Medical Marijuana: A Better Alternative for Ostomy Patients?

I agree, pot used in the right way is okay. I found it helped with my back pain.
And it never made me go high, happy maybe low.

Oh Miss Megan, I wish you the best of luck and I am worried about you... continue to do more research before agreeing to Remicade or the other controversial 'meds'... and I know you have and will continue to do so. I wish there was a cure for us, but since there isn't, the decisions of what can help us cope with Crohn's is a struggle indeed. Personally, and forgive me, I cannot help but toss this out there, I hope you don't allow them to infuse you with Remicade now that I know it is far more dangerous than what I was warned, and now that I have permanent damage from it that may likely shorten my life... I feel my 5 or 6 years of being on high doses of it made me a mere lab rat... and it never helped my Crohn's... it only created far more problems... now, there are people on the DNA altering concoction derived from the antibodies taken from the spleens of mice (Remicade) who claim they did have some temporary relief, but most in studies who did show some temporary improvement soon lost that alleviation and more problems set in. Please just be careful xoxoo... just saying... I care.

In the meantime, eat lots of anti-inflammatory foods and discover more natural organic healing delights that might hopefully help, at least a little... as an example, I have a lot of relief from inflammation and other symptoms simply by nibbling daily on capers!... one of many great

healthy ideas... it's amazing how helpful they are!

Here is a really helpful link with great info, I hope you try them

http://www.nutrition-and-you.com/capers.html

AWW, thank you Doe! I have been looking into other options - slippery elm and chicory, to name a couple. Like I told my GI, I can take my chances with sustaining more damage to my digestive tract from the chronic, unsubsiding inflammation or take my chances with a life-threatening infection or lymphoma from the drugs......seems like 6 of one, half dozen the other.

I also told them I didn't see the point of going on those medications when I am NOT symptomatic right now.....I haven't had any symptoms of my disease since having ostomy surgery and my inflammatory markers are normal according to my blood work. So why do it? If I was very ill and my blood was showing it as well, maybe that would be another story - but it isn't. So I don't see the hurry. I've heard many, many horror stories from people and if those meds aren't going to cure me - or even slow anything down - why do it? No medical professional has been able to explain that to me so far.

Excellent thinking, Miss Megan! .....and the FDA has already 'Black Labeled' the Remicade but is forced to take yet another look at it, and it might be pulled from the shelves........in the meantime, it's a big dollar generator basically, as we know :/

I told my GI the same thing regarding why be on something, especially that dangerous, when in remission and no symptoms and things remain unstable.....I once went 18 years entirely symptom-free!    .....keeping risks at a minimum and weighing risks is a careful balance, and sort of a gamble at times........but another BIG common link us Crohnies share is keeping stress out of our lives the very best we can.....because it seems we all agree that, though stress is not the main cause by any means, BUT, stress can bring flare-ups on and stress that gets out of control really raises heck with our Crohn's........less stress daily and more antioxidants and anti-inflammatory seems to still be the magical 'three' that best assists living

Here is a chart that shows more anti-inflammatory goodies to keep in the kitchen  This is not a full list, but it does add a few more to the shopping cart  xoxo    

I hope the photo shows up, my comp is not working correctly.........

Gosh darn it....... :/ ....... gonna try it again, lol



There we go! ...............lol.............once again, the problem was not the computer......the problem was between the chair and the keyboard

Hey wounded doe, sorry to jump in on this post but I was reading your thoughts on Remicade and how it might be pulled from the shelves by the FDA. I know Remicade can cause some problems but there's not a lot of detail online, the same info over and over and nothing too scary tbh. I'm on my second course of Remicade after a year-long course back in summer 2011/2012. It worked well for me, all nausea, sickness, and tummy cramps literally vanished when I started it. I gained almost 6 stones of weight in that year and actually felt healthy for once in a long, long time. I have also been on a 200mg daily dose of azathioprine (Imuran) for 10 years now too. It doesn't work too well, and that's why I ended up on Remicade. I worry for my health in the future, but I feel the Remicade and Imuran are the lesser of two evils in my case as my Crohn's seems to be on a constant 'flare-up'. I read one of your posts saying the Remicade has caused some issues for you, and you seem pretty well informed on the drug. I just thought you could tell me some things about Remicade and how it affects folk over time.

Bye and good luck, Sean.

Hi Belfast Bhoy. No need to apologize for jumping into the post, it's great that you did! That's what we're all here for, nice to meet you!

