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Travelling

Posted by Jennfour, on Tue Dec 09, 2014 11:17 pm

This is a couple of questions for Cutycall or anyone who can help. I have tried commenting on her post but I guess I can't if I am not a paid member. I will upgrade my membership soon.  I have had an ileostomy now for almost 6 months and am due to fly soon, prob Jan. Can you tell me, what is an ostomy travel certificate and if you had to use it, what does it do? I will be doing an 11hr flight and hadn't thought of exploding bags. Really worried now lol. Any advice? I have found marshmallows can actually make it thinner- is the sugar free option the one to thicken? Sorry bombarding with questions, but first time on the forum. Thank you in advance for any help. Best wishes and congratulations on your bravery for all taking all these activities. I am looking for my courage lol

Reply by Zywie, on Tue Dec 09, 2014 11:59 pm

Hey Jennfour, you don't have to be a paid member to reply to posts or comment on blogs. I'm not a paid member. The only thing you can't do is initiate a whisper (private chat) or message to someone. But you can answer messages.  I did notice, since they did some changes to the site recently, sometimes I have to click on the little icon of the T (it says paste as text when you put your cursor on it)  up in the left-hand corner here where you reply. I have no idea why it doesn't work if I don't click that.  

 

P.S.  I don't know the answer to your questions. Except I have heard marshmallows work wonders. I'm sure you will get more answers. 

Hope your trip is superb! 

Reply by Jennfour, on Wed Dec 10, 2014 1:57 am

Thank you for your help Zywie. I was able to click reply to you and answer, but on the other comment I was trying to make there are no text boxes at the top. It just won't send. I think I may have to upgrade membership in order to initiate questions. Thanks again.

 

 

Reply by Immarsh, on Wed Dec 10, 2014 3:27 am

Hi Jennfour,

I have travelled extensively all around the US, Mexico, Canada , the Carib, and to Europe, Japan, China , South AFrica, and to Australia 7 times.  I've never needed an "ostomy certificate:.   I always take my medicaltions and surgical supplies in a carry on piiece of luggage. B ut I also cary a few wafers and pouches in a tote bag, in case I need it " immediately" .  I've never had to change on the plane...

I wrote you a more detailed message, so you can look for that.   If you have any other questions, you can post here, or try to write to me...

Where will you be flying to..?   My NY to LA, to Brisbane Australia is 19 hours....if things go well.   Once missed the California connection, so had to go to NZ, Sydney and then Brisbane...total of 28 hours.   Not fun....but it was an experience.

Best regards..

 

Marsha

 

Reply by Snookis Mum, on Wed Dec 10, 2014 1:35 pm

Hi Jennfour

I travel from Tampa to Sydney (29 hours total - not fun) and I have never actually had to use my "certificate", but I have always had it ready to show to TSA if they ask for it. When they x-ray you, if you have liquid in your pouch it may show up, so I just make sure it is completely empty when I get into line.

As for the pouches "blowing up" - sometimes they do get more air in them when the cabin is pressurized. So just make sure that it is as flat as possible when you sit down, and then as soon as the seatbelt light goes off, just go to the loo and release the air. It also helps to not eat gassy foods before your flight. I also use Osto-EZ vents on my pouches. so if I can't get to the restroom, I can easily release the air under my blanket (use LOTS of deodorant).

Have a wonderful trip!

Sandi

Reply by Jennfour, on Thu Dec 11, 2014 4:36 am

Thank you Snookis Mum for your comments and helpful advice. So is the certificate just for security if the pouch shows up? Not sure if we have such a certificate in Aus. I only saw your reply by accident, I am still finding my way around the site. There seems to be the forum, chat and blogs, so need to be on my toes not to miss any replies.

Even with my ileostomy I still find that what they call "overflow" happens and I need to go to the toilet in the normal way sometimes too. I didn't expect that and hope it's normal. It's a nuisance of course as that's 2 things to deal with. Also have a wound from a surgery drain that hasn't healed in 5 months.

Thanks to this site and you wonderful people I am determined to try to live all I can, the best I can.

Thank you again, Jennfour

 

 

Reply by babsk43, on Wed Dec 17, 2014 10:22 am

I have had an ileostomy for almost 15 years and have flown and continue to fly frequently. I have never had a travel certificate but I can reccommend to get the book Yes We can traveling with an Ostomy.You will find it very helpful and it does have a travel card in the book that you will find helpful when traveling.Happy Travels!!!

front cover Authors: Kathy Foley-Bolch, Michelle Fallon Kasouf, Barbara Kupfer, and W. Brian Sweeney, MD
Publisher: Chandler House Press
Format: Paper, 240 pages
ISBN: 1886284598


OncoLink Rating:

Buy this book at amazon.com and help support the OncoLink mission!
 

The authors, Barbara Kupfer, Kathy Foley-Bolch, and Michelle Fallon Kasouf, all have had ostomy surgery. Doctor W. Brain Sweeney was formerly Chief of Colo-Rectal Surgery at the University of Massachusetts Hospital in Worcester, Massachusetts. He now practices in Minneapolis, Minnesota, and teaches at the University of Minnesota. They wrote this pocket-sized reference guide for the person who has an ostomy and wishes to travel.

The guide covers an enormous range of useful information and details every issue that may arise when traveling with an ostomy, such as what to bring, dietary considerations, ways of travel, toileting, emergency situations, and tips for physically challenged people. At the end of the book, six comprehensive appendices list worldwide resources, international organizations, suppliers, and even key words and phases translated into eleven languages.

This book is a very clear and useful guide for any ostomy patient. It equips the ostomy patient with an excellent map to help them on their joyful trip. All proceeds go to ostomy charities.

