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Because my plan was to make the 22-minute drive that morning from my home north of Kanab, Utah, to the east gate into Zion National Park, I avoided cereal. With the ileostomy, milk products sluice through my altered plumbing like fat through a goose. I opted for nice, thick oatmeal, laced up my winter snow boots, and headed out. It had snowed the afternoon before, but the large, speedy snow plows in the county had cleared the roads. Care was still important, as slick road ice can produce dangerous results. Zion can be crowded during the re...

Hi Everyone/Anyone, I had my End Ileostomy Surgery 6/16/20 and I had the scare of my life about 2 weeks ago. My stoma prolapsed (at the time I had no idea what the correct name of this was) and it was very frightening because I truly thought a snake had crawled up in my pouch and was moving around 😳🙈🙈 my husband rushed me to the ER because we had no idea what was going on and believe it or not the ER Staff was just as TERRIFIED as I was! Long story short they put ice on my stoma and after about 2.5 hours my stoma retracted. I a...

I have been looking at new members and sending messages. I wrote a message about joining the forum and also how to post. I let them know they can find a lot of information about some of the thhings they may be facing. Here is a sample of what I send there are so many looking for information. I just copy this letter and send it to several people . Feel free to use it or write your own I think we really need to reach out more.         Hope you are doing ok. I just wanted to say feel free to join in the forum. Just c...

This is the 3rd time since Monday. It goes under the seal.  Then leaks out the wafter. Then when I take it off there is clumps and then it flows out, What am I doing wrong

Generally I do not give a shit about anything but realized that if I did I could.

What are the rules - file format, size etc? Everytime I try to insert a jpeg it gets rejected!

Having an ileostomy may militate against such activities as joining nudist colonies or performing belly flops off a high board at public pools, but it certainly is no bar to climbing on a motorcycle and heading out on the highway with Steppenwolf’s “Born to be Wild” blasting in your mind. Four years after my surgery, which had been in July, 1964, I climbed on my Triumph, my new wife got on behind me, and we took our honeymoon riding around the State of Florida. Wearing matching drab green fatigue jackets, we drew a few st...

I am planning to go snorkeling in lake superior, can I swim without a bag on? 

 A Tory Politician was seated next to a little girl on an airplane so he turned to her and said, "Do you want to talk? Flights go quicker if you strike up a conversation with your fellow passenger."The little girl, who had just started to read her book, replied to the total stranger, "What would you want to talk about?" "Oh, I don't know," said the Politician. "How about global warming, universal health care or stimulus packages?" as he smiled smugly."OK," she said. "Those could be interesting topics but let me ask you a question firs...

Hi Gang,   So I've been using the 3M Micropore tape around the outside edge of my barrier for swimming and working outside in the heat.  It does a stellar job of keeping my barrier bandage edge from lifting under all conditions.  The stuff is just amazing.  But (there's always a butt) it's bit of a pain in the arse to get it off.....because it sticks so well.  I've tried a variety of "adhesive remover" wipes, and they do work.......but it takes quite a few wipes (they sure do dry out quickly, don't they?) and even...

If teenaged years are tough, the twenties can bring into one’s life both challenge and change. At twenty-one ileostomy surgery altered the direction of and the manner in which I lived my life. I’m focused here on just one of the several ways in which my days became different. At twenty-three, still dealing with my new plumbing but growing more accustomed to it, I met a girl for keeping. At twenty-five, I married her. She introduced me to a new pleasure. No, not just that. She was an animal person, an experience my past lacked. ...

Last night was a horror I don't want to repeat.  I woke up around 4:00 a.m. immediately becoming aware of smell and wetness.  I was wearing a two piece Hollister and the front piece had completely fallen off resulting in a huge mess.  Sheets and mattress cover are both toast and I'm debating whether my mattress is even salvageable. The mattress cover is supposed to be waterproof, not so much.  I have never had this happen and have found the two piece Hollister to be really dependable.  It gives me a really good sea...

People often ask “where were you when…?” The “when” is typically a disastrous event. During the early part of my five months in the hospital which terminated with my ileostomy surgery, nurses kept piling into my room, not to attend to my personal strife, but because of something on the TV. I was aware that I was hospitalized, but not alert to much else, so out of it that I had no idea what was going on. It was November 22, 1963. My personal pain and diminished capacity prevented me from realizing that JFK had...

 A work colleague messeged me yesterday(he is young at just 22) He has just made a huge decision and career change and has been excepted into the paratrooper regiment. He said something to me that brought a tear to my eye, he said  thant I am one of the strongest people he has ever known as he has watched me fight through illness for 2 years and then the  disaster which was supposed to improve the quality of my life But nearly killed me, then made me just want to end it all. Anyway then came the comment " fear is temporary...

The local "Hog For Bargains" grocery store was one of a select few picked by a manufacturer of a new brand of toilet paper that had yet to be named. The manufacturer asked the selected stores to hold a contest asking customers to try a free 4-pack of the new toilet paper. The customer was to return no later than 3pm on July 31st and submit a name for consideration based on the customer's review and feedback of the new product. If the customer's suggested name was picked as the winner, a $1000 prize would be awarded. In addition, the manage...