If you go online to AliExpress and type ostomy into the search bar, you will find huge amounts of ostomy products from bags, wipes barrier rigs, belts, sprays the whole range. I always buy non-woven tape from them and I only pay about $7 instead of the $30-$40 at the pharmacy (I have lots of allergies and their tape is good). I've also used their flange extenders. I have not used any other ...
My hobbies are racing motorcycles, skydiving, bungee jumping, and flying. I can drive anything from an 18-wheeler to a unicycle and work on computers when inside.
Never let an ostomy stop you from doing anything you want to do.
Hello all
Although my colostomy surgery was in August, I have only been home and managing it on my own for the past month. This is my first post, but I've already been finding the answers I've so desperately needed from your responses to other newbies. My apologies for taking so long to say hello and to thank you. I am so blessed and grateful to have found you, since without you I would still ...
Hi everyone! I just wanted to share an update that I've found a good rhythm now two months post-ostomy surgery, and it feels like it's almost fully healed, for which I'm grateful. I've been putting ointment around the edges whenever I add a new bag, which helps. I've been eating more consistently, which creates better flow. I'm grateful for all of your support with learning how to listen to my ...
Laugh at my experience and expense if it's funny to you. This is meant to be self-deprecating and a bit of a cathartic post. Maybe there's a tip in here somewhere for anyone who has acquired a stoma recently.
My first bag was put on while I was still in surgery. My second bag change happened with the wound care nurse in the hospital the day before I was discharged. The third was with my wife i ...
I just realized today I've had my ileostomy 50 years! Where has the time gone? I've been very lucky and had very few problems. My skin surrounding the stoma is good.
I'm 69. I do wonder how people cope as they get older with their skin?
Skin can get thin for some in their old age. At the moment, I don't use any products to remove the pouch, but I guess that may change if my skin gets thin.
Attention Newbies….Helpful Shower Gear
Nothing is better than a completely naked shower. A stoma cover-up (see picture) allows the use of both hands afterward. As someone suggested on here, before putting on the cover-up, apply 2 sheets of toilet paper over the stoma while your skin is still wet, then the stoma cover, and then dry your entire body. I find this piece of gear extremely helpful ...
Morning all, hope you are all well. Just a quick update. I didn't post anything here for quite a while. So I had my full panproctocolectomy on the 17th of July this year due to ulcerative colitis. My recovery went well, 5 weeks later I was back to driving, 6 weeks later I am pretty much where my old self was, and now my bottom wound is almost completely healed. Results of the removed intestine ...
I (21) had elective proctocolectomy and got my ileostomy 5 days ago because of my UC. I've had a lot of time to mentally prepare, and the benefits of living free of my UC by far outweigh the negatives of having an ostomy, so I, for myself, am pretty happy with the new situation so far. Pain is there but manageable, and I'm quite mobile already.
I am giving my best to be open about my condition ...
Those of you who recall Letterman's top ten list, I'm reviving/revising the late-night comedian's popular subject for those interested. Think of it as a checklist from seasoned members put together as a helpful bit of advice. There are no wrong answers.
ME!! go first with number 1.
1) Advice/suggestions/replies offered from various and seasoned members—what works for one or two folks may n ...
Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients str ...
