Latest Forum Topics

I really do wish all my exes live in Texas 😬😎🤠 LOL  What is your favorite 'ex' song? 🎸 🪕 🎻

Hi, I was just wondering if anyone knows the best thing to use for sore bum after Ileostomy reversal !?? I have tried Vaseline and A&D Ointment, not much relief ! Thank you for any suggestions !!!

WHEN I ROUNDED A CORNER ON MY WALK THE OTHER MORNING, there was O. J. Simpson, tying his shoelace.  “I thought you were in prison,” I said.  “Nah, I got released after just doing nine years on a 33-year sentence for kidnapping and armed robbery,” he told me.  “Then last year I got released from parole early.”   We started up a short hill together.  “The criminal justice system has been pretty g...

I have colostomy on my left side had since January of this year!  Can eat salads for love them ?

What does someone with a ileostomy who because of physical limitations is unable to change own colostomy bag do. I live in the Sacramento area and can't find any help other than a private nurse at well over $100 an hour.  Surely I can't be the only one in this situation. Any suggestions? 

Hi everybody    I was wondering what kind of excercise you do. I have my permanent ileostomy sinsce september 2019 and never had any issues. The area does swell up and gets hard when i walk to much (like a day of shopping). But i had that issue since i had the temporary ostomy. So i want to loose a few pounds and read that jumping rope is a low impact cardio excersise that is perfect for os...

Hi All, I would appreciate any advice on my recently acquired hernia. What are the side effects of the hernia to expect? I have been experiencing the feeling of an upset stomach/indigestion pains would this be a symptom to expect?    

Is there any females in Connecticut who can possibly help me with my bag issues, I have been to 2 wound care nurses and still having problems and honestly I’m a visual learner 

WE WERE OUT, GOING THROUGH STORAGE, but I had to get home by 11:30 AM to watch the 1932 film ‘A Farewell to Arms.’  I didn’t make it to the end.  Oh, Helen Hayes was beautiful and Gary Cooper was dashing, but as war movies go, it was boringly cleansed of the horrific reality of war.  Most war movies, at least really good war movies, deliver a clear anti-war message, and that’s the way it should...

Ok guys I literally have no idea what is going on and it doesn't make sense.. help. I have having intestinal pain and have for 2 days now but I drink water all day and have a drip drop. I have having output that is normal . Any ideas ? 

This one is probably mainly for the UK based ostomates - has anyone here tried Salts? Because I’ve been having a problem with tiny little dribbles of output leaking past the wafer and onto my skin, thus causing really red and damaged skin. My stoma nurse has sent me a few convex bags to try and sort out this issue, some being Sensura Mio from Coloplast, and some being Confidence BE from Salts. ...

Started out a few times a year, now escalating to every couple of weeks.   Feels like a blockage but episode lasts no more than 4 days.   CT and scope show nothing.   Any suggestions?

WE ALL HAVE TIMES WHEN WE LOSE FOCUS, when our minds become a kaleidoscope of rampant images flitting all about like flies around a garbage can.  I was walking yesterday morning, trying to think of a subject for a post, but it wasn’t to be.  It was as if I was standing at a corner intersection, waiting to cross, but the traffic was too heavy.  I need to install a traffic control device in my br...

I know most of us miss her and want her back hopefully it’s just a glitch.

WHEN YOU WERE JUST A LITTLE KID, everything that you discovered was neat.  All your activities were nothing more than the process of learning about what’s ordinary and normal in life.  Oh wow, you might think to yourself, so that’s the way that works.  You were an explorer in a new world.  Well, new to you, anyway.  Eventually you reached that transitional time in life, between about fifteen an...

Anyone know why Sally has disappeared off the site?    

Hope everyone has a GR8 day! 🐈‍⬛🌕

just a wee bit of scottish humour 😅 😂

ONE WOULD THINK THAT A FAMILY living on a golf course would be more sympathetic to duffers.  After all, even professional players shank a drive on occasion, and the everyday golfer often does well to break 100.  Keeping a ball in-bounds while swinging at it with those funny looking clubs takes uncommon skill.  Still, ‘The Week’ magazine reports on a Massachusetts family who live next to a golf ...

I’ve been to the hospital a lot as we all have. My question is this, if you have a roommate when you watch television do you wear headphones or keep it at a low volume so as not to disturb your neighbor? I do or don’t watch tv. On the GI surgical floor those are the rules, printed and everything. I’m on what’s called the medical floor and it has just opened up, it’s not new or swanky it’s jus...

What is the story with the yellow stars on notifications? even when read they still show up as unread or new in notifications, I have to hit the mark all as read to clear it otherwise I keep looking at the same post over and over again

I need to shave around my stoma but not sure what to use? I read an electric razor and the one I got I tested it on the opposite side of my stomach and it's pulled my hair .. my stoma nurse had said I could use a regular razor but I am not comfortable with that and I am prone to razor burn and have sensitive skin... What does everyone do / use ? Would love any advice and suggestions please 

Hello.  My ileostomy was 25mm in diameter.  Believe I prolapsed this past weekend.  Now I am about 32 mm in diameter.  Wondering if anyone has had surgery to revise their stoma?  What was the recovery like.  Is anyone lifting weights at gym with prolapse?

Thank you to all nurses! ❤️❤️❤️ I am forever grateful to the nurses that helped me during my journey. ❤️❤️❤️

I just joined today.  I've had a colostomy since June 5th, 2019.  I'm considering irrigation and wondering if there is anybody else on here that does that.

Hello everyone. I wanted to start by saying thank you for this forum, it’s been very helpful to read peoples comments, suggestions, concerns. I am four weeks out from a sigmoid removal. I had complicated diverticulitis with an abscess. They put a drain in my backside in January and I lived with that for three months until the surgery. I was so happy to be rid of the drain and the bag and the pa...

DOES ANYONE ACTUALLY WEAR PAJAMAS ANY MORE?  Especially with an ostomy, I don’t want any potential obstructions, like a waistline, while I’m sleeping.  I wear night shirts.  I have some flannel for winter, and some light cotton for summer.  Even after I’ve discarded that, once I’ve made my way into my day, I will often shun pants in favor of a kaftan, which I will frequently wear throughout the...

Hi everyone ☺.  I just joined this group today. I am from NJ. I had emergency surgery 1 year ago and woke up to both ileostomy and colostomy. 

I can't stand marshmallows but I know of nothing else to use when changing ileostomy. I will even put it  off because I hate them so much. Does anyone know of another alternative that works like marshmallows? 

THE A HAS WORN OFF MY KEYBOARD, and the S is half gone.  This is the keyboard I had to buy to attach to my laptop when my laptop keyboard started malfunctioning.  Yet these are nothing more than minor glitches when I think back about the days of typewriters.  A typo for a typewriter user could become a major headache.  Remember white-out?  Writing on a computer, a typo can be made to disappear ...