Hernia with a Colostomy, Ileostomy or Urostomy

hi everyone, I am hoping someone can help me.  On December 1st I will be having surgery for a hernia repair.  But this one is different from a normal hernia repair.  One year ago I had my hernia repaired  during emergency surgery because of a blockage.  I got very sick because of a bad infection in my wound which turned into sepsis.  It took months for me to heal.  Needless to say the hernia repair did not work.  I am having it fixed again but with a newer procedure called "Sugarbaker surgery for ...

Sorry I haven't been around much recently - here in the shadows, but have been having a very down time with loads of added stresses ...  anyway guys and gals ..... I need your help. Went for my pre op assessment today ..... (waste of time, but that's another story ....) I have a HUGE hernia, which is to be repaired with mesh, with a probable resite of stoma - and possible hysterectomy due to Endometriosis ..... I was concerned that I didn't seem to be down to see a stoma nurse so that it could be resited properly... The nurse ...

Well friends once again I'm in need of information. A little background, two months ago I had to buy new jeans so I got them a couple of inches larger than normal, next I put on my braces to keep my pants from falling to my knees. As i sit here now, no braces, no belt, top button open. This started about two weeks ago after getting some sharp pains above and below the stoma and a circle about six or seven inches in diameter and has swollen outward about an inch and a half, hard to tell. can anyone tell me if that's the way a hernia starts ...

I had my urostomy some 20 months ago, and all is going well - except:- I have quite a large hernia, not just "behind" the stoma, but another to one side and lower down on the belly. There is no pain and very little discomfort, but it is becoming slowly larger and without wearing my stoma belt, it would be very unsightly. At my last meeting with the surgeon, he said that he might need to operate, but would prefer not, unless the hernia becomes an incumbrance, and then I should first go to my GP for referral. Q1. What exactly (...

Hi Everyone< > I would like to keep the conversation going on the topic of parastomal hernias and the repair/success of surgery. I am hoping to get more info from others and restart this important topic. I had my surgery in Hamilton in 2010. My bulge is complicating how well my flange stays attached to my skin, plus it exaggerates my belly. Is your stomach still flat? There have been many advances in surgical procedures, so I am hoping that chances are better now a days for successful operations. I would prefer to have the...

Hi.  Has anyone had surgery to their hernia which involved them putting the mesh in and then allowing it to close itself as tissue grow over it?? I believe this is one technique they use .... how long does it take and  is it as successful as closure when in surgery? Rach xx

a melon sized hernia appeared overnight.. it is uncomfortable but im worred about a few things.. i want to have a hartmans reversal in 12 months and im worried if it will affect the reversal,.. they want to do the op at the time of reversal, but if it gets any bigger and  if they have to operate sooner, will that reduce chance of success? Also im worried about bowel strangulation as i already live with PTSd from almost dying from bowel perforation, my fear is escalated with the arrival of the hernia. Lastly.. its so visible a...

Hi , my name is pippa and I am looking for advise and other people's opinion on colostomy reversal & hernia repair it will be getting done all at the same time, which I think is good. I had a colostomy last July through emergency surgery its a long story so will get to the point I had septicimia, septic shock, all my major organs were starting to close down lots and lots of complications anyway am having my reversal in october. Not to mention I am very scared about the whole thing but realise it has to be done I have had  ...

I just had a hernia operation a week ago. I irriagate and when I tried it wouldn't work. How much times does it take. Or shouldn't I be able to right away??

So, I've had a hernia since September but it's grown and gets hard/soft for days at a time.  My ENT nurse and surgeon are referring me to a hernia specialist.  I've also just been diagnosed with a rare,, incurable vocal disorder (I haven't been able to talk for 9 months) so needless to say I'm pretty overwhelmed right now.

I had surgery in the Fall for a parastomal hernia. I've recently noticed another slight bulge(not as large as the original hernia) and have felt some pain, a kind of constant burning sensation. It's not debilitating, but I definitely feel discomfort. I've also noticed that I get a sharp pain right before there's a surge of effluence in my pouch.  This is very different from the way things were before my surgery. I've been in touch with my surgeon, and have a CT scan scheduled. I'm nervous because I spent 37 days in the hospital f...

Hi everyone, Love the help I get here!  Thanks to you I can now irrigate, though I am not doing it every day...but can when something is coming up that I want to be sure I have no output. My question today is about pilates.  I don't mean just a pilates class at your local gym.  But rather going to a proper pilates studio where they use the reformer and Cadillac machines, and where the instructors are FULLY certified in the Pilates methods.  Classes are pricey and often one on one so you get individ...

Hey every one , hmmm where to start had my 9th major operation for my 2 big bastard Hernias,only spent 5 days in hospital coz im very bad for hanging around in a hospital bed (smoker) so wasnt in my room barely at all had more fun 3 floors down one major corridor and outside Hospital think my exersize was well and truly done . yes i know blahhhh blahhh   LOL Had my op on 27th feb A Monday here in australia melb. Must forget to adf i thought such a hot day on sunday yey short bikini top beach quick swim oops made it 6 hours swimm...

i have had an ostomy for over 50 plus years and have slowly been developing a peristomal hernia.  has anyone else develped this issue, how and when have they dealt with the hernia. 

When and why do we have hernias fixed and they always seem to come back i have had a parastomal hernia (HUGE) had the mesh done and my old stoma site has more scar tissue so now i hear that the sparastomal hernia has come back really does my head in these operatrions never seem to work but saying that I have crohnic severe nerve damage folks please read storys as i would never have had 9 operations to be left to live my life in Pain   no medications are of help not really and side effects wont even go there but i hope :)   Ho...

what are the signs

I'm going blind (and not finding what I know much be out there) looking at the websites -- so maybe someone can lead me in the right direction. I'm interested in getting a support belt. Not one of the narrow ones that attaches to the pouch and just holds it down better against your body. Something wider (hopefully not too cumbersome) that goes around the body, supports the abdominal area, and accommodates a vertical ileostomy appliance. I'm fairly active but have never had great abdominal muscles and was told and retold about being c...