I am really glad Remicade has been offering you some relief, that is awesome, and I hope it continues to help you. I wish you, as with everyone, a happier and healthier life. Crohn's is one heck of a struggle, for sure. When I was flaring so bad before my last surgery almost two years ago, my GI wanted to put me back on Remicade, but in my case it was making me more ill and problems were growing, and the makers of Remicade actually did state a warning that no patient should return to use of Remicade after having been off it for....16 months??? I want to be accurate so I will try to dig up some links for you and send them to you. My much over-tired brain at the moment is already in foggy 'Search Mode' for you so over the next few days I will re-find some of this information I had so you can read through it.

.........and like I've told friends in the past, I do know others who have been on it and also had problems, and there is a rise in law suits against it, which is another reason FDA is being forced to take another look at it and has re-labeled it...........but.............I also know many people who have been on the drug for years and benefit from it as you do...and they are still doing fine.

There are so many therapies and such out there, it's always great to compare notes with each other......and of course we all realize that each situation is different. Also keeping in mind that I am extremely sensitive to things, "The canary in the Coal Mine" as one of my surgeons has always referred to me.......I am allergic to so many things, both internally and externally, even most soaps and tape.......imagine being allergic to tape and have to wear a pouch constantly, lol.........great fun, lol...... so our bodies are all very different, and I am "intolerant to most medications" as it is documented.

So, we are all just doing the best we can xoxoo.

I'm glad you jumped into the mix here! Will get to work on that info for you soon!
Get lots of rest and take good care!

Man but you're making me envious with your Tincture, what a way to go.
Its been over ten years since I smoked pot and at the time I was working my ass of working 12 hrs a day, sometimes for three weeks straight and with a herniated disc which was slowly killing me, and that's not much of an exaggeration, and every night I would smoke a joint and have a great (little) lunch. This was after having two spinal surgeries, the first one was for a discoidectomy and the second was a much more invasive one with the complete removal of three complete laminectomies and that one made me start praying for death or a gun with two bullets, one for me and the other for the doctor who I explicitly told not to use Demerol on me after the surgery, of course you can guess what the F****r used and only a half dose of what I was normally getting when I was hospitalized for another disc episode. And around the second day a new charge nurse walked into my room and asked, How are we today and we told her how WE were and she left on a run and came back fifteen minutes later with a needle and fifteen minutes later the world started coming back to some form of normalacy but from that day on I swore I'd never go near another surgeon. So around this time I started growing my own medicine and some years it was all one could ask for and of course I informed my doctor who agreed wholeheartedly with my decision, knowing of my experience with surgeons and always reminding me that what I was doing was illegal but the pain I was in constantly, made that warning nullified as I was pretty sure if I were caught I could beat that fairly easy as I had a lawyer at the time who made sure every time I landed in the hospital I had a copy of the doctors reports, sometimes I would have a copy of a specialist report before my own doctor, who was as good as any doctor-specialist I had the misfortune of encountering, imagine going to the ER with a disc out and nurses wanting me to climb up on that gurney, and I hear this voice saying, quot;he can't get up there quot; and of course it was my doctor and he told the nurses to get my jacket off which was quite a chore because I was bent over and had my hands on my thighs to hold myself up, after getting rid of my jacket my doctor put his arm on my back and said to try and lean back which was a great feat on my part and then he tells me, ''this is going to hurt for a little while quot; and with his other arm he put it on my lower body and in a second he had me up on the gurney and was giving orders for an injection and for once that injection worked and in a couple of hours it was time to get me in a bed and he told the nurses to lower the rail on one side and did the same thing, as he lifted me up he had the nuirses pull the gurney away and he laid me in that bed like I was a child. My whole point about this little screed is can you imagine any doctor doing something like this today, I don't thik so. After about two weeks I'm back at work and my boss was trying to be as helpful as possible and had another employee load up the press for me and here is a case of the help being more trouble than help even though he was trying, but when you have sheets of paper coming off the press at 10,000 per hour that papoer has to be loaded pretty damn good or you can get in a lot of trouble fast and that is what was happening so I did it myself which pissed off my boss and my temporary helper, anybody who ever had someone give them help and found much to their chagrin the help was actually slowing them down. And so we go back to the pot for a second or two, after a long days work the first order of business was a joint and later supper and maybe half a joint before bed and that is what kept me going for many years until I had a heart attack and that began a whole new chapter in my life and my promise to never go near another surgeon got shot all to hell, the first order of business was to repair an aneurysm, which got screwed up royally and led to as close to death as one can come and still survive as a few weeks later I got really sick one night and the local doctors told my family I had to go to the city right away as things didn't look good, and there their first order of business was to cut me open and this surgeon couldn't find anything wrong, and I'm still near death so two days later another surgeon opens me up and finds my whole large bowel was dead from the blood being cut off too long during the aneurysm operation and then they put me out for ten days and I wake up with this bag on my belly which caused much cursing and swearing for a little while until I finally settled down to take care of business that we are all familiar with, and so my friends if you are in pain and other maladies that cause you distress I have found that friendly marijauna to be a life saver. If you have not seen the CNN special that Sanjay Gupta did on this subject its a MUST watch even for the opponents of the medicinal properties, some of the stories almost brought tears to my eyes and the work being done in Israel on the benefits of this drug are staggering. My last words on this subject, quotDon't suffer needlessly quot; there is help in the form of a natural herbal plant that has helped millions for probably millions of years. Ed

