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Illinois humidity

Mon Aug 01, 2022 6:08 pm
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Uniquely just me wrote:

Also with these the are full sheets that you can cut  a hole in middle To secure your bag into place.



Last edited by Uniquely just me on Mon Aug 01, 2022 6:45 pm; edited 1 time in total
Mon Aug 01, 2022 6:24 pm


Maried wrote:

Try Brava Elastic Barrier strips by Coloplast part 120700..call Coloplast they will send you samples. They have  major bag holding power, keeps out water when you are swimming or taking a shower. ...

I live in Southern Illinois and I know what you’re talking about with the heat & humidity. I use those Brava strips also and they work great!! And my insurance does pay for them because my doctor put them on my supply Rx. 
Good Luck!! 

Doris

MeetAnOstoMate - 27,383 members
Mon Aug 01, 2022 7:24 pm


Homie With A Stomie NS wrote:

Morning elijahblusmith....there is adhesive tapes, 3m medical water proof tape, duct tape etc available....get urself some and place around the edges of your wafer and skin to see how that works......

Elijah- I’ve had similar problems and it’s tough. I use cold packs wrapped against my body. There are vests that hold cold packs too. Please keep trying and it will get better. I just had major surgery and the incision was so close to my stoma that I had several weeks of changing 2-3 times a day and being terrified it would get infected. You are still in the healing stage. I also use Eakin wafers on my ostomy and there is a barrier wipe that may help. So many things to try but you have to find what works for you. The waist thing didn’t help me at all. And I have thin cotton kitchen towels I also use for to absorb moisture. Given your work it will get better especially when it cools some. Good luck. 

Mon Aug 01, 2022 10:16 pm


elijahblusmith wrote:

Yes i try to use my bag for atleast 2 days at a time

I use bag liners and they are fantastic! Just pull out and dispose when full.

https://parthenoninc.com/attiva-flushable-ostomy-pouch-liners-fpl-1-regular-size-100-bx/

i also have had leakage issues under the water. I’ve tried paste, extenders and still it leaks on one side as I have a hernia in the other. The extenders that go in the edge of the water are great to make sure you don’t have a blow out!

Tue Aug 02, 2022 8:13 am


paulaAZ wrote:

Hi elijahblusmith, 

I do not know if this will help, but Sure Seal is what I use.  I put it on over the flange when I change my appliance and it stays secure even with the hot summers here in Ar...

Which Sureseal product do you use? Do you cut it and put around flange edges?

Tue Aug 02, 2022 1:34 pm


gregster77 wrote:

Hey buddy, sounds like you've been suffering with it!  I've had an ileostomy since 2019 ... no matter what type we have it seems we all have the same anxiety when it comes to leakage etc! I hate i...

They are available in the US. I use the same products and they work well. My "banana skins" tend to peel around the outer edge after two days but I change bag every three days so it's not too much of an issue. I sweat profusely also and do notice the wafer adhesive start to give after extended time sweating. 

Wed Aug 03, 2022 3:23 am


AlexT wrote:

Duct tape? 😮 That can’t be good for long term skin care. 

Seems to be just fine for ducks.....

Now Gorilla Tape is a whole different animal!

;O)

Wed Aug 03, 2022 5:16 am

I’m sorry you’re having so much trouble. I have had my colostomy since April 2022. My stoma is completely recessed, making it impossible to keep a bag on. I tried all of the options but every time output would push the appliance off. I finally resorted to irrigation which has been life-changing. I now irrigate every morning and wear a small cap during the day. The cap stays  adhered and will collect any minimal output. I also have a fold in my skin right at the stoma site which adds to the inability to keep appliances  on. As someone else mentioned, I ordered hypafix tape to put on the sides of my cap. This has worked out well for me. I even “tested” the hypafix tape the other day. Not sure what I ate but something came right through me, 😑 ugh, three times that day, and the cap with tape on the side held. Irrigation sounds scary, but it really isn’t. In fact it’s quite liberating. I do know that the supplies are expensive. I think some of the things designed specifically for colostomies are an outrageous price, which is what lead me to try the hypafix tape. Ordered from Amazon it came in two days. I use the 2”. I’ve also braved the pool with my grandkids with no problems. When I’m going to swim I cover the cap with a couple of strips of the tape. It gives me a good sense of security. So far the tape has stayed on through water, but it’s not uncomfortable to remove. I hope this is helpful, keep your chin up and don’t be afraid to try some different things.

Wed Aug 03, 2022 10:04 pm

In the first few years due to a lack of nutrition and digestion knowledge of my own system led to excessive output, liquefied. As I learned my digestion process the excessive output stopped. It all started with a journal.  20 bags were not enough, so I contacted the insurance and was told to get a 'Letter of Necessity' which is filled out by your doctor. The doctor will send you to a stoma nurse to check you; you have to say you get a lot of fluid and explain; they can't disprove your claim and the doctor also can not because they will not take the time, work and effort to check.

I got a letter of necessity form, my doctor filled it out, sent to the insurance company after that and my 30 bags a month were approved. Ask your insurance for this letter of necessity and they will forward it to you. It's worth a try; it worked for me. Now my output is minimal because I changed my nutrition from the root up and learned how this all works.

Sun Aug 07, 2022 8:13 am


paulaAZ wrote:

Hi elijahblusmith, 

I do not know if this will help, but Sure Seal is what I use.  I put it on over the flange when I change my appliance and it stays secure even with the hot summers here in Ar...

How do you use the SureSeal? When I looked on-line they looked like square bandages.

Mon Aug 08, 2022 10:02 pm

I live right next door in Indianapolis so I totally understand the humidity problems.  While it's been trial and error for me, I recently discovered a trick using a barrier strip.

I apply a barrier strip directly to the skin around my stoma where the barrier usually starts to pull away early.  The barrier strips seem to stay stuck longer than the barrier itself. I apply the 1-piece so that over the problem area it adheres to the barrier strip rather than the skin directly (and directly to the skin in areas that don't have the issue). I apply barrier strips around the 1-piece as I normally would.

For reference:

I currently use Coloplast SenSura Mio Convex Flip 1-piece drainable pouches and Coloplast Brava Elastic Barrier Strips. I did switch from a pouch with a standard barrier to the Convex Flip. That definitely helped keep the barrier from wanting to pull away from the skin so easily (since I tend to be mor pudgy there, lol). That may not be the case for you. I have tried the moldable rings/seals in the past, but they were worse for me than not using them at all.
Mon Aug 08, 2022 10:37 pm


Homie With A Stomie NS wrote:

Morning elijahblusmith....there is adhesive tapes, 3m medical water proof tape, duct tape etc available....get urself some and place around the edges of your wafer and skin to see how that works......

Can you describe more about what you do with the bib?  When you say remove the backing, do you mean the fleecy part?  And use that part or get rid of it?  This is also my first summer with a bag, and I feel like I sweat so much under the bag! 

Mon Aug 08, 2022 10:46 pm


Mr.Heart2Win wrote:

In the first few years due to a lack of nutrition and digestion knowledge of my own system led to excessive output, liquefied. As I learned my digestion process the excessive output stopped. It all...

Can you say more about what thickened your output?  I only have about 1.5 feet of colon left, so close to an ileostomy.  Output seems excessive to me, and frequently liquified.  I'm up 2-3X a night emptying the bag, and also emptying multiple times during the day. 

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