Hi all,  I was just wondering if anyone else out there has ever been given any guidance on swimming or doing Aquafit with a large  (well, the size of half a melon!) hernia?  I am desperately trying to lose weight and am now trying Slim Fast as I can't eat any green veg or normal diet foods, but I thought some exercise might help and as I am so restricted with that as well (bad heart means I can only walk 10 metres normal pace), thought that swimming might help, although I am not a particularly good one. &...

Has anyone who has a colostomy along with a hernia had surgery to repair the hernia? What is the recovery time, do you find it was worth to do the surgery? Thanks Diana

I have a parastomal hernia, Its not actually near the Stoma, but on the Incision scar line from the OP. It doesnt hurt or affect me that much, but its unsightly when I am naked ( not a pretty sight at the best of times) My Doc says it can be repaired with a Mesh patch , but I'm not sure If I want to be cut open again!! What do you think?? Has anyone else had this type of hernia repaired & was it successful.... Many Thanks .... Pete....

Hi, just to keep you all up to date I had my operation on the 14th October was in hospital for 5 days I have done very well all seems to be settling down obviously tender and sore. I have been told not to lift anything for a while and certainly to avoid anything heavy. However I do have a question when you suffer with a hernia and you get it repaired and you give it plenty rest over the weeks/months can you carry on as normal in other words are you able to lift things that could be regarded quite heavy or is it best to never lift again...

Seeing a lot of talk about hernia, and people who have had numerous surgical repairs.  I have had a hernia for 3 yrs now but aside from the unsightly bulge around my stoma, it causes me no discomfort or pain.  Do I need to have it looked at?  How bad do they get before surgery becomes an issue? Tim

I have a question:  Has anyone had surgery on a hernia as the result of a colontomy?  I had a colostomy four years ago and since then I have developed a very large hernia.  I am considering having surgery, but I am afraid that it would pose more problems.

     Going in for hernia surgery, its going to be the "stem to stern" incision again, the hernia is the size of a football above my belly button, they will do mesh and probably a reversal while I am open, I have no colon so my small intestine will be reattached to my rectum. If anyone has had this done could you give me an Idea of what to expect after surgery and your recovery time, I may lose everything again because I wont be able to work and there is no help in Michigan other than homeless shelters an...

hey gizmo sorry im doin this outloud i have 2 hernias one Parastomal and the other the OLD stoma site im thinking basketball but guys why do i see the smaller one growing before my eyes the non stoma one is getting BIG real fast is that possible my tummy skin is changing and our Nurses on strike im booked in but have no date . Should i see my stomal therapist ??? if i earbash her enough i mite get in somehow earlier we are good friends i do favours at Ostomy Asso for her lol and she does favours for me we unfortunatly have known each other...

This is the first time I have posted on this site.  I've been reading it for a while and all of you have helped me feel less like a freak and given me hope.  I started with this whole thing last May with pain which I chose to ignore because I was afraid of cancer.  Many people in my family have had cancer and I was three weeks away from my son's wedding. When it got bad and I went to a specialist, he said he couldn't believe I was still functioning because I had an abcess which was infected. I ended up with a...

I might be ovet analyzing but I think I have a hernia but every ct scan I have says it doesn't detect one. Ive had 3.... is it possible that the scan missed it? I have a slight bulge near my stoma and some discomfort especially when sitting. Please help... thanks😁

Hi, Im 73yrs & have had my colostomy for 6yrs due to diverticulitus.Have had several bowel ops  before that, Nearly died during colostomy op due to heart problem. Now have big problems with a hernia & part of my small intestine getting trapped by it. To empty my colon , I have to push it up past the hernia & its getting worse.Should have had it all sorted a month ago but lost the intensive care bed half an hr before!My surgeon who was prepared to do has now left & the new Locum has been very negative & says wh...

off to doctors at 2 today it is rasied around bottom of stoma hope it is not another hernia have urine infection to i think,just want to curl up in a ball at the moment

Hi Everyone! I'm hoping someone knows what to wear for a hernia that's under the left side of my stoma. In April 2009 I had to have my bowel, anus and back wall of my vagina removed due to cancer. I've made a miraculous recovery, so the Doctors say.  I was expected to die beings I was in the high 3 stage they said.  Seeing my Surgeon a few weeks ago I showed her the large lump under my stoma.  I don't know anything about hernias, what they are, what causes them, etc.  So I was surprised when she to...

I've had my stoma for many years now,and it has changed my  life for the better as not having to rush to the toilet and having accidents,which were extremely embarrising, i feel more in control and the crohn's is undercontol. The only problem i've had is reacurring hernias around the stoma site. I've had three repair opperations but a couple of months later their back and get very large,to the state others notice them,so i just make a joke and say not bad for only six months i just wish i knew who the father is! But joking aside ...

Has anyone had a stoma prolapse and had to have their ileostomy moved to the other side of their abdomen along with an abdominal hernia?

I went to a support group meeting and a heated topic came up.  Made me uncomfortable just the way it was handled. Topic was hernia belts and not optional from speakers point.  Stated if you have an ostomy it is your responsibility to wear a hernia belt to prevent a hernia and added insurance expense a!ong with the emotional toll out on loved ones.  People walked out. I stayed thinking he is going to try and debate both sides or there must be a punchline.  Not so.  It did get me to thinking though.  Is a hernia...

Hi, I am scheduled for colostomy reversal surgery and incisional hernia repair in 2 weeks.  Has anyone here had these procedures or know of anyone who has with a positive outcome? Everything I've read on line so far is making me want to back out!!

(Ileo Dec 09 with no hernia to this point) Was out in the garden today doing some stuff ... this evening I have a pain very close to my stoma. It's not constant, but when it comes it's a fairly sharp pain -- is this a hernia pain Sigh - You want to the know what makes me want to put my head through a wall ... I just got a hernia support belt. While I was in the yard, it was in it's box on the coffeetable ... idiot . I don't see an obvious hernia protrusion ... so maybe it's giving me a warning Do most hernias come with pain Maybe I j...

Today I saw my surgeon (after not having to see him for 4 years!) and he told me my colostomy and very large hernia are here to stay. My insides are too messed up for him to try any more surgeries on my abdomen. He did tell me though, that I need to wear a binder for the hernia with a hole cut out for the colostomy. He said there are some out there that can be made specifically for your needs. Does anyone know who makes these / where I can order one?

