This topic is about finding resilience and perspective while living with an ileostomy, with insights from the experiences of wounded veterans. The originator of the discussion is reflecting on their journey, especially as they approach the third anniversary of a significant surgery that resulted in a permanent ileostomy. Here are some key points and advice shared in the discussion:
- The surgery was a life-changing event, described as both traumatic and unforgettable. Despite the ongoing physical and emotional challenges, the originator is committed to building a fulfilling and vibrant life.
- Frequent visits to Walter Reed National Military Medical Center have been impactful. Seeing young service members with severe injuries has reinforced the idea that everyone facing bodily loss, whether veterans or ostomates, has been through their own battles and has much to offer the world.
- The originator’s surgery involved the removal of the rectum and sphincter, leading to ongoing "phantom" sensations and a persistent perineal wound. Two attempts at perineal debridement have been unsuccessful, and a future flap repair is on hold. Currently, the wound is managed with the antibiotic Keflex.
Advice and insights shared by others include:
1. Perspective and Encouragement
- Focus on gratitude and recognize that survival itself is an achievement. Internal injuries like ostomies may be less visible than amputations, but all patients deserve respect and self-compassion.
2. Anal Discharge After Colostomy/Ileostomy
- Passing watery or mucus-like fluid can occur even after surgery. This may be due to mucus from the rectal stump or residual secretions. Painful or foul-smelling episodes are more common soon after surgery and often decrease over time.
- It's important to mention any sudden or persistent changes to a physician to rule out infection or other issues. Antibiotic therapy, such as Keflex, has helped some patients when drainage is linked to infection or chronic wounds.
3. Courage and Humor
- Members share resources and light-hearted references to help cope with bodily loss, using humor as a way to find resilience.
4. Veterans’ Care
- There is interest in how the U.S. government supports wounded veterans, with comparisons to benefits like Australia’s "gold card," which provides free lifelong medical care.
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