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I woke this morning so full of love.  Thinking of those that were placed in my life that loved me.  Which definetely helped me become the person I am. Deaths: there so many kinds of feelings that follow after a death. Each one is different and yet take a piece of me each time.  Thirty nine years ago, I lost my son. "Oh My" I feel that lost as it was yesterday. I'm thanful to live. but nor will I never forget those that are gone. I'm now facing yet another death- a marriage of 34 years, not counting the time we da...

Hi All, I have had the pleasure to meet a young woman on this site that lives in the Philippines that has a one year old son with an ileostomy. He had surgery at 3 months old. Their healthcare does not pay for any supplies and she has contacted several organizations in the Philippines and the US and were told they did not have any to give her at this time. She is doing the best she can by using trash bags and tape. You can imagine the irritation he has from tape. Even though he is a little one, she will make any supplies she can get work ...

Definition: the right to express any opinions without cause or restraints. Do the administrator on this site say it's ok? I dont think so! Of course the site allow one to express their feelings. Almost 2 years ago, I was in the chat room. There was a conversation between two members. One was quite voiceful in expressing their distaste., the other listening intently. whether he liked it or not, he showed a great amount of respect. I learned a lesson that day. Some  say were glad we found MAO, because non ostomate...

Hello, I hope it is OK to post here as a partner. My husband had a permanent colostomy about a month ago. He was unable to eat for 16 days and then sent home after three weeks only able to nibble tiny pieces of food and with only mucus in his bag.  He was readmitted to a different hospital a few days later who diagnosed a blockage and cleared it after a couple of days with irrigation. he has been home four days and can only eat a few spoons of food in the morning, after that he feels too full to eat, his bowel sounds are really lou...

Has anyone here been able to eat nutty stuff normally? If so, have you got any advice on that?

Hi There....I just posted a Blog about some very problematic Scar Tissue ....CZould you have a look and see if you have any info on the subject...From Personal Experience please if possible.   Thank You All  XO Eamon.

Hi all! I am a mother of a 1 year old boy that had undergone ileostomy when he was a day short of 3 months old. We are running out of ostomy supplies. If you do have supplies that you wont be using it will be of tremendous help to me and my family. Thank you!

hi, I’m a colostomy newbie had the loop operation at the end of September due to a tumour in my rectum. I’m getting stressed an upset with the pressure and urgency to go that’s I Still feel in my bowels. It’s constant and seems worse when my stoma is active? I’m terrified to let go incase of any damage inside it may cause me so I’m trying to hold it in. Can anyone else relate to this? I see lots of posts re mucus but everyone seems to take it in their stride maybe I’m just being a baby? It’s ...

My father has had a colostomy and is now getting a urostomy this winter break. I will be traveling in the months of his recovery but will be with him during Christmas. I wanted to make a basket full of things that will be helpful to him to show I care.   If anyone can list products that have been helpful and items that helped with recovery (even if they are not directly related to the surgery) I would really appreciate it! Also, anything that has been helpful in the long run... he loves to be active so any items that help make ...

I heard about this 6 year old boy standing in the church lobby. He was staring at the plaque on the wall, it was filled with names and small flags beside them. He asked the pastor-what was all the names for? The pastor explained how that was a memorial, for all the young men and woman that died in the service. The little boy stood there silently , so concerned. He finally looked up and asked the pastor,  was it the 8:30 or 11:00 service.? I heard it from a speaker and wanted to share, hope you enjoy it. Angelicamarie &nbs...

From one veteran to all veterans... Happy Veteran Day!

Since my first surgery (at which time I "needed" to gain some weight) I have gone overboard. I really need to get back on track, even before I can feel like getting some decent exercise. I have chosen the Keto diet for a number of health reasons. I've only been on it for 12 days and have lost 11 pounds --> still a ways to go! My only issue is, with my ileostomy the output has been VERY liquid so I'm beginning to get a bit sore. Previously I used cereal, oatmeal, pretzels or applesauce to get some proper consistency; of course these item...

November 9th, 2018, One year ago today, after 3.5 hours of surgery with three surgeons, My tumor, lympth nodes, rectum, anus, a bit of large lintenstine and 1/3 of my colon was removed.  OH yeah and a hernia was repaired.  Stomy was born.  Now that he's a year old, he'll probably start running around and getting up to all things mischief. Today would have been my 27th wedding annversary. November 9th, 1991.  My love died on Oct.3, 2001. Nine years.  People often say it's 'too bad' we didn't make it to ten years...a...

I'm having a permanent ostomy in a few months.  I've had Crohn's since I was 17 and I had a temporary ostomy when I was 21.  Through the years I've had a number of fistulas and the ones down my by anus required fistulectomies.  As a result I'm pretty much all scar material down there. After my surgeon has created my ostomy I will have my rectum and anus removed.  Then a plastic surgeon will use the ALT Flap Procedure to reconstruct the area.  This procedure harvests a "patch" from your thigh which then is used to ...

Hi everyone Does anyone out have pain problems both the stoma and and the area around it. The swollen area is a perfect circumference from the spout across to my belly button, The area is firm and heavy which affects my walking most days. The pain is a constant reminder that I have a bag.  Its 11 months since my surgery and i cannot not acheive equal profile on both sides of my stomach unlike the pictures on the net where the stoma pouches sit almost flat. Maybe Im just overweight but how does one diet with an ileostomy a part just ...