Hi!  This is my first post.  My husband was diagnosed with UC about 5 years ago.  It went through him in less than a year, as he did not respond to medications.  After emergency rooms and blood transfusions, it was decided that the colon had to come out with the hope of a future J-pouch.  Right now he has a temp ileostomy, and is having more frequent and more severe bowel obstructions.  It looks like he's got a moderate parastomal hernia (CT scan after hospital stay last weekend),...

I have ostomy on my left lower abdomen. For the last year I have been experiencing a burning sensation from left hip bone to left edge of ostomy. No pain but the burning at times is very uncomfortable. I have a nice size raised area underneath the sticky portion of my wafer hence making the wafer on the left side pull away from my skin and having to change it. I seem to be changing it every day where as before the 'hernia', I would change every 5-7 or 10 days. I have a GI appointment at Walter Reed/Bethesda Aug 28th. I don't know if the do...

I had a parastomal hernia repair 10-30-13. Released 11-03-13. The wafer and pouch applied after surgery stayed in place until 11-04-13. Upon removing surgical equipment, I noticed stoma was flat with skin and stool was oozing between skin and wafer. Question...how long will that remain? Is that normal? What to use on skin during this time to alleviate excoriated skin. I see my doc and surgeons third week in Nov for first post op visit. Would appreciate any and all ideas, comments regarding above dilemma!

Hi all The risk of developing a hernia after stoma surgery is quite high. I  read that wearing some kind of support wear,  plus doing gentle exercises to strengthen your abdominal muscles, can minimise the risk. However when I mentioned this to the doctor and stoma nurses at the hospital they really weren't interested at all. In case anyone here IS interested, you might like to read this: http://www.comfizz.com/news/research.html More information plus the exercises can be found here: http://www.caet.ca/caet-...

Hi everyone!  I hope you are all doing well or better.  I would like to return to irrigating, but I have developed a hernia around my stoma which is rather large.  I plan to look into a repair in '15.  Anyway, I'd like to know if it is okay to irrigate with a hernia around the stoma.  Does anyone have experience with this you'd like to share?  Thanks bunches! XO!

I have just spent the last 6 days in Hosp. having my post op. incisional  hernia repaired. Two & a half years ago I had an Illeal Conduit Op. (  Bladder removal , Urostomy) However due to an infection in the original Incision , my guts pushed through the weakened scar line making rather a nasty bulgeing hernia. Also my belly was very badly distended ,I looked like a small Beer Barrell around the middle. Well ,I'm back at home now with a repaired hernia , an amaziing tummy tuck & a tidy scar line. The District ...

This may sound silly considering the size of some members hernias, but how big should one let them go before having them repaired. Ed

I irrigate everyday and was always successful with it. I now have three large hernias and find it impossible to clean out my colon all the way, being blocked somewhat with the hernias.  Usually an hour or two the remaining works its way out then. I tried less and more water but still the same results.    Anyone else have this problem with hernias and irrigating?

Hi I have had a stoma for six years now following colorectal cancer.I developed a parastomal hernia about  a year ago. I recently stupidly moved a washing machine now I have slight pain if a stool  is touching the stoma or when it moves just before it passes through the stoma. Also I wear Corsinell support boxers which unfortunately tend to promote pancaking. Can anyone help please.

I am concerned about a parastomal hernia that I was just recently told that I have. The surgeons offered me the option to have it repaired. It is fairly small at this point however, it is causing me some pain and is protruding enough that it is visible under clothing and is causing some difficulty with keeping my appliance on for very long.  I was wondering if anyone has had this issue and did they have it fixed and was it worth it?  I understand that it's possible that the hernia can come back in relatively short time.  Y...

The 28th I go for a  consultation don't know what to expect, I have developed a hernia where my Stoma is and the hernia is large and I'm due for a  reversal. Can anyone tell me what might happen, will they do both at once?  I'm so afraid 

I  have been living with horrendous complications from my August 2017 colostomy. I’ve had to deal with leakage problems due to my numerous hernias. I have tried every company out there to no avail!  No one could seem to help me. I was so desperate, I called the Ostomy Association for assistance. They referred me to a top notch ostomy nurse at Scarborough Centenary hospital, Toronto. Immediately, she told me I needed a soft convex flange from Salts/Argyle who actually make their flanges for hernias!!  You can mold the f...

I would like to know what excises or yoga can I do that will not hurt my hernia?

This is my first time posting but have often read forum in the past.  Not new to ostomy but new to leaking problems.  Had  ileostomy surgery in 81 due to UC.  Never any problems until peristomal hernia occurred causing leaking and shorter wear time.  I use Hollister premuim flat one-piece pouch.  Stopped using barrier rings thinking this was part of the reason pouch was leaking.  Seems to occur mostly at night when stoma tends to retract.  Even tends to happen ...

Hello everyone,  does anyone have any info regarding urostomy hernias?  Do they get worse as we age?  Is surgery an option, etc.....Thank you for your time. Eileen, ( Love this site)  

Hi Guys and Gals .... It seems just recently that people have been saying that hernia repairs using mesh have caused problems. I would be very interested in anyones stories as it looks like my surgeon will be repairing my huge hernia in that way ... Good and bad stories please so that I can make an informed decision! Rach xxx

I just spent forever typing a message an lost it..ugh..wow an I was on a roll..ok I'm gonna try one more time..now..I have a colostomy had rectal/anus cancer..since then had surgeries for hernias...obstrutions...all in all I have been hospilitized at least 7 times after my cancer surgery...had surgeries for hernias an obstructions..last time was a big mess..had hernia repair..had more small intestine removed..adhesions an obstructions...thought my surgeon was gonna have a breakdown..lol...anyway I ended up with major complications...had 3 ...

My reversal and hernia surgery is tomorrow, Feb 3rd!  I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now.  It's funny how food looks and smells so great when you can't have it.  I'm nervous and anxious for tomorrow to come.  I pray all will go well and all of you on this site have helped me with all of your encouragement and information.  I am truly thankful to you all.  I'll post again as soon as I'm able after my surgery and let you ...