 

Reply by Lost_Treasure, on Wed Dec 17, 2014 12:51 pm

Whichever Ostomy Association you get your supplies from in Oz will be able to provide you a small certificate (will need to be signed by your GP or STN) which proves you are an Ostomate and requests we are treated with additional respect should we be required to undergo a search.

Have a read up on http://www.australianstoma.com.au/index.php/general/travelling-overseas for additional information.

“Windless Tablets”, placed in your pouch (available under the Stoma Appliance Scheme) can help with the gas and pressurization problem.

Advise the airline (when you book your ticket) that you require a special diet…. Just decide whether you can live without sugar or wheat for the duration of the flight! You will be the first to be fed at each mealtime, so by the time everyone else if getting their meal and tucking in, there should be no queues for the loo, which will be your turn to deal with your pouch.

I found the biggest problem with airline loos, is that they tend to flush only the back part of the pan and we drain our pouches to the front. Taking an empty paper or plastic cup to transfer additional water from the hand basin may solve this problem for you.

Best wishes..... Diana

"Bad cholesterol is the kind that clogs arteries, shoplifts lipstick and lies under oath."   [Reader's Digest.]  

Reply by ostralian, on Wed Dec 17, 2014 7:59 pm

Hi Jennfour.  Regarding the travel certificate, it is in case airport personnel have a query about your supplies, and lets them know you are an Ostomate and need to carry these supplies with you.  If you are travelling, you should order supplies as early as possible before you leave.  Just refer to our Newsletter for all info.

If you are a member of the WA ostomy Assn, we have a resident stomal therapist who is available on Tuesdays 9-1 (no appt necessary).  

We are closed from 18th Dec (today is last day before Christmas) and open again on 6th January. 



Last edited by ostralian on Thu Dec 18, 2014 11:22 am; edited 1 time in total
Reply by Jennfour, on Thu Dec 18, 2014 1:19 am

Hi Immarsh, Thank you for your private messages. I much appreciate contact with you and have replied privately.

 

 

Reply by Jennfour, on Thu Dec 18, 2014 1:30 am

Thank you very much babsk43,

The link to the book I am sure will be really helpful and I think I will almost certainly order it. It is great to hear that you fly frequently and to be pre-warned of some of the problems that may arise and how to handle them. I am very grateful when anyone takes the time to help in this way.

I guess I have a few issues, one is that I am not travelling for a holiday, but to live in Saudi (my husband works there) for up to 3 months at a time. I had an obstruction after my original op, then a leak and now anti-biotics for the next year I think. The anti-biotics cause even more eruptions from the ileostomy, I certainly cannot eat fruit and vegetables anymore. I also have a wound from the drain from the original op (July) that shows no sign of drying up or healing. I dress that myself. So I am trying to be positive and not "expecting" another obstruction etc. It's in the back of my mind all the time at the moment though.

Again thank you so much for your kind reply.

 

Reply by Jennfour, on Thu Dec 18, 2014 1:39 am

Hi Lost_Treasure,

Great information on handling the time on board the plane. Thank you for sharing your experiences. Advising the airline in advance seems to be a good idea. Thanks for the Aussie link, I had been struggling to find good Aussie sites. I am keeping all these replies to refer to when the time comes.

I guess I have a few issues, one is that I am not travelling for a holiday, but to live in Saudi (my husband works there) for up to 3 months at a time. I had an obstruction after my original op, then a leak and now anti-biotics for the next year I guess. The anti-biotics cause even more eruptions from the ileostomy, I certainly cannot eat fruit and vegetables anymore. I also have a wound from the drain from the original op (July) that shows no sign of drying up or healing. I dress that myself. So I am trying to be positive and not "expecting" another obstruction etc. It's in the back of my mind all the time at the moment though.

The more replies I get and the more I read of all the various experiences, gives me more confidence and positivity.

Kind regards

Reply by Jennfour, on Thu Dec 18, 2014 1:49 am

Hi ostralian (love the handle lol)

I am a member of the Association, but live in Mandurah. I have spent the last 6 months moving from friend to relative to friend! My house here has tenants in it, as we took an overseas assignment last year. We also had to sell the cars so not easy to come to the ostomy centre. I guess I have a few issues, one is that I am not travelling for a holiday, but to live in Saudi (my husband works there) for up to 3 months at a time. I had an obstruction after my original op, then a leak and now anti-biotics for the next year I think. The anti-biotics cause even more eruptions from the ileostomy, I certainly cannot eat fruit and vegetables anymore. I also have a wound from the drain from the original op (July) that shows no sign of drying up or healing. I dress that myself. So I am trying to be positive and not "expecting" another obstruction etc. It's in the back of my mind all the time at the moment though.

I will be staying with a friend in Perth in January and will make a concerted effort to get to the therapist and get a certificate for travelling. I would also love to get to the morning tea, I could make the 17th Jan, but not sure if you will be holding a January one.

Thank you for all the great information. I hope to meet you one of these days in Perth.

Kind regards

 

 

Reply by Jennfour, on Thu Dec 18, 2014 5:46 am

I'm an idot ostralian, too new to all this. I had no idea the Perth centre would close for almost 3 weeks, and now not sure I have enough base plates. Any ideas? I looked on the Dansac website and they don't seem to supply direct- can't find an option to purchase.

Thanks, Jenny

Reply by ostralian, on Thu Dec 18, 2014 7:29 am

Hi Jennfour.  I did wonder if you were in the metro area. Bit hard to get there from Mandurah!  The 2nd Tuesday in January is the 13th, and it's afternoon tea (I got it wrong, sorry, not morning tea) from 2pm till 4pm. Perhaps email the week before, to check it's definitely on.



Last edited by ostralian on Thu Dec 18, 2014 11:13 am; edited 1 time in total
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