon at Emory. The original doctor wasn't able to create a J pouch during my surgery in January 2023. After talking with the surgeon at Emory, we both decided not to try again since my quality of life already was leaps and bounds better than when I had UC. He ended up removing the r ...

This message is for debyoung3566.
I went through a lot of the same issues you are having since I had my ileostomy replaced with a BCIR in 2009.
I'm not sure what products are there now. Have you followed up with an ostomy nurse? They may be able to
help you.
I too live in Vero. We could meet for coffee at one of the Paneras; we can compare notes. I'm not sure if I would be
of any help. Like yo ...

Sooooo, I've been dealing with this for a while and trying all sorts of things. The latest has been the Eakins circle thingie; I forget what it's called. I tried the marathon stuff, and it didn't really help and also created a very uneven surface by coating the injured skin and not coating the uninjured skin. It also did sting for me. I tried the flow assist thing, and that helped some, but mo ...

Has anyone had only colon removal? And had a success rate.

Got my samples yesterday and changed it this morning; already so much more comfortable! They bend with me when I bend, which the more convex products were not doing, which then led to leaks and a general mess. The video nurse told me that there was zero chance of any convex product ever pushing my stoma to being an ‘outie,' so it would be better to go with a smaller convex product that would ...

To recap, I have an extremely inverted stoma on a soft belly crease, and I had a horrible time with the bag I was using, always coming off just enough to let output get underneath the adhesive and destroy my skin. I tried glue and purple stuff, and nothing worked. The thing that changed the equation for me was changing the device I was using. Thanks to the Convatec video call, they realized I ...

tbird56b
Just flew to Hungary. I really wasn't ready for the trip. Luckily, I was able to upgrade and had a very nice experience. I'm 4 months post-surgery but not in good enough shape for all the walking on tours. I'm on a Viking River cruise.
I am always chilled and had to buy a jacket. My suitcase is packed with ostomy supplies.
Next cruise is in February. I should be okay for that one. Sec ...

Happy two months to Leroy the stoma! Yes, two months since the surgery that saved my life and led to me finding out the people who cared when I needed care the most and are there for me as I make my recovery in more ways than one.
I thank those people quite a bit for supporting me, especially after my now-ex-partner walked out on me when I got out of the hospital. I have gratitude coming out ...

Hello from New Zealand. I had an ileostomy 10 weeks ago, due to ulcerative colitis not responding to any drugs.
Within about 4 weeks after surgery, I started to suffer joint pain, knees, wrists, thumb joints.
I asked the doctor and he believes because I still have an anal stub, the joint pain is from what UC is left within the anus and rectum.
Has anyone experienced this and if so, how did you ...

IF YOU ARE AN EARLY RISER, like me, you are keeping company with other well-known morning persons like Ben Franklin and Henry David Thoreau. “Cultivate the habit of early rising,” suggested Thoreau. “It is unwise to keep the head long on a level with the feet.” This is especially true for people with an ostomy, since we have a natural need to allow gravity to work its magic on our C ...

So I love to go swimming. Now that I have an ostomy I don't swim anymore. Tips recommendations, help me here open to all suggestions thanks!