I'm over 2 years down the line from my stoma, and still hate "Colin" with a vengence, still smelly, painful and a nuisance, but a few months ago after getting  a bad cold, I sneezed and had terrible pain, but that's sort of normal for me, as I'm a paraplegic, however , since then "Harold" appeared, and now sticks out about 5 inches on top of my horrible fat tummy.  When I eventually showed my GP she told me to see my wonderful stoma nurses at Glan Clwyd Hospital and they confirmed my suspicions, of h...

Hi,I'm once again suffering from a parastomal hernia,biggest problem apart form the discomfort is the bag becomes more noticable :( I've tried various belts but i find them very cumbersome,Anyone any ideas. 

I Recently developed a parastomal hernia. Months prior to that, I was starting to work out more and more. I still walk daily, but, I would still like to do some strength training. Specifically, my arms. Are there any exercises I can do to strengthen my arms without putting any strain on my abdomen? I tried doing some, but, I can't help but feel there is some strain on my abdomen still. Thanks.

HELLO TO ALL. IS THERE ANYONE OUT THERE IN CYBER-LAND KNOW ANYTHING ABOUT PERISTOMAL HERNIA'S?? I'VE HAD MY HERNIA FOR BOUT 18MTHS NOW BUT THE LAST COUPLE OF MONTH'S THE HERNIA IS TWICE AS BIG,MY STOMA IS RETRACTING INSIDEME,I'M BLEEDING ALL THE TIME, THE PAIN IS UNBEARABLE, ALSO THE STOMA KEEP'S TURNING AN OFF WHITE COLOR?? COULD ANYONE GIVE ME SOME ADVISE ABOUT WHAT I SHOULD DO. THANKYOU VERY MUCH. jadegenie40........       

Having only started reading the postings on this forum a few days back, forgive me if I am asking a question already raised. I had a urostomy about 18 months ago, and some six months back noticed a swelling to the side and below the stoma. Surgeon said that it may need an operation should it get any larger but they are reluctant to do so as it can result in infection. I have noticed in other postings on this forum, members mention that they have had more than one hernia operation, and I just wonder why. What can - and did  go wr...

I am having considerable discomfort  with my hernia although I seem to have read somewhere that they seldom hurt mine does - do any other members suffer this?  Also how big is "big" with regard to this kind of hernia, I have to lie back on the bed for a while before I can change the bag (which makes going out for a day difficult) - anyone found an answer for this? I mention member lottagelady because I seem to remember her surgeon told her that her hernia was about "as big as it gets" Regards, praw

HI IS THERE A FELLOW OSTOMATE OUT THERE THAT KNOW'S MUCH ABOUT PARASTOMAL-HERNIAS?? 4 MONTHS AGO I HAD SURGERY FOR A HERNIA AND AT THE SAME TIME THE SURGEON RE-FASHIONED MY STOMA, THEN AFTER I HAD BEEN HOME FOR 4 DAY'S I GOT AN ABCESS AND ENDED UP WITH PERITONITIS AND HAD EMERGENCY SURGERY. ANYWAY 4 MTHS LATER MY HERNIA HAS COME BACK?? IS THIS NORMAL AND WHAT IS THE SUCESS RATE WITH A HERNIA REPAIR. I REALLY DONT WANT TO GO DOWN THAT TRACK AGAIN. VERY CONFUSED!!

Having an enormous hernia following a urostomy about three years ago, I am due to go back in to hospital in some four to six weeks time to have it "corrected" using the mesh method. However, reading a number of blogs on this forum, I am beginning to wonder if it's worth while, since the majority of reports are negative, it would seem. Although I have genuine sympathy with those who have reported failures or frequent repeat operations, I would love to hear from anybody who has had a successful hernia fix. Come on, there must be ...

Hi, I have just joined the site and looking for anyone who has had a Hartmann's reversal and abdominal hernia repair done at the same time. I had emergency surgery in April and nearly died due to infection and my wound didn't heal for about 2 months I cannot have the hernia repaired without having a reversal and Iam really scared as I had no intention of having a reversal for a while as I feel really good, the best I have felt in about 2 years can anyone help.

     This is a letter sent to my Doctor from my Surgeon, has anybody been through the same procedure?. I wonder what you feel my chances of sucess are?.      " Further to my last letter on Mr Hughes, his contrast imaging does confirm he has a very short rectal stump, probably only 8cm in length. He does appear to have a reasonable amount of left colon which, if fully mobilised would reach the lower rectum. his abdominal wall is, as expected, very distorted and deficient."  ...

I have had illeostomy for 35 years. Over the last ten years I have struggled with a large hernia at the stoma site and over the last 2 years multiple hospitalizations for obstructions. I had a hernia repair at the stoma site (fot a much smaller hernia) quite some time ago. The last time I was hospitalized the surgeons and gi folks said if the obstruction occurs again I should have surgery. They said it would be a major surgery and my stoma would need to be relocated. Would anyone who has gone through this please give me some insight o...

Hi,  As part of my last operation, I had an abdominal reconstruction. My surgeon said that I have a 1 in 4 chance of getting a hernia and advised me to not lift anything heavy too strenuous etc.  I am 43 years of age and feel very frustrated as I would at least like to build up my strength in the gym. I am paranoid about every twinge I feel in my stomach. I would just like to do some light weights along with the cross trainer and running machine that I have been doing. I am started of getting bored of both those pieces of equip...

Hi All, I have developed a hernia around my stoma which causes me great difficulties, has any member had such a hernia successfully repaired and could recommend a surgeon here in the UK. Regards, prawle

I need some advice on what to expect and encouragement.  I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it would cure all my problems.  My remaining tranverse colon was deemed to be unaffected by the crohns.  That surgery was two years ago and since then the crohns has appeared in my remaining colon and I also have a severe parastomal hernia which is painful as I believe it is restric...

I have posted before on my itchy, sore, and even cold feeling scar tissue in my Barbie Butt, which hasnt improved despite creams, tablets or trying to ignore it. Could it be a small hernia causing my discomfort? After the last inguinal hernia repair, could my abdomianl pressure have transferred itself to my nether regions. I cant see any bulge there, but when I take big steps, or climb stairs it almost feels as if something is pulling. Maybe its one of the little webs of skin I have all over that area, but walking definately feels unco...

