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Hello everyone. I just found and joined this site a few days ago. I wish I had discovered it sooner. So many helpful tips and hints that even the hospitals dont seem to know. Anyway, with that being said I begin the count down to my ileostomy reversal. Five weeks from today. I know that sounds like its far away, but in my head it's coming fast and I have no idea what to expect. A brief history of what happened to me, starts at the end of May 2011. I awoke in the middle of the night with severe cramps and vomiting. A few hours later I was ...

Hi, First post on here so, please be gentle.  I was wondering has anyone found a way of keeping that darn bag out of the way when they are having on of thier most intimate moments?  I've used techniques such as holding it under a t-shirt ect...  What do you do?  It just plain can get in the way sometimes... thanks in advance

Hi. Just wanted to ask people is it really possible to date when you have a bag? From things I have read on this site the answer is no. People say its either to hard to tell people about the bag or they run for the hills once they find out. Dont get the wrong idea. I myself cannot think of dating again. I am having a hard time dealing with my own bag. But I wonder what other people think.

This site seems to be gathering new members daily. Most newbies state that they love the site, it has great information and they are so greatful to find someone to talk with. So as we approach the 5000 member milestone I propose an office pool to guess the date of the event. Their are 4806 member today.       The winner will get 1 slightly used Convatec pouch and a free cat scan. (my cat)         & nbsp;       &nb sp;    ...

I would like to share tips, secrets, anything that helps intimacy be more alluring to others.  Dont be shy, I need answers.

I live in a place where I can obtain Medical Marijuana. I find it helps with anxiety, pain and occasional insomnia. Before you put it down its FAR better than alcohol especially if you are taking other meds. Any thoughts?

I am a 37 year old, single mom of 3 and I am a colorectal cancer survivor going on 3 years now. I am dating and find it very difficult and stressful to try to tell someone I want to be intimate with, that I have an ostomy.  How do you tell someone? I would also like to know how can I  hide or keep my bag from getting in the way during intimacy. I am so worried that I will never find someone who will accept the fact that I have an ostomy. I feel so embarrassed asking these questions, but I don't know who else to ask..Tha...

I've already come to the conclusion that the only possibly of becoming intimate with a lady is to make sure she has some sort of an ostomy herself. That's fine and understandable though I wish the door wasn't halfway closed knowing I will never be accepted by someone without one. Yea I know, there are alot of wonderful, sweet women out there who will understand. If you believe that you've watched and read too many love stories. However, my problem is with me. How can you have sex with the thought there could be the slightest chance of an a...

Hi y'all....I thought I was dealing with all this just fine and then about a week ago, I started crying about everything! I am not a cryer and I feel so out of control and sad. I made an appt. with a shrink but I even feel embarrassed about that. Only my kids and boyfriend know, haven't told my Mom or sister or anyone else. Am I crazy?? Why am I crying NOW...7 weeks after it all?????  HELP.... love, & many thanks, Hannah

Roe v. Wade, 410 U.S. 113 (1973), was a landmark decision of the U.S. Supreme Court in which the court ruled that the Due Process Clause of the Fourteenth Amendment to the U.S. Constitution provides a fundermental "right to privacy" that protects a pregnant womans's liberty to choose whether or not to have an abortion. Date decided:1973 Ruling court: Supreme Court of the United States Date argued: 1971 Norma Leah Nelson McCorvey(September 22,1947), better known aby the legal pseudonym."Jane Roe", was the plantiff in the landmark A...

It is my understanding that quite a few people have given their stoma a name. I have been thinking of that off and on for since the time of my colostomy (Jan. 2015). I finally settled on one:   Krakatoa, like the volcano. It either spews output like crazy or is dormant for a LONG time, like up to 4-5 days at a time (even with many laxatives, etc).   How about you? 

I am almost 3 weeks since reversal date and all has gone well.  Haven't needed pain meds for 3 days now and am sleeping on my sides again so all that is big progress for me.  The large gaping hole where my stoma was is closing up more each day.  I have times where I am running to the bathroom to get there on time, but not always.  I mostly feel in control but am comforted by being able to have a restroom nearby available.  There are days I go several times a day and others twice.  ...

Hi - eight days ago I had 15 inches of my colon removed and a colostomy placed due to severe diverticulitis with abscesses. It appears I've had this a long time and it went undiagnosed, with my first bout in August on 2015.  I almost died they tell me. Now I have this bag and I'm overwhelmed.  Aside from being exhausted from major surgery, every twinge makes me anxious. Has there been anyone here who's recovered swiftly and gone on to lead a normal life after this? I can't even begin to describe the horror of waking up learni...

Hi, I've named my stoma 'Henry', does anyone else name theirs or am I the only crackpot?!! It's a kind of 'friend' who never leaves my side, and though I hate it, sometimes I'm relieved I have him when the tum gets watery for no apparent reason... mine blows while the 'Henry hoover' sucks... and in my experience most men are assholes (no offence guys!) so it had to have a man's name!!! Sometimes I put smiley faces on the bags...

So for all af the female OstoMates out there,how hard is it to find a pair of jeans.I went boxing day shopping wiyh my 24 year old daughter and 2 of her friends(the same age of my daughter)we had a great time but when we tried on jeans(14.00 a pair)I was so upset that all that they make are low rise jeans.Well when you have a stoma that is higher then where the jeans come its not very attractive.I woul like to hear your solutions to this problem if you have it.

