Meet & talk to fellow OstoMates 20,317 members

You, Me and Us

Posted by Angelicamarie, on Sun Aug 11, 2019 6:16 am


There a lot of new ostomates joining or thinking about it. Many feel alone, How do I know? because I have felt the same way.

Some may post and some may be shy afraid of being judged, well for sure their many that wont judge you.

You may feel like they are those that had their ostomies so long they don't care. Not so, many do!

There so much knowledge here because each one that are an ostomate have a story with experience.

Keep in mind, what works for some might not work for others. every one of us digestive systems is different.

Many had a colostomy, ileostomy and urostomy, each one can tell their story of what they went through- thus you put all that together /much knowlege.

I have a colostomy in whch I can irrigate, now listen it don't work for everyone. so if you try and it don't work it's just your system. we all differ.

By the way, I'm one that can't go 24 to 48 hours as some of my fellow ostomates. Periodically it works not daily, and yes I wear a pouch.

Many have families yet feel alone, I get it, I was there too. Initially I was frightened to go out for fear of leaks, perhaps even shame.

I have experience humiliation out in public, in the beginning after surgery. I survived!

Did I ever have a mess where I had to change my bedding, Absolutely, on occasions it still happens. thank goodness it's in my home.

Did my skin become irritated some time, yes of course and still do. Look if your poop eats through the rubber surely it will affect your skin.

On the same note, their many that differ in when they change their equipment, you have to do what's best for you as an individual.

Of course our bodies are different, some have ther buttock sewn shut and some don't. I didn't however I do pass mucas, which is old residue.

Was It frightening when it first happened? why yes of coures. It still occurs periodically. more than I would like it to happen

You may even have to empty more than others, wow it was so easy going to the bathroom 1 to 2 times a day. and now seems like it never ends,

Your not alone......

Do I have answers for everything, hecky no... But I can tell you what I've been through and maybe it will help...

Those that are struggling because of this sugery, your not alone, learn all that you can. remember each one of us is different, so don't beat yourself up.

Hang In There!



Last edited by Angelicamarie on Sun Aug 11, 2019 6:33 pm; edited 4 times in total
Reply by Bill, on Sun Aug 11, 2019 8:03 am

Hello Angelicamarie.

What a lovely, realistic message, which hopefully will encourage newcomers to participate in conversation with us on this site.

Best wishes


Reply by Angelicamarie, on Sun Aug 11, 2019 9:21 am

G'morning Bill, Thanks, perhaps it will!





Reply by Angelicamarie, on Sun Aug 11, 2019 9:26 am

Hi,ron and Jimky1, Thanks!

Reply by Songbird16, on Sun Aug 11, 2019 11:17 am


Thank you, agiain.  You are such an inspiration for many people here. Well written, to the point and you write in a way the people understand. You are a wonderful person and much appreciated!

Again, take care.


Reply by Angelicamarie, on Mon Aug 12, 2019 6:14 am

G’morning Songbird, Morning Glory and Bc. I’m so use to seeing comments on the post in writing. Never do I want those that enjoyed anything that I posted thinking they were overlooked. Thanks!




Reply by scorsby, on Mon Aug 12, 2019 1:44 pm


Very good, very comprehensive and very honest.

Written from the heart, and i know that people will take inspiration from sharing your experience.

Well done Angel and thank you.


Reply by Angelicamarie, on Mon Aug 12, 2019 2:09 pm

Thank you John !

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