I have had my colostomy only since April.  I now have a hernia that burns and itches and hurts.  The doctor says it is fine and he will fix it when he does the reversal on the ostomy.  Has anyone else had a hernia after their ostomy and what do you do about it to make it stop itching and hurting?

I've watched the blogs for months but this is my 1st time writing. This  is the 6 month anniversary of my ostomy.  The first  months I went thru the typical stages, disbelief, denial,  anger, depression embarrassment and finally  acceptance. My stoma was completely manageable, no problems,  In July  my hernia appeared and since then everything's changed; 5 out of 7 days my stoma is uncomfortable, sometimes an ulcer will develop, and/or  I develop yeast infecti...

O.K.folks. I need a bit of advice/guidance/help,etc. I have an Urostomy - since Sept.2010 - for the usual reason, cancer, and the aftermath of the surgery was a nightmare ( but thats another story). I developed a large hernia in 2011, around the stoma, and this was operated on in Oct.2011. All was good until about a month age when the bloody thing came back. It came back in the same place and the same, if not bigger, size. Have got some pain with it and a lot of discomfort. Have spoken to my local G.P. who is of the opinion I may have to ...

I think I have developed a hernia on my stoma site! With only about 6wks before my reversal. Hopefully they can repair when they reconnect, it is not too bad right now but it is uncomfortable when walking. I guess as a woman I have done too much lifting, working etc..

i know i dont post on here a lot since joining this group but due to unforseen circumstances ive not been able to get on the internet for a while. but i do really need some advice. i have a large hernis developed next to my incission scar which is getting more painful and sticks out a lot more. recently its changed shape and become warm and tender to the touch. i cant afford to take time off work to get the surgery to fix it anytime soon. is there any advice anyone can give on how to handle this?  my doctor has told me to loose wiegh...

I now have what my surgeon calls a parastomal hernia.  I would like to hear from anyone who also has one and what they do about it on a day to day basis.  My surgeon does not want to perform surgery unless it begins to bother me.  What about a parastomal hernia belt?

I have read some posts where people say a hernia formed.What caused it and did it make the stoma bigger where it makes your cloths look like you have a giant ball under your shirt?? mine recently started getting bigger and i dont know why

Do you recommend hernia surgery?  How do you feel about wearing ostomy hernia support belt instead of having hernia surgery.

how do I know if I have a hernia? I look pretty swollen around my stoma but there is no pain. My nurses who change my pouches always comment that the area looks good - but that’s always when I’m laying on my back. So if I DO have a hernia, would I have a lot of pain?

Does anyone else have a hernia with their ostomy?  I am very self-consious about it.  It's so hard to find clothes.  Especially in the summr months.  Any suggestions?

Hi All, I have developed a hernia around my stoma and am due to see the surgeon who did the stoma (Jan. 2009) within the next few days. I get the impression that this type of hernia repair can be difficult - my question is am I better going privately to a hernia specialist or staying with the (NHS) surgeon who I have been refered back to? If Whoa reads this I'd very much appreciate her opinion being a stoma nurse. Regards, prawle

Hello, I'm new to this site so still finding my way, that is if my memory...what's that! will allow me to remember where I've been before. However despite all that I have a question regarding quite a large parastomal hernia. I acquired this Ileostomy as a surprise after an operation on my spine. I was told I developed a blockage which caused a rupture of the colon. I did have a good stoma nurse available where I was living when I had the operation but have since moved house and the support I have discovered is nil in this area. My hernia i...

hi i have been thinking (worrying)about hernias. i do get a bit of puffing out around my stoma sometimes and i was wondering if aside from support belts and careful lifting are there excercises you can do to strenghten your abdominal muscles. would something like polatis help? anyone tried this and found it benefitial? want to try to avoid things getting worse if possible. thanks margie

Sorry, been away for a while - just not feeling so bright. Anyway following a recent CT Scan, it appears that my small intestines have dropped into my hernia space and are frolicking about down there with my colon ..... no wonder I keep vomiting! Anyone ever had this - it seems that this may be a trickier op than thought?? My gynae surgeon also wants to be present to decide whether or not to remove my uterus due to endometriosis too .... Any thoughts, previous experience of this?? Rach xx

In 2003 I had a colostomy due to incntinence....Before that I had 2 surgeries to repair the rectum muscles neither of which worked, thus the colostomy.....I now have a large hernia and would like that repaired, but the doc says it will only come back.   I have problems with clothes fitting properly and am very self conscious of the hernia. Can any one give any advice as to this problem?  I am thinking of seeing another surgeon but he is not a colo-rectal surgeon....Any advice woul be helpful.....Thanks for listening....

Please can someone help me I'm in pain I got out of the hospital Tuesday the 23rd because I have a hernia under my stoma I have an ileostomy and I have been in the hospital 3 Times now and I am very sore from throwing up and this hernia is sore. I am going to have surgery August 5th I changed my wafer and bag cuz I had a burning pain and my stoma is swollen and it is sunk in where I can get a good hold and when I push to try to get to seal it hurts really bad. Should I put an ice pack on it. Please can anyone know what I can do. :'( Any s...

Can anyone tell me how a hernia feels like after stoma fitted and what pain it causes?

Looking for some advice.  Had ileostomy surgery 11 days ago and now that I am home have noticed a bulge to the left of my stoma which is quite painful.  I should mention I had this bulge after surgery but the sharp, burning pain began two days ago.  This area is very tender to the touch and hurts considerably.  Every where else pain has diminished significantly.  Should I be concerned about the possibility of hernia?  What symptoms should I look out for?  Any advice is g...

I have an ileostomy and the stoma is about 2.5 inches left of my belly button.  I am a tall lanky guy that had a small belly prior to my ostomy surgery in October 2012.  My belly protrudes quite a bit now, looking like a small beer belly.  Para-belly I've heard.  Over the past few weeks, my whole belly has been hurting.  A dull pain.  Some times feels like it just wants to explode.  There is no sign of anything bulging.  Doesn't seem to matter whether my stomac...

