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Jan 03, 2022

Switching from colostomy to ileostomy - experiences and concerns?

Switching from a colostomy to an ileostomy can be a big decision, especially if you're dealing with ongoing health issues like a parastomal hernia. If you're considering this change, you might be wondering about the differences and what to expect. Here are some insights and advice from people who have been through it:

- General Maintenance:
- Many people with an ileostomy change their appliance about every six days, which is similar to or even less frequent than those with a colostomy.
- The main difference is the frequency of emptying the bag, which can be about 8-10 times a day due to the liquid output. The good news is, you won't need laxatives anymore.

- Output Consistency & Hydration:
- The output from an ileostomy is more liquid, but you can manage the consistency by adjusting your fluid intake.
- Staying well-hydrated is crucial, as you can lose body salts and electrolytes. Make sure to keep up your fluid and salt intake.

- Diet:
- Most people without Crohn’s or colitis can eventually eat a wide variety of foods, as long as they chew thoroughly and stay hydrated.
- Be cautious with high-fiber or hard-to-digest foods, as they can cause blockages if not chewed well. One person experienced a blockage after becoming too relaxed about this.

- Surgical Options & Hernia Considerations:
- Consider asking your surgeon about starting with a loop ileostomy, which can be reversed if needed. This would mean temporarily having two stomas, but the old colostomy could be capped.
- An ileostomy is usually placed on the right side and involves a smaller opening, which might reduce the risk of future hernias.
- One person found that their hernia resolved after their colostomy site was closed and replaced with a smaller ileostomy stoma.

- Lifestyle/Appearance:
- Ileostomy stomas are generally flatter and easier to hide under clothing.
- Skin protection might be simpler, as some people find they no longer need barrier rings or extra products.

- Reversal Outcomes:
- A relative of one member had a right-sided ileostomy, managed well, and successfully had it reversed after six months.

These insights might help you weigh the pros and cons of switching from a colostomy to an ileostomy. It's always a good idea to discuss all your options and concerns with your healthcare provider.
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