I first started on here in October talking about my stoma being moved from the right to the left and having numerous leaks and bag changes. I've said it was so short (almost flat) I couldn't see where to place the bag. Well, the last three bag changes went without a change for 7 days! Back to my old schedule when it was on the right side. It did come up ever so slightly, so I just practiced fo ...
Attention Newbies….Helpful Shower Gear
Nothing is better than a completely naked shower. A stoma cover-up (see picture) allows the use of both hands afterward. As someone suggested on here, before putting on the cover-up, apply 2 sheets of toilet paper over the stoma while your skin is still wet, then the stoma cover, and then dry your entire body. I find this piece of gear extremely helpful ...
I had my colonoscopy on Thursday, and the doctor said I am on track for my 6-month reversal, which is in January. She was very happy with my general surgeon who did the emergency surgery and said that he left her plenty to work with.
I'm very excited about the opportunity to return to a “normal” life. But I have so many emotions. I'm nervous. I'm scared. I'm excited. And I also feel bad th ...
I wanted to share that I had a big milestone today. I finally went back to work in the office! My employer went hybrid after the pandemic and requires at least two days in the office, but as I have a two-hour commute by train, I had received permission to work from home full-time after the surgery, and now it was time to go back. So far, everything has gone swimmingly.
Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients str ...
I FIGURE I WAS BORN TWICE, once when my mother gave birth to me way back when, then again when I came out of recovery after the ileostomy surgery. I was twenty-one that time. I think that surviving after the second birth was the most difficult. The first birth presented me with a blank slate; the second birth a blank slate with obvious, confounding complications. Following the first birth, ...
No, not the force Luke, I'm not your father.. lol
Your stoma??
The strangest thing is that I actually feel it when the stoma is touched. I thought it was my imagination as I was told that there are no nerves in the stoma..
So i did a blind test...
Looked the over way, closed my eyes and covered them. And I could still feel it when my wife touched the very top of my stoma, and not with so much ...
Why do you love your ostomy? The last couple of mornings, I woke up thinking about the little ways I'm thankful for mine, like I'm much more in tune with my body now and I have the cleanest butt in all the land without even needing to wipe! What are yours? I'm looking forward to hearing and adding to my list!
I (21) had elective proctocolectomy and got my ileostomy 5 days ago because of my UC. I've had a lot of time to mentally prepare, and the benefits of living free of my UC by far outweigh the negatives of having an ostomy, so I, for myself, am pretty happy with the new situation so far. Pain is there but manageable, and I'm quite mobile already.
I am giving my best to be open about my condition ...
For many years, I was either unable to travel or suffered with Crohn's while traveling. Two weeks ago, I took my first vacation with an ostomy and was able to enjoy my time away. Not only a vacation, but a vacation at Disney/Universal with a ton of walking, rides, and all kinds of food. I did have some anxiety to start with, but it turned out to be misplaced. It was such a great feeling to be ...
Hmm...I've been a member here of this wonderful community for some time now and it's been so wonderful to read about the journey of others who are finding their way. I've had my urostomy since I was eight years of age and I had a diverted bladder before that. The latter didn't quite work and the urostomy was created. Growing up with it and the challenges that were presented over the years of m ...