I am 39 have had my now permanent colostomy since mid-1990. Back story… I was born in 1976 with an Imperforate Anus and nearly half of my intestines dead, and was immediately constructed a colostomy and the removal of the dead intestine. First abdominal wall surgery performed, and the beginning of scar tissue/adhesions. In 1979, a rectum was formed and a pull-through and reversal of the colostomy was performed along with lysis of adhesions and removal more intestine. That being the second abdominal wall surgery performed, continui...

How do you know if you have a parastomal hernia?  Is it painful?  I realize there is supposed to be a 'bump', but I've gained 20 lbs. since surgery (sigh...........) so can't go by that. My main question is what could cause pain around the stoma area - like deep inside pain, not skin surface pain.  Could that be a hernia?  It isn't a blockage because I have output - actually yesterday was a great deal of output more than usual - can the stoma get sore or the bowel get sore after a day like that?  Very new at this ...

how do you know if you have a hernia?  are they all painful?  what causes it exactly?  

I have a colostomy since 2011. Always worn my ostomy bag hanging outside my underwear and never tucked in. Thru the years I've started to notice a protrusion on the peristomal area. I suppose because of the "pulling" caused by gravity. It got so painful I could not even walk. My surgeon concluded I had peristomal hernia. In the first place, do surgeons have the responsibility to tell their ostomy patients about the possibility of having a hernia in the future?  If my surgeon did, I would have worn a support belt right after my surgery...

Hi there, If anyone has had hernia repair surgery with a colostomy, how long did it take for you to have a bowel movement after surgery??  Thanks for reading.   Regards, Five

Hi there. This is my first post. I am an immunosuppressed person having had a liver transplant 14 years ago and have a parastomal hernia that I am considering having surgery for. My question is: Are there any immunosuppressed people out there who have had parastomal hernia surgery? My potential surgeon advises that there are many risks for me ant that I can expect a long and difficult recovery. Any advice/thoughts would be most welcome. Have a Great Day.  

Hi just looking if anyone has had or have got a hernia under therir stoma as I had that a year ago and they put a mash in me nad now the hernia has pushed out the mash and is back again.... I am currently awaiting on my op but I have so much pain in the spot of my bag and under it my belly is like a volcono on 1 side, would so like to here from anyone else who have experience this. thanks x

Hi I am new to group and hope someone can give me some info. A couple of years ago I had a colostomy after diverticulitis which led to peritonitis fistula and sepsis also had a necrotic appendixI am truly grateful for the surgery and to the doctors who saved my life I have since developed a large hernia and this is rather debilitating. I am considering a reversal and hernia repair which I have been told is possible but I am wondering if the diverticulitis can come back after revert. Has anyone any experience of this? Doctor has said that t...

My surgeon showed me this. It can be a little uncomnfortable and even painful but it works and he said there is little chance of injuring yourself. My hernias are para stomal which means they are all around my stoma. I have approx 18 inches of mesh holding my belly together so the hernias are pushing out around the mesh. I lay on my back and relax,, feel around my stoma till i find the hernia or the bulk of it. Then with the flat of my palm I work that area in a circular motion till the hernia pops in. You will feel it go in ,, it either...

I had a hernia near my stoma repaired in April 09. I still having pains and I feel cramped and gasee all the time. Can anyone out there tell me if this is normal and how long does this type of operation take to heal. Steve

I had my stoma put in April, 2011. (I had Ileal Conduit ByPass Surgery) In August of this year, I developed 3 hernias; the largest one was under my stoma. The doctor placed a large piece of mesh in my abdomen. (I have had 37 surgeries in the past 10 years. Four of these required large incisions.) At the beginning of this week, I started having pain at the stoma. The has been very bad the last three days. I am throwing up once a day or I am nauseated. I don't have a fever but I am having very bad night sweats. They are so bad that I have to...

l have a parastomal hernia which is causing me pain and affecting the quality of my life.l am 55 and had a ileostomy for 25 years.l have only had the hernia for the past 12 months.l have decided to have it repaired even though the surgeon said it is a difficult operation. Has anyone else had this surgery done and if so was it successful.

HiI have just had a "stoma' hernia repair, and I was horified to see the end result, my stoma seems to be inverted where as prior to the op was a nice protruding bud...I am praying that once the swelling is down that it will be back to normal.....I had it repaired as it was casuing the stoma to invert and the "pooh" would then leak under the wafer....sometimes it is better to let sleeping dogs ly than to fix........needless to say it is very painful but Dr says 2 weeks then will be OK has also prescribed a "hernia support belt" that i must...

Hi everyone. I'm back. I am still having issues. I'm allergic to some of the glue on flanges. So my nurses have been working hard to find something that works and doesn't cause rashes. But now I have another problem. A couple weeks ago I started feeling pain inside my stoma. After going to my family doctor he sent me back to my surgeon. I found out I have a hernia. My surgeon says she can't fix it here because to many complications can happen. So now I have to go back to my surgeon in the city. Do I have to have it fixed? Don't think I can...

First off...thank you all for your previous kind and VERY informative and supportive responses.  My colostomy is now 4 months old....I count that day as my new birthday.  Surgery done emergently secondary to a perforated sigmoid secondary to a pesky diverticula that decided it needed to expand and grow!  Anyway...had many issues - primarily with leakage and then developed an incisional infection.  After much trial and error, and some engineering input from my precious mate, the leakage problems are now non existent for...

Good morning,  Brand new here, I have only had my ileostomy for 4 months May 12th, 2016. I now have a large parastomal hernia behind my stoma. Surgery on Tuesday 9/20. Has anyone else been through this? If so what is the recovery time after the surgery?  When this happened i was in the middle of searching for a new job after my comany sold the division that I worked in, to another company that didn't want to purchase the employees.   Plus I have an interview with a company (that i would love to work for) a week after surg...

Hi I'm new at this computer. I'm 67 and not very computer literate. I have a hernia on my left side at my ostomy and one on my right side. The doctor won't operate until I lose at least 35 pounds unless I have a problem. They were both operated on in 2014. It was laproscopic surgery. They lined most of my abdomen with mesh and sometimes I think I can see the mesh under my skin.I'm worried about how big the hernia at my stoma will get and how they will remove the first mesh? I'm very frustrated over this whole thing.

