Latest Forum Topics

Just saw this mentioned in someone's reply to a question. Had never heard of a "plug". It sounds like it would be advantageous for intimacy.
Comments?  

I want this art for my home, called “the fall of the damned” by Ruebens

WE ALL HAVE OUR FAULTS.  If we didn’t, we wouldn’t take so readily to finding fault in others.  Try as I might to avoid it, I have caught myself being judgmental more than a few times.  What I really try very hard to accomplish is to not cast aspersions at someone who is doing something that I myself have done as well.  Now you have progressed into hypocrisy, one of the grossest, most o...

Hi everyone, 

I hope you are well and thank you for reading my post. While I signed up years ago I have not gotten a premium membership until just now. I got a lot of questions and I hope there are some good answers out there. I told my friend about my dilemma and he is scared for me. I have been in denial about needing the surgery. I appreciate any insights you may have. 

Because my doc is...

At long last I am faced with this difficult question of surgery in (2023) since having an ileo in 2016 and a stump left for reconnecting was the plan after complete large intestine removal emergency basis.  I have had and still continue to have IBD. and "fallout" from it after surgery. it located itself in the rectum. After four years we controlled its bleeding with meds.  gone for scoping ye...

Hello again everyone!

My question this time is about using body wash while having an ostomy. Do any of you use body wash or afraid to like I am? I have a brand new bottle that I really want to use but super reluctant. Thanks any and all advice.

 

I'm pretty new with my ileostomy and I need feedback from people who tuck their bag under their clothing. I fear doing this because my output is pretty thick and I'm concerned about it not making it to the bottom of the bag. I usually wear leggings that aren't very tight at the waist. Should I be concerned or will it be ok if I tuck my bag?

‘THERE ARE NO ABSOLUTES’ is usually good advice, but… but, I’m going to throw a couple out anyway.  Never spit upwind.  Never call someone with arrest authority an asshole.  Always carve meat across the grain.  We all have the need for advice occasionally.  The trick is to get it from someone who you have some assurance knows what he’s talking about.  For instance, you wouldn’...

I am suffering from a very sore dry mouth due to Imodium Please help 

I am suffering from a very sore dry mouth due to Imodium Please help 

Last weekend I was in bed on the Friday night and started to get the worst abdominal pains I have ever had. Never having a blockage before I wasn't shore what was coursing it but after a few hours I realized it must be a blockage. After some time I raised myself of the bed and felt a pop and my bag filled in 2 seconds flat, i rushed to the toilet and after emptying it it filled again in rapid t...

I have a 2 piece system with my illeostomy.  Occasionally after I emptying my bag I take off the bag and clean the stoma and around it to keep output clear. Is this bad to do? My ostomy nurse said it's not something that's recommended but it's ok if im VERY careful when cleaning, etc. I just see output around my stoma in the space on the wafer where the plastic breaks down. I feel better doing...

THIS PARTICULAR TREE WAS ADVERTISED as providing Fall color.  In Florida, even in north Florida, that is rare, and so I purchased the tree and planted it in the middle of my front yard.  It has an unpleasant primary name:  a black gum.  But it has a sweet and attractive secondary name:  a tupelo.  Yesterday morning I noticed that every leaf on the tree was a beautiful orange color, shinin...

DEATH IS SOMETHING that happens to other people.  “Mother died today.  Or, maybe, yesterday; I can’t be sure.”  This is how the novel 'The Stranger' by Albert Camus begins, the protagonist too self-absorbed to care.  I remember old Joseph Smithie, an uncle of a friend of mine.  He was thought to be 98 or 99 when he died.  Even he didn’t know.  In fact, his brain addled by Alzheim...

Did he eat powdered donuts through a straw? And what house party in the 80s served powdered dohnuts? Lol

 

I was born 86

Well July 20 th I had the surgery and got the ostomy bag and on the 31 of October I had the reversal. I am happy to report that I feel great and am on the road to total recovery. Dr. McBride and team were tremendous from day 1. Don’t lose the faith. 