Hello  I started the irrigation process early this morning.  I had everything that I needed with me and for one strange reason or another it did not respond.  I placed teh cone in my stoma and low and behold nothing.  What did happen was that the water would filter out while the cone was in and fell into the sleeve but, not all of it 1.5 liters.  I am hoping that this model will work for me. I did reinsert the coe severa times.  Where did all of tha water go.  On my end it si 12:42.  It has...

Someone said the following:  What we think we are we are not.  What we think, we are. Any thoughts? Mike

It has been a LONG time since I was last involved in the dating scene as my marriage of twenty years just imploded. I recently began talking to a young man online who asked for my phone number. I thought that this was probably the right time to reveal the truth about my cancer and ileostomy. He dropped me like a hot potato. Not a word. No phone call, no email, nothing.  Even though it is the reaction I expected, it still stung a bit, you know? My husband was wonderful about my ostomy. Didn't bother him in the least. BUT he was also ho...

I was "diagnosed" with Fibromyalgia several months ago. I just now began taking the medication, because frankly, I don't have the "tender points" and my muscles don't give me problems; my large joints do. So I am not sure if that's what I have. My neurologist put me on Lyrica. I haven't decided if I like it or not or if I will continue it. Does anyone else out there have this same issue or have you been diagnosed?

OK, So I know I'm different, but now I'm really different after I woke up with an illieostomy.  I find I'm even more of a sub unit as the others on this site.  Are there any other gay men on here who would like to talk?  I have so many questions and just don't know how to progress.

I thought this was a social issue but maybe it belongs here.  Please don’t be offended; just attempting some levity. I’m wondering if the F word means as much to everyone else as it does to me.  When I was a kid I used it as much as possible to be one of the cool guys.  I’m 72 now and being cool is not a priority.  Actually, I’m one of you guys now and that’s not exactly what I would call “cool”.  Well, the physical part that is.  Intellectually, I’ve learned tons...

Theres not been any dating adds so i though id be brave and be the 1st to put one on. Well hello i was wondering what to write as a punchline 1st so it was either romeo seeks his Juliette or prince charming seeks his princess they both sound like me so any way lol. here goes. an dating ad like you never seen before . well i suppose I'm like a prince charming that is seeking his beautiful princess. i will treat you like a princess show you lots of love and affection give you lots of cuddles and kisses show you that your wanted and f...

hello all you lovelies i say lets try to make this work surely a jamboree with all our wonderful minds together im sure this plan for us all to meet is doable a big camping ground i mean it would take some time to plan it  do we have any volonteers to discuss this and plan it gus you were a driver we must have someone with travel experience someone retired with time on their hands would make a great project we could plan for next summer bring our families get hollister convectec to put up a tent show us new items would be great b...

I consider myself non-religious but spiritual. To quote my favorite author (Edward Abbey) "I am not an Atheist, I am a Eartheist" Even when I was deathly sick, I never felt the need to pray. My thoughts were with my family and how they would do without me. I do not believe in a diety, I do not believe in an afterlife. I do believe in nature, in the cosmos, in things that happen that cannot be explained (yet). I just wanted to see if others out there feel similar, please join this thread. Aaron PS-If you are religious, ple...

Well hello 👋 everyone  needs your prayers just saw my surgeon today and they decided to remove my rectum.... has anyone had this done? How long was hospital stay and recovery?

i have had a heck of a time with pouches. I have tried several different companies products and am totally disgusted that none of these products are reliable. One pouch I get 8 says out of it and the next one may not make it but one to three days! I need better than this to live an active life and right now feel a prisoner in my home due to this. My output is very liquid so it seems I am covered in poop a lot! Lol I have ordered the irrigation kit and was told by my doctor it may fit my life better. I understand that you irrigate ever...

good day all, I'm a disabled veteran so I had an appt I'm sitting in the office with the doctor, I had on jeans a lace blouse, combat boots and a leather jacket, I felt warm. So I told the doc I have to get in the bathroom , which was right across the hall from office.. I told the doc I have leaked and I'm warm all over , she said I'll call maintence. So in the meantime I'm in the bathroom One stall thank god!!!! So I'm coming out of all my clothing . By me being at va the exchange was open, which is a military store that carries different...

I've been given mixed information as far as rinsing out my ileostomy bag between changes. Yay or nay?  I had a lot of issues with leaking barriers early on, and one of the suggestions was to NOT rinse inside the bag. But it seems like if the barrier holds up with liquid output, water should be fine? 

.Possibly in a chat room........All of us ,  Our Ostomy family together in one room( albeit a chat room).......Just a thought....The power of that on a worldwide scale can only help JeanieFrances......Lets coordinate it.  I know that might mean different hours around the world..But what they hey.........We all get up in the middle of the night anyway to empty,  why not meet and pray for JF , all together in one chat room........together at last........Michael Reaching out for help to coordinate this............

It seems like we know everything there is to know about our stomas, the appliance and all that needs to be done and when. Yet it wasn't that long ago that we didn't know the difference, or if there was one, between barriers, barrier rings, barrier film or spray, wafer, base plate, etc. I mention this because there may be questions asked by newer folks and we (or I) need to slow down before throwing out stuff that was a mystery a short time ago. One of the real hazards for folks like us is not asking enough questions. I'm not new to this ...