I have a Parasomal hernia. I was never told about this happening. I understand it is quite common and mine is small by some standards I am sure. I suspect, but I wonder how large it could get.  I ware a belt every day but take it off at bed time as Gravity is less.  It recesses when I have the belt on. I'm a heathy and very active 74 year old and was operated on 4 years ago.  The hernia appeared in the first year and so far has not grown too much.  Jim

So I am 2 months out of surgery with colostomy on lower left abdomen, below belly button. It is where my spare tire is! That side has been significantly larger than the other, and I'm having pain or feeling strain too. It's not all the time, and not debilitating, but it's annoying. Three weeks ago the surgeon said, it was too early for a hernia, to wait out the 3 months, which he says is when everything should settle down.  My stoma nurse said,  the stoma looks great, she didn't detect anything, could be scar tissue, or gas even!...

Hi I had my bladder removed in January and just recently maybe the last month or so I have been getting pain and I have felt a lump behind my stoma. I asked my stoma nurse and she said Yeh you could have one! That was it. I'm concerned only because just this last couple of days I'm getting horrendous pain behind my stoma to the point I have to sit down where it takes my breath away. It's like someone is stabbing me. Also it's so painful when I cough, sneeze or even stand up. I haven't got a noticeable lump protruding out my stomach but I c...

My Dear Dad had a hernia for quite a long time that seemed to get an abscess and needed surgery. He had mesh ( think this is how they mend a hernia) and then it seemed to open up and has ended up a terrible mess. He now has a bag basically because he ended up with a horrid opening; he appears to have the start of other openings and now has two bags on. Could someone please help me understand why this occurred. Just love my Dear od Dad and want to help in anyway. He also gets UTI’s which make him very weak and confused and he always h...

Evening folks, So to pile on to everything I have developed two hernias. The one that gives me the issue is a waist line abdominal hernia. I wear a compression wrap but with weight loss and the shape of my body (I am a bigger gentleman) the wraps I have found are not doing the job as well as I need them to. Looking for recommendaitons on brands and types of wraps to try. I would prefer something not as tall so I can get it into the area better. Right now I am using a 3 panel wrap and in trying to keep the stoma free it folds and falls dow...

I thought I would ask the community to see if anyone had any experience.  I had my colostomy reversed in 2015, had a small hernia that was repaired at the same time without mesh.  Approximately six months, give or take, after the takedown I developed a another hernia that just keeps getting larger.      I have yet to pick a surgeon,  but have a complex hernia that needs to be repaired by a Component Seperation Technique and reinforced with mesh.  One option is use Botox before surgery on the muscles to&...

I have an ileostomy and several months ago found out I had a parastomal hernia. No plans on surgery at this point in time. I hate hernias more than anything. I've had them before and they are such an inconvenience. I do have a hernia support belt made specially for stomas. I am so afraid of doing anything because I know it will get worse and I just fear how big it can get. First thing... PLEASE no one tell me horror stories about how big theirs got or someone else's. PLEASE no horror stories about hernias blowing up and needing emergency s...

Is there a right or wrong time to start wearing a hernia belt for the first time?  I had a ileostomy later in April 2018.

I went to see my stoma nurse a few weeks ago and showed her the big bulge I have at my stoma area and she said it was a hernia which could be easily rectified. Apart from the fact that I find it a bit painful I was annoyed that she treated it so casually. Now I seem to have another one on the other side, is this possible? I am not due to see anyone until December so am not sure what to do now. Anyone had the same problem? I am so glad that I found this site as everyone is so helpful.

Hi all, I need some advice I had a colostomy reversal & hernia repair 9 weeks ago and all seems to be settling down one or two small issues but generally all seems to be ok. My question is do I or should I use anything to hopefully stop a reocurrance of a hernia . I am aware that I should'nt lift anything too heavy. Many thanks pippa

i have a colon hernia because of sciatica problems i an looking to use alower back massager any reason why ishoudnt

I have 3 hernias from my surgery, having problems irrigating now. I try to evacuate all the stool but afew hrs later i have more, i can't clean my colon out all the way. Any suggestions or does anyone else have this problem with hernias and irrigation?  Very fustrating!!!  UGH!!!!   Thank you!!!

There are many on this site who have to deal with hernias.  Several years prior to my cancer/colostomy, I had an inguinal hernia, which I had repaired in a pretty simple surgery.  With the ostomy related hernias, however I don't see much talk of repair.  The discussion and advice seems to be more about living with the hernia.  Is there something with respect to hernias and ostomies that makes repair not a viable option?  Just curious. Dave

Please can someone help me I'm in pain I got out of the hospital Tuesday the 23rd because I have a hernia under my stoma I have an ileostomy and I have been in the hospital 3 Times now and I am very sore from throwing up and this hernia is sore. I am going to have surgery August 5th I changed my wafer and bag cuz I had a burning pain and my stoma is swollen and it is sunk in where I can get a good hold and when I push to try to get to seal it hurts really bad. Should I put an ice pack on it. Please can anyone know what I can do. :'( Any s...

Had hernia repair 10-30-13. Skin around stoma had dips making fit of wafer impossible for any length of time. Skin breakdown was horrible. Ordered ConvaTec Moldable wafer as a free sample. IT WORKS! First Moldable wafer put on Sat afternoon and she's doing fine! So excited! (doesn't take much huh!). Will monitor the new equipment before ordering if need be. Go for follow up 12-17 so if equipment doesn't work, I can see the WOCN while there. Keep me and 'Mary' in your thoughts as I'm sure many have experienced this challenge. HAPPY THANKSGI...

Thinking about having parastomal and incisional hernia repaired (second time) with surgeon who uses Botox to relax abdominal muscles to aid in healing and prevent future hernia- anyone hear about this technique?

I have been diagnosed with several hernias behind my stoma.  The surgeon stated I was "too high risk" for surgery to correct the matter.  I have many questions and am wondering if any of you have any experiences to share.  Thanks for any information.