Hi again, Wounded Doe. It's good to hear back from you. I'm still trying to work my way around the site, and on a mobile phone too. Arghhh. I was off Remicade for 15 months before the hospital restarted me on it again. Not one person in the hospital mentioned that 16-month time limit to me.
Although, like you say, everyone's different and I should just be thankful that the Remicade is actually working at present.
You've got me thinking though. I read a little about my other main medicine (Imuran) and found on Wikipedia that it's been reclassified as a level 1 carcinogenic to humans by some international body somewhere. Jeez, I've been taking it for 10 years or more. I'm going to ask my consultant to take me off it for 6 months or so as a trial. It never did me any good all down the years anyway. It'd still be interesting to read some of that info you've found on Remicade. You must be a sensitive soul, Wounded Doe. All the crap in the environment these days can't be good for us. Some folks are probably more prone to it all than others. Hopefully, this message finds you well. All the best, Sean.

PS. Changing a pouch is a rough deal at the best of times. It must be a hundred times worse with tender skin. I don't envy you on that, my friend. Ouch.

Hi again, Wounded Doe. It's good to hear back from you. I'm still trying to work my way around the site, and on a mobile phone too. Arghhh. I was off Remicade for 15 months before the hospital restarted me on it again. Not one person in the hospital mentioned that 16-month time limit to me.
Although, like you say, everyone's different and I should just be thankful that the Remicade is actually working at present.
You've got me thinking though. I read a little about my other main medicine (Imuran) and found on Wikipedia that it's been reclassified as a level 1 carcinogenic to humans by some international body somewhere. Jeez, I've been taking it for 10 years or more. I'm going to ask my consultant to take me off it for 6 months or so as a trial. It never did me any good all down the years anyway. It'd still be interesting to read some of that info you've found on Remicade. You must be a sensitive soul, Wounded Doe. All the crap in the environment these days can't be good for us. Some folks are probably more prone to it all than others. Hopefully, this message finds you well. All the best, Sean.

PS. Changing a pouch is a rough deal at the best of times. It must be a hundred times worse with tender skin. I don't envy you on that, my friend. Ouch.

Hiya Belfast Bhoy! Hey, I didn't forget about those links for you. I have little time on the internet, unfortunately, but I have been searching for my file data on the Remicade. It appears most of it is on my old computer and not this laptop, so I am attempting to retrieve it. Also, I want to find the VHS tape that was given to me by my nurse back when I first began taking the Remicade. It is quite informative, and from what I understand, it was only meant for hospital staff, lol. But she gave it to me and did not want it back. Keep on me about this. By this weekend, I should be able to get all that info off the old comp. Cheers!

Thanks Doe, that list was really helpful. I printed it out to tape it inside my pantry, lol. Yes - I don't want to take those. The inflammation is still going on in there, we can see it on CT scan - but it's not affecting me yet. So hard to weigh the pros and cons, but I just had a friend with Crohn's pass away from pancreatic cancer and guess what kind of drugs he had been taking for years? Yep, he passed on an ostomy and took the meds instead, now he is no longer with us.

So it's definitely something to take seriously.

Getting back to the medicinal pot part I just found this on YouTube and hopefully this link will work, some parts of this story by Sanjay Gupta, are really heartwarming and almost brings a tear to the eye and I kid you not, even those opposed to this method of relief should watch this story that Dr. Gupta really did his own research and even apologised for a ten year earlier report he did on marijuana, Ed

https://www.youtube.com/watch?v=tShnVEmdS2o

That's what I'm talkin' about. Everyone MUST SEE this.

Thanks for sharing this video, Ed, but I have to disagree with you on one point — some parts of this story brought lots of tears to the eyes.