I saw this article title about Matthew Perry having a life saving ostomy.   What's your opinion on the article

 

https://www.ostomy.org/ostomy-surgery-saved-matthe w-perrys-life-its-time-to-stop-the-stigmas/

Last Monday I changed my appliance.  Wednesday had a blow out.  I noticed that day that my scar at the side of my ostomy looked irritated.  I was a little afraid I had ripped it again.  Thursday I had another blow out.  This time I noticed a red ring around my ostomy.   At the time I couldn't tell if the red ring would be under my barrier ring or just outside it.  

The last few days I...

THERE HAVE BEEN TIMES when I’ve needed help to translate English into English.  Sometimes it was just my inability to understand someone speaking with a thick accent.  I just don’t seem to have an ear for English spoken by many immigrants whose native inflections and accent impact the sound and pattern of their speech.  But it doesn’t end there.  A lot of different professions develop...

Just another update on my progress….

I had my two weekish follow up appt on Friday, and overall they said everything feels right and looks good. 

I finally started feeling better on Thursday, but all weekend I been having issues with only passing blood. It has me relatively freaked out, so I put in a request for a stat CT scan to be ordered by my surgeons office. Hopefully I will hear bac...

So I have one!    How come I was never informed about it coming?   Could I have prevented it?  Now what do I need to know?
Will it get bigger and bigger?   Will I wind up in the hospital because of it eventually?  Will I sneeze one day and rupture it and make it bigger and cause an emergency?

These are all good questions and I have and no answers.    

Here is my short story about my lif...

SUNDAY I GO TO CHURCH, and church is outside in the dark early morning, under the stars, inhaling the fresh air, and watching the possum make it across the road because, on Sunday, traffic is substantially reduced.  Outside, with large oak trees reaching toward the sky instead of man-made spires, my step is inspired by the spiritual richness of nature.  I may not be able to see the owl in the...

Hi all, first time on the forum. I just had surgery on 11/7 that resulted in an ileostomy. I’m using a Hollister 2 piece system that I really like, but the last couple changes I did the Hollister Adapt barrier ring has swollen up dramatically inside my flange and around the stoma. The first time it created a thick dome that completely enclosed the stoma. I removed the top and left the sides t...

Hello!

Has anyone had a their ileostomy refashioned due to retraction?

Especially if it’s over a year after it retracted? 
My stoma retracted soon after my surgery but not quite sure exactly when because I was so unwell. 
The surgeons tried to fix it initially but said they couldn’t because I was too unwell and it would need to be done by someone more specialist around a year after when I...

NIGHT DREAMS MAY BE THE PRODUCT of some secret inner core of psyche hocus pocus, but daydreams are on purpose.  They are necessary, too, as a sort of protective shield from the chaos and craziness that surrounds us when, in opposition to the noise and irrelevancies of social media and TV, our own inner story line is singularly important.  At night, safe in our bed, all manner of barely deciph...

Hello, I joined this site in June 2022 so I can could get information on irrigation and hear about others who have gone through similar experiences.  I ended up irrigating for the 1st time July 2nd.   I tend to work with people 1-2 days a week so I irrigate the night before and it's definitely peace of mind while being in close contact with my clients.

I saw a few posts on this site recomme...

I posted about these awhile back and finally got my samples. I just put one on and only had to stretch it a minimal amount instead of stretching my normal rings a lot. I hated stretching the rings out so much that they lost their thickness. Using this stomawrap keeps the ring’s thickness intact. My stoma is 44mm. Might be worth a try for anyone sporting bigger stomas. 

Better stock up now……

THESE DAYS, IT’S AMAZING IF WE KNOW ANYTHING WITH CERTAINTY.  I went looking for items ranking the world’s different healthcare systems, only to discover little if any agreement.  All of us on this ostomy website, naturally, are interested in the health systems where we live, and how they are rated internationally.  With respect to the U.S. healthcare system ranking, the only thing that ...