Hi, Has anybody had a colostomy reversal with parastomal hernia? I will be having my reversal in a few weeks and I am worried to death. Having this colostomy is giving me very much anxiety. Reading anybody's responses who had a successful reversal with a parastomal hernia might just make me feel better :-)

Hi I had an ostomy reversal in March.  Now I have two hernias.  Wondering if any one has had same experiance

Hi,  I've had an illeostomy since August 2007.It has taken a lot of getting use too.I developed a hernia in 2012 which I had repaired in 2015.It reappeared 2 months later which was very hard to accept.I now sometimes have problems where it becomes very hard and painful I massage it and eventually goes back to normal.I was wondering if anyone could tell me if they know what can cause this.

Hi, my name is Dee and I am extremly grateful for this site.  I am 85 years old and have had my colostomy bag for almost 6 years.  Just recently I have a hernia which is adjoining my stoma.  I have already got a belt which is uncomfortable.  I am wondering if there is any kind of microscopic surgry to get rid of the hernia.  I am super afraid of getting a reversal and undergoing surgery.  I am extremely terrified of having anesthesia.  I was very very sick after my operation.  Can anyone help me........

Hello.   I am from New Zealand.   I have a problem with a Herina.  It is not in my stomach or front of me but it is in my backside. Between my backside cheeks.   I feel it is getting larger.  The doctors tell me they do not want to operate unless absolutely necessary as this type of operation is not always a success.  The stoma nurse suggested support panties, but all the ones I have seen on line etc are for supporting stomachs not backsides or buttocks. The stoma nurse could not provide any as ...

Hi good afternoon,   I have had my stoma now for 6 and a half years and i have a hernia with it which i have had for some time.   Im curious to know if anyone else with a hernia finds that if they sleep on the opposite side does the hernia feel soft in the morning.   Thanks for everyones help.   Jay

Can anyone tell me if its okay to wear a girdle when you have a stoma.  My hernia is getting quite big and causing discomfort :( I am having reversal surgery on August 8, 2017 but until then I was wondering if wearing a girdle will cause problems to my stoma :(  When I have a girdle on the hernia feels better however I don't want to cause injury to the stoma.  I've tried a belt but it doesn't offer much support.  Any suggestions would be appreicated :)

Has anyone had a parastomal hernia repaired and were they able to continue irregating their colostomy after the repair.  I have several surgeons giving me different outcomes.

hi all, I'm from the uk. I'm due on Friday to have surgery here on iliostomy reversal and hernia repair, has anyone any experience or advice about this please.

I thought I was careful after my surgeries (emergency surgery, colostomy reversal), but I still ended up with several incisional hernias (at both surgery sites).. Apparently that can happen if the muscles don't heal well together. i just had my hernia repair surgery 4 days ago (outpatient, laparoscopic, stitches and mesh), and wondering if anyone else has gone through this and can share their experiences and recovery... and if any hernias have redeveloped.  My surgeon warned me this would be uncomfortable, but The pain has been wor...

Good day all.. Well I'm new to this place just came across while doing research on illostomy hernias..  I won't get into my hole life history with crones But will add iv got short gut and a gut so full of scare tissue surgery isn't an option inless its life or death.. Which is why I'm hoping someone can possibly have a trick up there sleeve . iv got a hernia at my illeo site. That wont go away. And everytime I eat it get very extended  pressure and what I can describe as my skin being torn from the inside which is the scare tiss...

Getting my second surgery within 7 months of each other.  This time mesh will be used.  Just have to accept the fact that this can happen when you have a stoma.  Just have to be careful, keep your weight down and wear support.

Yesterday I finally saw a surgeon about my hernia.  Its quite large and its been about a year Ive been trying everything suggested by my ET nurse....trying different products...eakins and barriers...skin protector...changed the position of flange on my skin.  Nothing has been successful.  I leak all the time because the flange just won't stick.  My skin gets so red and irritated and its so big and heavy . I cramp and sometimes cant bend over.   Well, finally my ET nurse and doctor reffered me to a surgeon.&nbs...

Hi anyone. Just joined and seeing if anyone else has had this procedure I’m having. I had my subtotal colectomy, ileostomy in November 2016. Due to many complications including twisted stoma, refashion, infections, being opened up another 4 times, blockages, sepsis etc I didn’t come back out of hospital until April 2017, it was pretty rough. Unfortunately I was unwell all year and went in for more surgery in January but just as I was being wheeled down to theatre we were turned back as the ICU was full.... so that’s the h...

Hello, I had my emergency Hartmann's done in Lincoln one year ago, it prevented me from dying at that time. On May 3rd this year I had the reversal done and a hernia repair carried out in Nottingham Queens Med, i was under the knife for less than three hours and woke up to no bag, the elation was unbelievable, I was euphoric. I stayed in hospital for one week being released the following Thursday. This is now 13 days post op and my bowels seem to have more or less settled down, I have stopped taking the laxatives as they were maybe too e...

Is sex and/or masturbation harmful if you have a parastomal hernia. I'm afraid to hear the answers. I'm afraid it's going to be just one less joy. Is it simply a matter of technique or just if it hurts, don't do it? Thanks.

I have had a colostomy for 25 years now and for the last 2 to 3 years I have noticed blood spots in my rectal discharge. Lately However, more blood is showing up.  I also have a stoma lately mostly protrudes about 3 to 4 inches past my herniated belly. Anybody else having these symptoms by chance? Should I just go to Emerg to get a few tests or wait until I MIGHT be contacted by a specialist? Any help here would be of serious value. 

sky, I had one several years ago, it was fixed with some mesh, during another surgery.  I had it for a few years when they decided to do a total colectomy.  I hope this helps

Ostomy nurse just been yep another hernia but i am going to put up with it as i am off to hong kong soonin 3 and haLF MONTHS i have hernia support undies so am using them.see what happens when i come back she told me if it get sore get meds from doctor

had sigmoid colon removed in nov 2014. now the mess is falling apart and big hernia is developed allowing blockages. so there talking about maybe a reverale and abdomiable re enfocement. anyone tell me about this? good bad ugle?

Just saw my surgeon about my 6" colostomy stoma. Tuesday, he will redo the stoma and use mesh. Minor surgery compared to what I have been through. Am in hurry . Let's get it done. Steve