BTW, Ed, I'll embed your video below:

Many thanks three, would I be pushing my luck to ask you how you manage to do this, I copied and printed the last time you explained this but now I can`t find it, so if you`re so inclined this time I`ll make a few copies so to be sure to be able to find one.
And yes I understated my reaction, especially to Megan, the tears were really there, Ed

Hi Ed,

Here's the steps to embed a video in your post:

Step 1: When you're typing your post in the blue-framed box and you get to the place in your post where you want the video to appear, click the little "YouTube" icon in the bottom row of icons along the top of the blue-framed box you're typing inside;

Step 2: After you click the YouTube icon in Step 1, your computer screen will take on a grey hue and a box will appear telling you to "Enter YouTube URL". Paste the address for your YouTube video in that box and click "OK";

Step 3: You will not see the YouTube video in your post until you preview your post; however, you will see the YouTube address for that video inside square brackets that open and close with the word "Flash".

Many thanks three, you may have noticed I'm not really computer literate, I have figured out the things I want to do and sometimes manage to get my message across. If you seen the post I did with all the oldies, Jimi Hendrix and company, it took me hours to paste in all them pictures and learned a lesson, don't try that again anytime soon. I have watched that Sanjay Gupta documentary about five times and each time it grabs me by the throat, I wonder hoW many minds will change after watching this show. Thanks again three, really appreciated. Ed

Your welcome Ed.    Even though I may know a minuscule amount more about a few computer-related topics, in the chat room I completely relate to what you recently said about your slow typing — on the few occasions I've tried to survive in there, the most common message I saw on my screen was "Are you still there three?

Hi again wounded doe, how are you? Don't worry about digging out those links for me, I'm sure you have many other things to be doing with your time, and besides I could easily find the info myself if I wasn't so lazy. It's not laziness, mind you. It's the endless trawling through all those web pages repeating the same info over and over. As you said, everyone is affected differently so I'm just gonna be thankful for the remission the Remicade is giving me at the moment. I'll worry about the side effects if and when they turn up in the future.
Thanks for your warm welcome and kind words though, wd. Good luck, speak again soon, Sean.

It works.

I puffed but did not exhale. You are spot on.

And my advice for today: If the good Lord didn't want us to smoke pot he would have given us gills, so have a nice day, Ed

Thanks for replying. So I guess you're wearing the bag now. Don't make the same mistake I did. When you smoke and cough, make sure you hold your stomach in, hard, with your hands. Otherwise, you'll end up needing a mesh surgery to put your intestines back where they belong.

Okay! I thought I ought to put this subject toverse even though I don't know much about it.  Thanks everyone for the inspiration.



OSTOMIES AND POT.



I must say I don't know a lot

about the way people take pot.

For I don't take it personally

not even just occasionally.



But I have known folks from my past

whose use of pot was pretty vast.

They taught and showed me what to do

I ought to know what they all knew.



Back then I'd little interest

and didn't even want to test.

However, I would not contemn     (scorn)

nor would I ever them condemn.



I think we have the freedom to

do the things that we want to.

If that means using the hemp weed

other people should accede.

  

Some got pot and supplicate        (appeal to authority)--

they say it's great to medicate.  

Most of the folks that I know now

will simply use it anyhow.



Cannabis has been shown to be

good, should you have an ostomy.

It calms the mood and eases strain.

and pot can do a lot for pain.



Prescription drugs they say are best

but they don't stand up to the test.

So at the time we've had enough

we are primed for other stuff.



So no one should attempt to stop

anyone from taking pot.

If it's good I can't see why

we should not give the pot a try.



                                                B. Withers 2013

LMAO =) I can't wait till all these brain dead peeps can see the light and see the error of their ways... I believe I learned this lesson in life during the 70's... I've been called many things which were offensive growing up. I made peeps eat shit when I achieved my goals and in this matter a lot of peeps are going to eat shit !!! =) Keep drinking, eating healthy, and taking those pills !!! =) That's how you got here in the first place !!!

Thanks for that, great documentary

We already grow it in our gardens with the cattle and horses grazing off the weeds, but not goats! Goats are bad people.. just kidding. Our goats do eat it though, not the horses or cows. They don't like it, but the dogs eat it. I love to garden anyway - flowers, trees, food. Can't do that now because my gut stump gets sunburned if I am out in the sun. It burns through my clothes. Does anyone else have this problem?

If we could get it, I would definitely try it. I listened to Montel Williams talk on TV about how much it has helped him with his MS.

Just out of curiosity my friend where do you store all that hot air, is it reusable and for how long!!
Ed